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We’re all just temporarily abled

blog.jim-nielsen.com

371–380 of 537 posts

Re: We’re all just temporarily abled

#371

Earlier quoted context omitted.

Yes I have gone through these, started with SS, saw basically no progress, then moved to 5/3/1 and did some other routines over the past several years. At my peak before a recent injury I was at 225 bench, 325 deadlifting and 275 squat.

"At my peak before a recent injury I was at 225 bench, 325 deadlifting and 275 squat." So you barely lift...?

Keep in mind this was also due to weakness that led to an injury, I did not want to try more weight.

Re: We’re all just temporarily abled

#372
post #295

Earlier quoted context omitted.

Or diagnosed as something they clearly are not, like depression. There are doctors who are willing and interested in doing the necessary investigative work to figure out what is going on, but they are an extremely small minority.

A bit of a tangent. My experience suggests that the transactional nature of modern medicine is part of what makes these types of investigations so hard. A doctor will be booked solid all day without time to reflect or investigate and that really only works with one-off problems. A chronic condition is not transactional, it's narrative. Someone needs to manage that narrative and mine it for insights. The only way the…

I’m not sure transactional is the right word. The problem you are identifying is physician bandwidth, or more fundamentally, insufficient physician supply to meet medical demand, which leads to lower quality care.

Re: We’re all just temporarily abled

#373
This is very timely for this post to appear on the front page because I just suffered a pretty bad injury. I broke my clavicle in a cycling race. I can hardly move, my sleep is constantly disturbed by pain, and I am only able to type this with two keyboards – one resting on my right shoulder so I can use my left hand in the sling, and one for my right hand on the desk.

I'm only able to function because my partner is taking such great care of me. I would otherwise be toast. I can't drive like this. I can hardly walk due to road rash on my legs.

Take your health seriously. You can only truly realize how lucky you are once it is gone.

Re: We’re all just temporarily abled

#374

Earlier quoted context omitted.

My fiance had intercranial hypertension. Which is a complex way of saying "we don't know the root cause of why your spinal fluid is causing so much pressure in your head that you want to take a ice pick and poke a hole in it!" which also decreases EVERYTHING due to brain pressure, so more tired, less ability to think, less sensitive to all senses, less emotional control (especially because you're in constant pain / f…

> Which is a complex way of saying "we don't know the root cause of why [...]" A thing a lot of people don't seem to be aware about modern medicine. We can treat many things, we know a whole lot more than we used to, but a lot of this knowledge is often incomplete. Many of the body's systems are very badly understood. Treatment for most of those issues is symptom management more than anything else.

This is true. We know experimentally that certain drugs are helpful for certain symptoms. In some cases we have some idea of why they work, but far more often than you might think, it's a case of "we know it works but really don't know why."

Re: We’re all just temporarily abled

#375
post #345

Earlier quoted context omitted.

I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. Means testing usually does not feel like an effective way to distribute services. I want millionaires to be using government aid to help their children: just like with free education, when everyone who needs help uses it, the richer parents will demand, and ensure we pay for, higher quality for all. Everyone who is…

> I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. The problem isn't the means testing the problem is it's applied with broad strokes like all well meaning but inevitably awful government work. First, everyone pays into disability. So everyone should be able to get their share when necessary. Second, means testing includes things like housing, retirement accounts…

> If you're only disabled because you eat too much and can't be bothered to exercise I question whether you're actually disabled.

Okay... how do you then prove this? Is preexisting medical issues considered legitimate? What about medication changes? What about [insert any of many possible causes]? What if you have one of those causes but are missing one piece of paperwork to prove it? What if what if what if? I worry that trying to put legitimacy tests on disability just leads to "you're not disabled enough to deserve health" the way it does now.

Re: We’re all just temporarily abled

#376

Earlier quoted context omitted.

Hi, this was enlightening. I'm a dude who has IIH myself for now almost half a decade and I was at no point told this could reduce my cognitive abilities. I take Diamox just in case (to reduce the intracranial fluid). It was a heering experience to get this diagnosed. One day all of a sudden my head started hurting and didn't stop, for months. But I had no other symptoms so doctors didn't take me seriously and my neu…

> It makes me feel like I'm just not worthy for life because hey, if they can make it, why can't I? Honestly though, nobody should have to earn a decent living, regardless of level of ability. They're alive, and not by choice, so they should be able to enjoy it. Meritocracy is just cruelty when extended to the conditions of one's life - we want those with the fewest intrinsic resources be made to suffer? I don't.

"We should do away with the absolutely specious notion that everybody has to earn a living. It is a fact today that one in ten thousand of us can make a technological breakthrough capable of supporting all the rest. The youth of today are absolutely right in recognizing this nonsense of earning a living. We keep inventing jobs because of this false idea that everybody has to be employed at some kind of drudgery because, according to Malthusian Darwinian theory he must justify his right to exist. So we have inspectors of inspectors and people making instruments for inspectors to inspect inspectors. The true business of people should be to go back to school and think about whatever it was they were thinking about before somebody came along and told them they had to earn a living." - Buckminster Fuller

Re: We’re all just temporarily abled

#377

I once sat on a zoom call with a vision impaired user to do some accessibility testing on our site. First, it was enlightening for me to see how she navigated through our site using her screen reader. Second when she landed on our booking page we got so embarrassed because she couldn’t use our date picker. A basic HTML version would have done the job. But a few weeks back we had debated over which fancy jquery date p…

It's been a while, but I'm not convinced there is a truly accessible date picker out there. Allowing manual typing of the date seems like the best and only viable option.

Also just typing the date manually is almost always faster than using a date picker. Or at least that's how I perceive it, which is all that matters. I hate apps that force me to take my hands off the keyboard and use the mouse.

Re: We’re all just temporarily abled

#378
The article hit home for me, since I injured my left knee in June. I was rehabbing pretty good, to the point where I could do exercise bike and leg work, including light squats. I was set to try a fast walk or slow run in a week, and I could still do yard work. Then last week I reinjured the knee mowing the lawn (if the mower sticks on turf, don't try to force it), and tweaked it again over the weekend (just reaching down to pull a damn weed!). It feels like the meniscus tear I had years ago in the other knee, or it might be an MCL sprain. No instability, just discomfort walking. I've concluded that yard work is more dangerous than strength training or running, particularly if you're stupid.

I saw a lot of comments about squats. I gave up power lifting after college, and just do higher reps/lower resistance stuff, and a lot of variety. But when I had a meniscus tear in my other knee, the orthopedist told me I didn't need to go all the way down to parallel to get the strength benefits for the quads - just 45 degrees was enough. Since I'm in my late 60s, I probably should be a little careful anyway. Suggestions are welcome.

The point of the original article about disability hitting everyone was the big takeaway. Suddenly I have to think about hiring someone to mow the lawn and do yard work for a while. I can still get to the grocery store, but what if the injury had been worse and I couldn't? For me this will probably resolve itself in a while, but for some people disabilities are permanent. Injuries are humbling, and an opportunity for us to gain empathy for others.

Sometimes when you can't do some things it helps you appreciate the things you can do. So the time I would have spent running or working in the yard gets spent reading or doing math, or doing different kinds of strength work. Doors close, doors open - do what you can.

Re: We’re all just temporarily abled

#380
Any solutions to this will be demonized as socialism, communism, Marxism, or disruptive to the economy by elected Republicans, their top corporate/rich donors,and a good chunk of Corporate Democrats. Popular news sources will largely nod along and keep being a carrier of a dishonest narrative.
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