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We’re all just temporarily abled

blog.jim-nielsen.com

351–360 of 537 posts

Re: We’re all just temporarily abled

#352
post #345

Earlier quoted context omitted.

I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. Means testing usually does not feel like an effective way to distribute services. I want millionaires to be using government aid to help their children: just like with free education, when everyone who needs help uses it, the richer parents will demand, and ensure we pay for, higher quality for all. Everyone who is…

> I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. The problem isn't the means testing the problem is it's applied with broad strokes like all well meaning but inevitably awful government work. First, everyone pays into disability. So everyone should be able to get their share when necessary. Second, means testing includes things like housing, retirement accounts…

> If you're only disabled because you eat too much and can't be bothered to exercise I question whether you're actually disabled.

Perhaps there's a distinction between chronic/permanent disabilities and transient disabilities? If I'm obese to the point where I can't walk, I am, indeed, disabled, but don't necessarily have to be for the next 20 years. Diet/exercise/surgery/etc could all reduce the obesity, but in the immediate 'now', I'm disabled and need assistance.

Re: We’re all just temporarily abled

#353

One of the best things I ever did was get strong through a basic barbell training program called Starting Strength. Squat, deadlift, overhead press, bench press, chinups, eat, sleep. It really is that easy. Highly recommend it for anyone interested. 1. Any back pain I had disappeared completely. 2. When I have to lift something awkward (eg, furniture), I don't injure myself. If you can deadlift 200KG, awkwardly leani…

You have to be pretty abled already to even start a basic lifting program. I have a nerve impingement in my neck/shoulder, if I even lift 10lb dumbbells over my head a few times, my left arm literally goes numb.

Re: We’re all just temporarily abled

#354

Earlier quoted context omitted.

I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. Means testing usually does not feel like an effective way to distribute services. I want millionaires to be using government aid to help their children: just like with free education, when everyone who needs help uses it, the richer parents will demand, and ensure we pay for, higher quality for all. Everyone who is…

> I want millionaires to be using government aid to help their children: just like with free education, when everyone who needs help uses it, the richer parents will demand, and ensure we pay for, higher quality for all. Beautifully summed up. I don't want people to have to impoverish themselves, burning through entire life savings, to 'qualify' for small assistance. IME, it reinforces a 'why bother trying' attitude…

I don't really see that working. The rich might use the government benefits to the extent they exist, but they will always have the option of paying more privately, or buying additional private insurance, etc.

You see this every day in public school, where the more well-off families pay for math tutors or extra coaching or other out-of-school opportunities for their kids.

Re: We’re all just temporarily abled

#355

Earlier quoted context omitted.

Is there any particular type or brand of earplugs you recommend, that are comfortable enough to wear for multiple hours and don't make the music sound too muffled (while still reducing the volume to safe levels)?

If you can see an audiologist, they should be able to get you custom molded ear plugs. You can buy filters for different sound levels, so that you can reduce the volume and still be able to hear enough to enjoy music at a concert etc. If they're well made, you can probably wear them for a few hours without too much discomfort. They're more expensive than something that is off the shelf, but being able to choose the a…

To add to this, expect to pay around $200 or so for custom earplugs, plus the cost of the audiologist exam. If you live close to a company that makes these, you may be able to visit them for an in-person exam at a bundled price.

While obviously this isn’t cheap, it’s well worth paying for if you’re a musician or you go to concerts frequently.

I got mine from Sensaphonics, they’re in Chicago. They also make in-ear monitors for professional musicians using the same molding process.

https://www.sensaphonics.com/products/erseriesplugs

Re: We’re all just temporarily abled

#356

Earlier quoted context omitted.

Hi, this was enlightening. I'm a dude who has IIH myself for now almost half a decade and I was at no point told this could reduce my cognitive abilities. I take Diamox just in case (to reduce the intracranial fluid). It was a heering experience to get this diagnosed. One day all of a sudden my head started hurting and didn't stop, for months. But I had no other symptoms so doctors didn't take me seriously and my neu…

> It makes me feel like I'm just not worthy for life because hey, if they can make it, why can't I? Honestly though, nobody should have to earn a decent living, regardless of level of ability. They're alive, and not by choice, so they should be able to enjoy it. Meritocracy is just cruelty when extended to the conditions of one's life - we want those with the fewest intrinsic resources be made to suffer? I don't.

