Hacker News Board Hacker News, browsed like a classic message board
Live data from Hacker News

We’re all just temporarily abled

blog.jim-nielsen.com

Post reply on HN
Print view View original

511–520 of 537 posts

Re: We’re all just temporarily abled

#511

Post by gertlex »

oalders wrote: post #487
gertlex wrote: post #469

Earlier quoted context omitted.

I've been wearing BTE (behind the ear) hearing aids since I was a kid. So I have the custom molded ear plugs (with hole for tubing) like you mention. I enjoy that they're a magical always-ready pair of earplugs. But recently trying to use some actual ear plugs to help sleep at a noisy location... I thought they weren't helping, and then I learned from my wife that I wasn't using them correctly. It seems the trick was…

From using regular ear plugs, my experience is that you really need to get them in there quite far. Also, I find that the disposable ones are really basically single use. After they've compressed and expanded I find they don't seem to work as well on subsequent uses. So, taking them out and putting them back in is something I would try to minimize. Maybe they've improved in the meantime? The molded plugs to me do fee…

Cool, thanks for the extra insights!

With (high power) hearing aids, it's reasonably easy to know if you have a gap in the mold: I'll get a feedback loop (annoying noise, naturally) if one is loose or a poor fit. Interestingly, for the past few molds (a 4-6 year life per pair these days) the left ear definitely has more of a problem with feedback loops when my jaw is opened wide (i.e. eating) - the shape evidently varies more with this movement than the right ear does.

Re: We’re all just temporarily abled

#512

Post by jstarfish »

jnovek wrote: post #295
irrational wrote: post #287

Earlier quoted context omitted.

Or diagnosed as something they clearly are not, like depression. There are doctors who are willing and interested in doing the necessary investigative work to figure out what is going on, but they are an extremely small minority.

A bit of a tangent. My experience suggests that the transactional nature of modern medicine is part of what makes these types of investigations so hard. A doctor will be booked solid all day without time to reflect or investigate and that really only works with one-off problems. A chronic condition is not transactional, it's narrative. Someone needs to manage that narrative and mine it for insights. The only way the…

> My experience suggests that the transactional nature of modern medicine is part of what makes these types of investigations so hard. A doctor will be booked solid all day without time to reflect or investigate and that really only works with one-off problems.

I'd argue that has more to do with the sheer number of variables and our limited understanding of how they interact.

Patient resilience is also a factor. Few have the resources to eliminate all possibilities at their own expense while accepting the risk of having nothing to show for it. The opposite end of the spectrum are people who show up expecting to walk out with Vicodin and SSDI after the initial consultation.

Using chronic migraines as an example, that shit is a response to something-- and it may not even be medical in origin. Worst case: if you're a diabetic homebody living with six cats' dirty litter boxes, have mold in your basement and bats shitting in your attic, drink no water, smoke meth and eat only takeout Chinese food, any single one (or combination) of these could cause chronic migraines, and are far from being the only causes. Stipends and Oxy won't fix any of this.

Doctors are not investigators. They are scientists. Trained investigators are presumed unqualified to "manage that narrative and mine it for insights" because they are not Doctors (credentialism/"you're not a doctor" is literally the response any disability attorney would suggest you raise against skeptics, failing to notice the irony in a non-doctor attorney/client team touting the validity of a self-authored medical narrative).

Re: We’re all just temporarily abled

#513

Post by zie »

cogman10 wrote: post #446
zie wrote: post #427

Earlier quoted context omitted.

If they can't make OK financial decisions, it doesn't really matter does it? There are 2 choices: - Either you set it all up ahead of time and they have someone you trust to watch over them after you are gone. - They get shunted into the system and whatever happens, happens.

I didn't say I'm not preparing things. I'm saying an able account isn't a slam dunk. An able account, if mismanaged, can disqualify my kid from Medicare. That means costly and time consuming legal intervention to correct while my kid misses out on medical care they need. The third option is waiting on the able account (not the SNT). There's little harm in waiting.

Of course it's not a slam dunk, but it's literally the best and (besides the complicated SNT) only option.

Obviously, if you go over the limit, they would be disqualified while the balance is over.

Again, I think you are way over-thinking this:

- If the kid is responsible enough to handle it, then there is no problem.

- If the kid isn't responsible enough, then someone will be the responsible party.

- If you don't know if the kid is responsible enough yet, then you assume they aren't for the time being.

No problem arises regardless of the state of their financial responsibility. It's not rocket science.

As for waiting or not, that's your call, but you want compounding to work in your favour.

Our current plan is ABLE and start the SNT hassle up as we approach the limit(which hopefully will go up before we reach it).

Re: We’re all just temporarily abled

#514

Post by Supermancho »

scarby2 wrote: post #440
citruscomputing wrote: post #392

Earlier quoted context omitted.

Something my therapist pointed out to me is that obesity is directly linked to childhood and intergenerational trauma; calling it self-inflicted is not accurate. Even if we're focused on healthy eating, food deserts exist. No man is an island, &c. Also, to cite an HN darling[0], obesity is, at the very least, a lot stranger and more complicated than CICO. > we also need to prevent the exploitation of disability progr…

> Something my therapist pointed out to me is that obesity is directly linked to childhood and intergenerational trauma; calling it self-inflicted is not accurate. Even if we're focused on healthy eating, food deserts exist. No man is an island, &c. The idea that obesity is self inflicted runs contrary to our current understanding not just of psychology but of physiology. Most people don't have a constant struggle to…

> The idea that obesity is self inflicted runs contrary to our current understanding not just of psychology but of physiology.

Eating your feelings (emotional eating) is commonplace. I'm saying it's a uniform cause, but common enough to pass the bar of "contrary to current understanding of psychology".

