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We’re all just temporarily abled

blog.jim-nielsen.com

481–490 of 537 posts

Re: We’re all just temporarily abled

#481

Earlier quoted context omitted.

There are still expensive private clinics in all countries with public healthcare.

Did you intend to reply to a different comment? What does the mere existence of 'expensive private clinics' in X countries have to do with the diminishing return on higher priced brain surgeons?

No. I am pointing out that rich people still can and do spend all their money on private healthcare for some tiny increase in countries with public healthcare.

Re: We’re all just temporarily abled

#482
post #475

Earlier quoted context omitted.

I addressed this here: https://news.ycombinator.com/edit?id=37212689 > "100%" doesn't mean "there are no nitpicky edge cases," it means, "this includes you, yes you, this is relevant to you ." > It is completely normal to use language that is not entirely precise. It isn't a criticism to point this out.

There are people who take words quite literally, pretty ironic to ignore them in a post about disabilities.

And did you genuinely not understand what was meant by this turn of phrase?

Re: We’re all just temporarily abled

#483

Earlier quoted context omitted.

Yup. I have a child with autism. The American system is cruel beyond imagination. To qualify them for social security and Medicaid I have to leave them impoverished. They can't have more than $2k worth of assets in their name. Instead it's a complex lawyer game of trusts to give my child any sort of inheritance. Yet they are basically guaranteed to end up in a group home (Even though I own my own home) because a care…

I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. Means testing usually does not feel like an effective way to distribute services. I want millionaires to be using government aid to help their children: just like with free education, when everyone who needs help uses it, the richer parents will demand, and ensure we pay for, higher quality for all. Everyone who is…

Exactly - universality is why Social Security and Medicare haven't been politically destroyed (yet) and remain the most popular public programs in the history of the US.

Means testing is not only inimical to the concept of shared benefits, but it's actually expensive to perform the means-testing. And some people who should qualify don't get the benefits.

Re: We’re all just temporarily abled

#484
post #465
post #456

Earlier quoted context omitted.

Somewhat agree, but when you say typing the date you mean ISO 8601, right? That is the only sensible format for dates, and while all developers probably agree on that it isn't a given that all your users will.

As input, any permutation of full year, full month name, and day of the month is unambiguous wrt any date on or after January 1, 100 CE* and therefore sensible, no matter how unusual/obscure. (The issue of handling multiple languages isn't a rejoinder to this, because that's just localization, which is an umbrella that should already exist so treating it like a new requirement would just be double counting.) This is…

> As input, any permutation of full year, full month name, and day of the month is unambiguous wrt any date on or after January 1, 100 CE* and therefore sensible, no matter how unusual/obscure

If you are using a proleptic Gregorian (or Julian, but why on earth would you do that) calendar, sure.

If its not one of those (but its still the Roman-derived Christian calendar in some form), there are ambiguities, and if its any other calendar, it may have ambiguities and/or the elements needed to specify a date may be different, and the CE/AD year is likely not an element and not relevant to whethe or not their are ambiguities.

Re: We’re all just temporarily abled

#485

So this is how I live my life - knowing that your good health and ability can always just end at no fault of your own. It still haunts me that my father had plans we always talked about, he was very active and loved going outdoors and travelling, mountain biking, hiking etc, he spent a crazy amount of time getting a Land Rover done up as a Camel Trophy replica for a big adventure we were meant to go on, and then basi…

While I don't disagree there are certain activities (skydiving etc.) I'm happy to wait until retirement to try, given the consequences of something going wrong - if I miss out on my last decade or so of growing old peacefully, so be it. But I'm not quite so cavalier about it when I'm hoping I still have another 30 years of good health ahead of me.

Re: We’re all just temporarily abled

#486

Earlier quoted context omitted.

Also, the second you have slightly more than pocket cash to your name, all your disability and SSI type benefits go away. You cannot work yourself out of disability, because getting a job that can't exclusively pay for all your needs will still kill your benefits, leaving you worse off than the horrid poverty of exclusively relying on the government. So many people in America who are on government benefits for life w…

>to things like Dollar Tree where you can pay double the unit rate to buy a small portion of a normal product. It seems like you're implying that Dollar Tree is unethical for putting forward an investment in order to take advantage of economies of scale and then paying for overhead, shipping, and retail space to sell their goods at a profit. What do you propose as an alternative to this? Should these goods be taken f…

It is possible to think something sucks without thinking it needs to be regulated away with force.

