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How to deal with extreme physical pain

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Re: How to deal with extreme physical pain

#82
My left knee occasionally locks up and if the little dance I perfected over the years to unlock it doesn't work, I have to straighten my leg with one swift move - something that brings pain which I am only able to describe as "magical" or "surreal".

USG yielded no results so I've been sent to have an MRI done, but corona got in the way of that.

Exercise helps in my case fortunately. My friend wasn't so lucky and once he started experiencing chronic pain, it never went away, despite efforts in this direction, and eventually started affecting his career.

Pain changes you. Especially if it's sudden and unpredictable. Anxiety sets in eventually.

Re: How to deal with extreme physical pain

#83

I have a chronic condition that causes pain. One of the things I've learned, in as much as I can, is I don't tell anyone. I'd rather be rude than explain I'm in pain. Not because I don't appreciate sympathy. Not because I'm ashamed. It's because I don't want your advice on how to make the pain go away or to deal with it. I'm tired of advice. I've got too much advice. I try things, I research issues. I talk to doctors…

Sorry to hear this. Mind if I offer a meta-woo remedy?

There are communities out there who value deep and non-judgmental listening. They recognize that it can be an act of aggression to offer unwanted advice. They have a healthy interest in others and know when to yield when it's really not their business to know.

If you could find such a community, you might feel better. You might feel understood.

Re: How to deal with extreme physical pain

#84
post #62

A few years ago, my partner ran out of critical insulin pump supplies and I appealed to the internet for help. Eventually, Scott drove quite a way to our apartment to give her (a complete stranger) what she needed (and more!) He's a stand-up grade A really nice guy, and I genuinely wish him the best. I wish that I had more expertise to help with this issue, as the only thing that comes to mind is I've had good result…

That is a lovely story. He does come across as a genuinely good guy.

Yeah, he's great!

We needed just a couple insulin reservoirs for a Medtronic pump and he brought a bunch of them, and quite a few blood glucose strips (which can be ridiculously expensive), and gave us a little demonstration about a closed-loop "artificial pancreas" system based on open source software and relatively cheap hardware. I'd definitely never have heard about Tidepool or OpenAPS if it weren't for his visit.

Re: How to deal with extreme physical pain

#85

I work with cannabis and CBD/CBG/CBN/CBDV/CBN-D. I understand that others view may be that this has been marketed to death (in some very MLM-esque ways). These products either help you or they don't. Some people with ocular pressure disorders can see large improvements to quality of life (vision) by using crude oil CBD. Nerve damaged individuals sometimes see relief with CBG. People with chronic sleep disorders can s…

Thanks. I have some minor nerve pain that sometimes flares up to moderate nerve pain, and another issue that makes taking NSAIDs contra-indicated (so I just grin-and-bear-it). I’ll look into this as a possible backup solution.

Re: How to deal with extreme physical pain

#86
post #83

I have a chronic condition that causes pain. One of the things I've learned, in as much as I can, is I don't tell anyone. I'd rather be rude than explain I'm in pain. Not because I don't appreciate sympathy. Not because I'm ashamed. It's because I don't want your advice on how to make the pain go away or to deal with it. I'm tired of advice. I've got too much advice. I try things, I research issues. I talk to doctors…

Sorry to hear this. Mind if I offer a meta-woo remedy? There are communities out there who value deep and non-judgmental listening. They recognize that it can be an act of aggression to offer unwanted advice. They have a healthy interest in others and know when to yield when it's really not their business to know. If you could find such a community, you might feel better. You might feel understood.

Honestly, thanks for that.

The last community I joined ended poorly when I didn't, err, react well to the advice that I try going to church more.

I do need to work on my mental health side, and a community is a good way. I'll dig into that.

Re: How to deal with extreme physical pain

#87
post #53

Earlier quoted context omitted.

Ah, people are just trying to relate and help. I get that it's frustrating, though.

Care by simply expressing someone wasn’t in pain is enough. No need to try to be the fixer.

Right, right. Just explaining. Not justifying.

Re: How to deal with extreme physical pain

#88
As migraine sufferer, I find relief in only two thoughts:

- my migraines last 4 hours and happen once every 3-6 months, and there are people who have 72hs long migraines, or migraine every few days

- I could've had cluster headache instead. People suffering from those call them "suicide headache" and are known to hit their head against different objects, because losing consciousness or felling other pain is preferable to it: https://www.youtube.com/watch?v=OO5oDaG45kE

Re: How to deal with extreme physical pain

#89
post #22

I have a chronic condition that causes pain. One of the things I've learned, in as much as I can, is I don't tell anyone. I'd rather be rude than explain I'm in pain. Not because I don't appreciate sympathy. Not because I'm ashamed. It's because I don't want your advice on how to make the pain go away or to deal with it. I'm tired of advice. I've got too much advice. I try things, I research issues. I talk to doctors…

> It's because I don't want your advice on how to make the pain go away or to deal with it Banana_giraffe isn't alone. I had chronic obstructive sleep apnea and I quickly got tired of unsolicited woo-woo illogical suggestions to treat it. Exercise and meditation doesn't fix problems with bone structure.

Counter-point: the number of people with a sleep disorder who are determined to try every folk remedy they can get their hands on before seeing an actual doctor

Re: How to deal with extreme physical pain

#90
I started getting cluster headaches a couple of years ago. The level of pain that they inflict completely changed my pain scale.

I started doing something that I read in a fiction book series (The Dresden Files) - basically a little visualization that helps me compartmentalize the pain. It helps a ton, though the fact that the attacks are relatively short probably help in that regard as it takes a lot of concentration.

The reason I bring that all up is that people tend to discount what they can do about a problem, mentally. You’re not going to get rid of the pain, but you might be able to work out a way to deal with it better.

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