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i'm curious, what's the worst-case scenario if one were to put their whole DNA data exposed publicly? would a future civilization re-make your image? or are there societal benefits?
Clearly, one risk is that your DNA, or that of a close relative could be linked to a crime, even if you weren't directly involved.
i'm curious, what's the worst-case scenario if one were to put their whole DNA data exposed publicly? would a future civilization re-make your image? or are there societal benefits?
Earlier quoted context omitted.
> you will not get insured (or have high rates) because you have {some genetic condition}.. s/insured/hired Wait until we have DNA detectors wired up to collect the DNA we exhale and rapid sequencers that handle what might be below the limit of detection today. Maybe that's fifty years down the road, but it's coming. Gattaca was a prescient premonition, it was just a hundred years ahead of its time.
Yes, I can imagine those dystopias - my point was that I don't imagine my choice to try 23andMe in 2019 is what dooms me - while others are saved by not making that choice.
1. Why take the chance?
2. Your DNA being out in the wild also impacts the privacy of your relatives (including those you might not know, and those who don't exist yet (a child, a nephew, a niece for instance)), so if not for you, do it for them.
It won't be a guarantee, but it maximizes the chances.
I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.
If these companies have the legal clearance to use DNA data, why would they be satisfied only having secondhand access to that data for a relatively small subset of the population? They'll obviously want that data for everyone.
I started doing a relevant project https://github.com/barisozmen/securegenomics . Because I believe 23andMe event will result in people to be more wary of sharing their genetic data, and we need ways to make people able to contribute in genetic research without exposing their data.
How are scientists able to work on encrypted genomes?
I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.
The analogy I have used in the past is this fear is like thinking that health insurance companies were more likely to buy the old Marlboro Miles database rather than just making detailing your smoking history a required part of the application process. If these companies have the legal clearance to use DNA data, why would they be satisfied only having secondhand access to that data for a relatively small subset of th…
Earlier quoted context omitted.
Yes, I can imagine those dystopias - my point was that I don't imagine my choice to try 23andMe in 2019 is what dooms me - while others are saved by not making that choice.
I kind of understand your point, now my view would be that it should not be a reason not to delete the data from them, in case it actually helps. Otherwise: 1. Why take the chance? 2. Your DNA being out in the wild also impacts the privacy of your relatives (including those you might not know, and those who don't exist yet (a child, a nephew, a niece for instance)), so if not for you, do it for them. It won't be a gu…
I do think that the health stuff from 23andMe is only marginally better than astrology, that the ethnicity estimates are inferior to what most people can get from good old fashioned genealogy, but that the matching may be useful, if you value knowing who you're related to a lot.
I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.
I put a fake name in when I signed up. Good luck blue cross.
I started doing a relevant project https://github.com/barisozmen/securegenomics . Because I believe 23andMe event will result in people to be more wary of sharing their genetic data, and we need ways to make people able to contribute in genetic research without exposing their data.
In what you show, people encrypt their genome before uploading data on some server, and then scientists can work on the data. How are scientists able to work on encrypted genomes?
I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.
> you will not get insured (or have high rates) because you have {some genetic condition}.. s/insured/hired Wait until we have DNA detectors wired up to collect the DNA we exhale and rapid sequencers that handle what might be below the limit of detection today. Maybe that's fifty years down the road, but it's coming. Gattaca was a prescient premonition, it was just a hundred years ahead of its time.
While some DNA characteristics can be statistically linked with some costly health conditions, the connection to "being a good hire" seems totally imaginary to me, has always been and will always be.
For what it's worth, public posts and comments on internet are probably a much better indicator of whether someone is going to be an obedient employee, and this dystopia is technically doable right now, and certainly many are working on it already.