This element of our society being so stingy with our bottom economic half hurts everyone as that half spend their money quickly and locally. The cutting taxes of the wealthy since "they'll invest more in 'creating jobs' and grow the economy" hasn't worked. That 'investment' went mostly to sweatshops in other countries. This is compounded with other draining tax breaks lije carried interest and the scam where corps by their own shares at a tax advantaged situation. The middle class has shrunk and standards of living have declined for I'd guess 2/3 or more of Americans.

Re: We’re all just temporarily abled

#357
post #345

Earlier quoted context omitted.

I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. Means testing usually does not feel like an effective way to distribute services. I want millionaires to be using government aid to help their children: just like with free education, when everyone who needs help uses it, the richer parents will demand, and ensure we pay for, higher quality for all. Everyone who is…

> I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. The problem isn't the means testing the problem is it's applied with broad strokes like all well meaning but inevitably awful government work. First, everyone pays into disability. So everyone should be able to get their share when necessary. Second, means testing includes things like housing, retirement accounts…

> For example, self-inflicted disability (morbid obesity for example) should be subject to a different test of means than birth defects.

I don't really agree with this.

First, I don't see "abuse" of the system being a major problem that needs to be defended against. If someone wants to destroy their future health by Homering, let 'em. They aren't extending their life by eating themselves to death.

But even if that's the concern, I'm pretty sure we could circumvent a lot of those issues simply by subsidizing disability causing conditions (such as building/maintaining public gyms). We can prevent people from getting there in the first place which would greatly reduce the problem of "abuse".

Strong means tests are expensive to run and ultimately will filter out people that actually need assistance. If we are going to apply a social filter, I'd rather side with letting those that don't deserve it in than keeping those that deserve it out.

This is born out with homelessness studies. Applying sobriety or religious tests before sheltering the homeless ultimately keeps people homeless. Housing first, on the other hand, has a tendency to make people sober.

Re: We’re all just temporarily abled

#358

Earlier quoted context omitted.

I do share your dream - perhaps it's just empathy? Maybe a good start is to believe people who tell us they're suffering, even if what they're suffering from isn't obvious and physical.

My fiance had intercranial hypertension. Which is a complex way of saying "we don't know the root cause of why your spinal fluid is causing so much pressure in your head that you want to take a ice pick and poke a hole in it!" which also decreases EVERYTHING due to brain pressure, so more tired, less ability to think, less sensitive to all senses, less emotional control (especially because you're in constant pain / f…

It's empathy, but also literally the smarter/cheaper/more humane way to do healthcare, free at point of service. An ounce of prevention vs a pound of cure.

what really makes me see red is the fact that how we do healthcare is worse, more expensive, and less helpful than were it given to all, and STILL, people vote against universal health care. The only benefit to our system as yet is its ability to enrich a few rent seeking billionaires in the middle of us and our doctors. But because crab in a bucket Billy Joe in rural kansas "don't wanna pay for sum un elses helfcare". Evil, stupid, individualistic self harming fucking animals we are in the US. Barbarians to let our citizens in the richest country in the world go bankrupt because they got sick. Evil.

Re: We’re all just temporarily abled

#359

I once sat on a zoom call with a vision impaired user to do some accessibility testing on our site. First, it was enlightening for me to see how she navigated through our site using her screen reader. Second when she landed on our booking page we got so embarrassed because she couldn’t use our date picker. A basic HTML version would have done the job. But a few weeks back we had debated over which fancy jquery date p…

It's been a while, but I'm not convinced there is a truly accessible date picker out there. Allowing manual typing of the date seems like the best and only viable option.

Re: We’re all just temporarily abled

#360

How many people I know got hit by a car and had their life ruined horribly. Or a bad surgery. Things totally out of their control. We need to see disability as a cost to society we must pay, not a failure of individuals which is more or less what were treating it. The American disability system is basically proving (very painfully) that life is barely livable to get scraps of help. Like below poverty levels. I really…

I totally agree with you.

> We need to see disability as a cost to society we must pay

Nonparticipating Product Hunting lifehacking hustlebros don't see things that way. They are the worst voters: they don't care about other people's problems and they don't care about problems that are even likely to affect them personally. They only care about the now.

ACA enabled nonparticipation. 18-26 year olds got insurance and checked out. Why do you think Republicans supported it? It got passed but it wasn't radical. That's the point.

> My dream is to see this sometime in my lifetime.

Make the radical thing happen by picking a side. If you feel strongly about this, align with something that activists have been advocating for for decades instead of "pain oriented policy" or something idiosyncratic like that. You have way more agency than you think.

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