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23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

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Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

#11
I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.).

The obvious solution is with legislation for transparency and better health care system.

Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

#12
post #11

I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.

> you will not get insured (or have high rates) because you have {some genetic condition}..

s/insured/hired

Wait until we have DNA detectors wired up to collect the DNA we exhale and rapid sequencers that handle what might be below the limit of detection today.

Maybe that's fifty years down the road, but it's coming.

Gattaca was a prescient premonition, it was just a hundred years ahead of its time.

Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

#13
I started doing a relevant project https://github.com/barisozmen/securegenomics . Because I believe 23andMe event will result in people to be more wary of sharing their genetic data, and we need ways to make people able to contribute in genetic research without exposing their data.

Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

#16
post #12
post #11

I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.

> you will not get insured (or have high rates) because you have {some genetic condition}.. s/insured/hired Wait until we have DNA detectors wired up to collect the DNA we exhale and rapid sequencers that handle what might be below the limit of detection today. Maybe that's fifty years down the road, but it's coming. Gattaca was a prescient premonition, it was just a hundred years ahead of its time.

Yes, I can imagine those dystopias - my point was that I don't imagine my choice to try 23andMe in 2019 is what dooms me - while others are saved by not making that choice.

Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

#18
post #11

I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.

[deleted]

Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

#19
post #12
post #11

I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.

> you will not get insured (or have high rates) because you have {some genetic condition}.. s/insured/hired Wait until we have DNA detectors wired up to collect the DNA we exhale and rapid sequencers that handle what might be below the limit of detection today. Maybe that's fifty years down the road, but it's coming. Gattaca was a prescient premonition, it was just a hundred years ahead of its time.

What makes you believe this is coming? What evidence points to this inevitability?

Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways

#20
post #11

I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.

I put a fake name in when I signed up.

Good luck blue cross.

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