Re: We’re all just temporarily abled

#515

Post by dirtyid »

dgellow wrote: post #240
sideproject wrote: post #30

I once sat on a zoom call with a vision impaired user to do some accessibility testing on our site. First, it was enlightening for me to see how she navigated through our site using her screen reader. Second when she landed on our booking page we got so embarrassed because she couldn’t use our date picker. A basic HTML version would have done the job. But a few weeks back we had debated over which fancy jquery date p…

That makes me think, how does one learn to use a screen reader? (Or alternatives for other handicaps) It seems fairly technical and challenging to learn, but I feel it would make sense for abled engineers to practice using those. I personally wouldn’t even know where to start, I only enabled the screen reader a few times by mistakes and have no idea how I could learn to be effective with it if I need to at some point…

I've been learning screen readers in my spare time because it seems like a nice screen off way to browse content in bed. It's servicable and maybe even viable way to work if more of the web was tailored for it.

Re: We’re all just temporarily abled

#516

Post by coffeebeqn »

trogdor wrote: post #265
coffeebeqn wrote: post #239

Earlier quoted context omitted.

Layne Norton is another if you want more of a natty point of view (IFBB pro). Mike is very enjoyable but I do find his advice often leans toward enhanced people and might not be the best for natties

Since when do "natty" and "IFBB pro" go in the same sentence?

Oh sorry not IFBB - not sure where that popped into my head

Re: We’re all just temporarily abled

#517

Post by coffeebeqn »

swores wrote: post #266
coffeebeqn wrote: post #243

Earlier quoted context omitted.

Opposite of enhanced. Someone who hasn’t taken any performance enhancing drugs

Am I right to assume there aren't any PEDs that are useful without having negatives? I have no interest in competing/fairness, the only weight training I do is a) very light and b) just to have slightly stronger muscles to make the life I want to live easier (from going on nice walks to cycling to being able to pick up a heavy object without stress etc.) So I don't care about stats or achievements or how my muscles l…

They are all varying levels of dangerous. The most common warning I hear is that the heart is also a muscle. But there are many complex issues that come with PEDs. Anyone who had used them and is a serious person will tell you, a) don’t do it, b) if you really must, do it after you’ve reached your genetic peak as a natural with 5-10 years of heavy training.

Re: We’re all just temporarily abled

#518

Post by nextlevelwizard »

paulcole wrote: post #219
nextlevelwizard wrote: post #192

Earlier quoted context omitted.

>I think that is missing the point a bit same right back at you. just because at some point you might (or I guess you and the author are arguing will) get injured doesn't mean strengthening yourself is invalid. in fact healthier and in better shape you are the less likely you are to suffer debilitating injury. tweaking my strong knee that is used to squatting heavy weights and otherwise supporting active lifting is w…

I think you’re still missing the point. Eating a good meal today doesn’t prevent you from going hungry 6 months from now. Of course you know how to put food in your mouth and eat, but do you understand how to deal with the physical/emotional/mental challenges of living as a person who’s without enough food?

>Of course you know how to put food in your mouth and eat, but do you understand how to deal with the physical/emotional/mental challenges of living as a person who’s without enough food?

I think we are so far ideologically from each other that we can't even communicate. I can not follow this logic at all.

Re: We’re all just temporarily abled

#519

Post by nextlevelwizard »

madeofpalk wrote: post #209
nextlevelwizard wrote: post #192

Earlier quoted context omitted.

>I think that is missing the point a bit same right back at you. just because at some point you might (or I guess you and the author are arguing will) get injured doesn't mean strengthening yourself is invalid. in fact healthier and in better shape you are the less likely you are to suffer debilitating injury. tweaking my strong knee that is used to squatting heavy weights and otherwise supporting active lifting is w…

Strengthening yourself is beside the point. I don't think anyone is saying that that strength training is invalid. You're trying to debate a point that no one is disagreeing with. Lifting weights isn't going to do much to prevent your hearing going bad, or eyes degrading and needing corrective lenses, or not being able to move otherwise you'll wake the newly born baby who's finally gotten to sleep. This article is a…

"We all die" yes, yes, but you can die gracefully or pitifully.

Lifting weights won't help you with your eyes or ears, but being in better physical health translates to better mental health, which translates to better ability to cope with all limitations.

People who just sit still as they age deteriorate incredibly fast in more ways than one.

I guess this article can be eye opening for anyone who has lived in a bubble without them, their relatives, or friends suffering from any issues, but that has to be exceedingly rare.

You can prepare for injuries. You can strengthen your body and joints to prevent physical injuries, you can keep active mind to prevent mental issues, you can wear PPE to protect from most sudden sight and hearing losses. You should wear gloves while handling raw meats, it is more hygienic and makes cleaning a lot faster and more pleasant.

Re: We’re all just temporarily abled

#520

Post by omnimus »

RankingMember wrote: post #337
omnimus wrote: post #156

Earlier quoted context omitted.

I am not sure if you minimize risk of injury that much. You might get injured on machine or dumbbell if you go heavy. Anyway with most machines you won't be able to load it heavy enough quite soon. I think there is also happy middle ground where you train for strength but not into extremes - you progress at slower pace and prioritize form. I would say bodybuilders can also be strong and healthy but they can't use tha…

> I am not sure if you minimize risk of injury that much. You might get injured on machine or dumbbell if you go heavy. The thing machines have that free weights don't are in-built safeties, either by design or as a discrete component (e.g. smith machine). The only machine I can think of that you can get seriously injured on is a leg press machine, whereas there are a multitude of ways to hurt yourself with free weig…

You are right. I meant it if you do excercises “properly” it shouldnt be big difference. But of course that already means freeweights are more dangerous.
Post reply on HN