In the best possible world, their niche would not exist (would not be profitable) because they would have no target market, because everyone would be able to acquire basic necessities at regular grocery/big-box stores. A UBI scheme is far more productive in achieving that world then either of the (likely facetiously suggested) ideas you mentioned.

Re: We’re all just temporarily abled

#487

Earlier quoted context omitted.

If you can see an audiologist, they should be able to get you custom molded ear plugs. You can buy filters for different sound levels, so that you can reduce the volume and still be able to hear enough to enjoy music at a concert etc. If they're well made, you can probably wear them for a few hours without too much discomfort. They're more expensive than something that is off the shelf, but being able to choose the a…

I've been wearing BTE (behind the ear) hearing aids since I was a kid. So I have the custom molded ear plugs (with hole for tubing) like you mention. I enjoy that they're a magical always-ready pair of earplugs. But recently trying to use some actual ear plugs to help sleep at a noisy location... I thought they weren't helping, and then I learned from my wife that I wasn't using them correctly. It seems the trick was…

From using regular ear plugs, my experience is that you really need to get them in there quite far. Also, I find that the disposable ones are really basically single use. After they've compressed and expanded I find they don't seem to work as well on subsequent uses. So, taking them out and putting them back in is something I would try to minimize. Maybe they've improved in the meantime?

The molded plugs to me do feel a lot like a properly inserted ear plug and with the filters in, there should be no gaps. It should be a very snug fit. I've got 10db, 17db and 26db filters. The 17db filters are the sweet spot for me, but it's nice to have options.

Re: We’re all just temporarily abled

#488

I once sat on a zoom call with a vision impaired user to do some accessibility testing on our site. First, it was enlightening for me to see how she navigated through our site using her screen reader. Second when she landed on our booking page we got so embarrassed because she couldn’t use our date picker. A basic HTML version would have done the job. But a few weeks back we had debated over which fancy jquery date p…

> It was fancy alright

I don't want to overdo it with high-falutin' theorizing, but I think your firm's definition of "fancy" might be missing some crucial aspects, or maybe "fancy" isn't the right term. Maybe it was "flashy," or "gaudy," or "decorative"? Maybe it was "branded"? Or did it actually offer sighted users a more effective UX?

Re: We’re all just temporarily abled

#489
post #9

Indeed. And we are all born disabled (in that we are unable to sustain our own independence and wellbeing without assistance), and will likely all be disabled at the door of death. For such a universal experience, you’d think healthcare was more central a tenet of civilisation… As available and freely usable as the roads we drive on. Not just that, but our very way of work. 40+ hours a week is plainly ableist yet it…

The problem is you can’t go into a “healing tube” like from sci-fi movies and get fixed. Medical workers are real people with their own wants and opinions on their compensation, just as we are as technologists. It’s so funny that everyone on HN expects to make tons of money for little effort, but when doctors and nurses want to be paid huge bucks society balks. America’s model is where the UK, Canada, and other subsi…

> America’s model is where the UK, Canada, and other subsidized healthcare systems are going

Well there are other ways to scale - look to China' system - which has a massive throughput of patients in large regional medical centers - primary doctors there see like hundreds of patients a day - but don't do anything but recommend and if you can't get it resolved, they have an escalation mechanism where you see more and more specialized doctors (same day) until you either stump the most specialized docs or they have an action plan for you.

So you could automate the work away or you could create a system that scales through production-line efficiency.

Re: We’re all just temporarily abled

#490

Earlier quoted context omitted.

Also, the second you have slightly more than pocket cash to your name, all your disability and SSI type benefits go away. You cannot work yourself out of disability, because getting a job that can't exclusively pay for all your needs will still kill your benefits, leaving you worse off than the horrid poverty of exclusively relying on the government. So many people in America who are on government benefits for life w…

Mostly agreed on all of this. The only real way out for people on SSI, based on my experience, is to get a degree in a field where your disability doesn't hold you back. For me, this was computer science. However, I'm not about to go tell everyone on SSI the way out of that poverty trap is to simply 'learn to code'. I'm fully aware that 'learning to code' isn't even an option for most of the able bodied population, m…

The majority of disabled people would much rather work a significant amount, but employers will turn away a hundred willing disabled employees over spending even ten bucks on accommodating their disability. I have a dwarf friend (his preferred terminology) who has a chemistry degree, and had to interview at fifty different places, including ten interviews at the same place where many of the managers knew him by name and wanted to hire him, before he finally got a job. This insanity included a previous place that he interviewed at that explicitly told another company not to hire him because he requires accommodation.

That accommodation? A fucking tall stool for the lab bench.

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