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Ask HN: Educating a child who is severely behind

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Re: Ask HN: Educating a child who is severely behind

#31
post #21

Earlier quoted context omitted.

The reality is that you do not have the knowledge skills and abilities to determine the developmental status of the child. Nor do you have the expertise to formulate a developmental plan should their be one. You're just a guy with a girl and a rugrat. A child is not a lawnmower engine. Children don't get damaged and repaired. They grow up, each as their own snowflake. Everyone doesn't get frustrated to the point of p…

No but social services do have the knowledge, skills and abilities and they have determined he has the mindset of a 1 year old. This is why I know he is severely behind, not just because I've decided he is severely behind. I'm not saying he is like a lawnmower engine and I didn't mean it this way. I'm trying to find better ways on how to educate him and help him grow. This doesn't mean I'm doing so at the expense of…

First, accept my apology for not asking more questions before jumping to a negative conclusion. Internet habits die hard.

I went through architecture studios with a quadriplegic. Tim crashed a motorcycle while studying fine art as an undergrad. He could move his head. Holding a pencil in his teeth, he could sketch more quickly and beautifully than most of the class. By kindness, there would be a sketchbook within his reach.

My advice as a parent is that feelings of frustration and unfulfilled expectations can form a barrier to being in and savoring your moments with him. Life is not about what someone can't do, but what they can.

Re: Ask HN: Educating a child who is severely behind

#32
My stepfather did this, unconditionally taking on two young boys that were not his own. Give him your time and your love. He'll learn greedily if you don't push him. All children want to please their parents. He needs to make mistakes and let him take risks. Praise him for trying, rather than scolding him for failing. Every child is different.

The one thing I've learned from parenting is that you have to 'pivot' constantly. You have to adapt to child's brain that is constantly developing and adapting itself.

Enjoy yourself, leave your work at work. Young children are incredibly adept at picking up tiny signals. They know if you are tired and don't want to play with them or read them a story before bedtime. They will punish you for it!

Re: Ask HN: Educating a child who is severely behind

#33
post #21

Earlier quoted context omitted.

No but social services do have the knowledge, skills and abilities and they have determined he has the mindset of a 1 year old. This is why I know he is severely behind, not just because I've decided he is severely behind. I'm not saying he is like a lawnmower engine and I didn't mean it this way. I'm trying to find better ways on how to educate him and help him grow. This doesn't mean I'm doing so at the expense of…

First, accept my apology for not asking more questions before jumping to a negative conclusion. Internet habits die hard. I went through architecture studios with a quadriplegic. Tim crashed a motorcycle while studying fine art as an undergrad. He could move his head. Holding a pencil in his teeth, he could sketch more quickly and beautifully than most of the class. By kindness, there would be a sketchbook within his…

It's no problem at all, I should have been specific about how I've come to know such details about his development :) I'm not an expert and this is new water for me.

Thanks for your advice and taking the time to help me out, it's much appreciated. I do understand your point and looking at things I can see how my focus and frustrations may have gotten in the way.

Re: Ask HN: Educating a child who is severely behind

#34
After the fall of Nicolae Ceaușescu in Romania, it was discovered that there were terrifying orphanages full of kids who had had almost no human contact for years and were in bad shape as a result. My aunt volunteered to go to Romania to help save as many of these kids as possible.

The relevant news for you is that kids who were only three at the time rescuers arrived almost all recovered without lasting harm. The thing that saved them was LOTS of daily human interaction.

Talk to that boy as much as you can. Hold him, sing to him (singing skill is optional), play with his hands, play "piggies" with his toes, work on naming parts of his face, play "head, shoulders, knees, and toes," play with blocks, talk about colors, have one of you make a funny face and the other one has to copy it then switch roles, and so on. (Don't read too much into it if he's really bad at some of these games. My sons had no developmental problems, and yet I could not BELIEVE how badly they did on some simple mental games: "See this green card, Buddy? It's green, isn't it?" "Yes." "What color is it?" "I don't know, Dada." "This color is green, okay?" "Okay." "So, what color is this GREEN card?" "I don't know, Dada." Yes, believe it or not, this is totally normal.)

Be a little careful not to overstimulate him with too much noise, wild motion, etc., because that can be hard for him to process until he's older, but lots of calm, happy, silly, giggly talking and playing should (slowly) bring him back to the path he would have been on without the early lack of attention.

Also, as others have suggested, do involve doctors in this to the extent you can. There might be more to the story than lack of attention, and "many eyes" are better for debugging problems early, right?

Re: Ask HN: Educating a child who is severely behind

#35
post #22
post #10

Earlier quoted context omitted.

I fully intend on being there for him for the rest of his life and me and his mother are deeply in love. We are hoping to get married some time next year :)

I thought that once; then she and I broke up and I haven't seen the kid since (sadly). So it goes. I don't, honestly, think that possible outcome is something worth dewelling on; once you start feeling like a parent, the whole 'apply love' thing is entirely unavoidable. But please do remember that "I fully intend" may at some point make contact with a reality hostile to your intentions, and at least consider the poss…

She is my childhood sweetheart and we have been through an awful lot together. She has stood by me in times when I didn't even care or stand by myself, when I felt disgusting and unloved (I suffer from a mood disorder which produced psychotic symptoms at its peak). She was there when even some family refused to be there.

To be poetic, my love for her transcends that of anything I'be ever known or witnessed. It seems we are stronger than my parents and her parents and they have been together for around 20 - 25 years each. We are 100% dedicated to each other and the thought if not being with her makes me physically sick.

Re: Ask HN: Educating a child who is severely behind

#36
Talk to him a lot and ask questions with follow up why, where, when, etc. Also the more you expose him to, the more he learns, take him yo see a real train, a real truck, etc and explain what it is. Most importantly show love and give them fun. I love playing sports with my boys or just wrestling around. Every sat and sun we go for a 1 - 2 hr trip on a red wagon in the park, they throw sticks, rocks, etc. KISS

Re: Ask HN: Educating a child who is severely behind

#38
Relax about the potty training. Frequent reminders, sticker chart, and bigger milestone rewards are all you need. Kids are on their on timeline with this, and any anxiety you have around it won't help. Regarding speech, repeat back clearly what the boy says to you. A speech therapist helps. It is a long, gradual process. Facilitated play (i.e., guided by adult) with peers is huge.

Re: Ask HN: Educating a child who is severely behind

#39
post #7

One word: love

Sorry to sound cynical, but toddlers and pre-schoolers are easily the most confounding, frustrating creatures on the planet. They are experts at exposing your dark corners and jangling your nerves. You will not be feeling or thinking 'love' at that point. If you are looking for single word remedies, then 'tolerance', or 'patience' are closer to the mark.

Re: Ask HN: Educating a child who is severely behind

#40

I see you're in the UK. I would suggest going to the child's GP, raise your concerns about speech and language delay and ask for a referral to speech and language therapy. If you have other concerns, raise them with your GP as well and you may get other referrals. You'll have to have the child's guardian involved obviously, and depending on procedures, there may be a visit from a social worker to get a sense of the c…

"Your job is to get the little guy the services he needs and be prepared to be stubborn and insistent that he gets them."

My personal experience is the entire medical community seems to have an avoidance issue WRT food allergies. Oh who knows some kids are just like that. Thats just how some kids are, why don't you wait and see if he catches up. I'm sure that's not the case. Well some kids just develop at a different rate mentally and physically than others. They'd rather MRI my son for suspected stomach cancer than test for allergy antibodies (or was it just xray? It was awhile ago). Seriously. They had us all in suspected cancer mode before they broke down and tried allergy testing.

Eventually, after much arguing, the pediatrician ordered a blood test, referred him to a gastroenterologist, who did some crazy stomach wall tissue biopsy after draining about a quart for innumerable blood tests, and finally, they're like "yeah, he's severely allergic to gluten per both biopsy and blood tests, so stop eating that". And casein and soy.

I found it remarkable how hard you have to push to get tests done for a diagnosis like that. I believe in for profit industry, follow the money. The worst medical scenario for the patient or the parents is probably cancer or something awful like that. The worst medical scenario for the doctors and adminstrators is an illness that is treated by a "simple" diet change and requires no expensive pills, no expensive followups, no expensive surgery, diagnosis wasn't too expensive other than the tissue biopsy work... that's why you have to fight fight fight to even get tested because that diagnosis is a nightmare scenario for the docs.

The point of all this is his development rate skyrocketed once we got him proper food, and he's pretty near caught up to his peers, which is cool. So you'll have to fight extremely hard to test for food allergies, but it might (or might not) pay off. (edited to add there may be other financial nightmare scenarios for doctors which are hard to get tested. Hmm, how about vision testing? Can't learn to read if you can't see the page, but if you can avoid getting the kid glasses you can milk that cow for money for a long time WRT special needs reading classes and such. My daughter had that problem.)

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