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Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

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21–30 of 32 posts

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#21

I didn't know Long COVID could cause multiple organ failure and death.

Interesting how a crowd of people who rest their faith on "settled science" and "solid consensus" and "proven clinical trials" and "peer-reviewed research" start to pass rumors, exaggerations, and fake news about something that isn't even an ICD-10.

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#22

Earlier quoted context omitted.

It was an easy google search ("covid multiple organ failure") with a bunch of responses, including: https://medicine.wustl.edu/news/repeat-covid-19-infections-i... https://onlinelibrary.wiley.com/doi/10.1002/jmv.27627 https://bmcinfectdis.biomedcentral.com/articles/10.1186/s128...

All of your sources are about acute or active covid infection. As a physician who worked in an ECMO center during the pandemic I am well aware of severe Covid-19 infections and as I stated in my post I tried searching, specifically looking on: UpToDate, Medscape and Google Scholar. I am asking about "long-covid", also called "post covid condition". From Brandon's own description he had what would be classified as "mi…

[deleted]

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#23

Earlier quoted context omitted.

It was an easy google search ("covid multiple organ failure") with a bunch of responses, including: https://medicine.wustl.edu/news/repeat-covid-19-infections-i... https://onlinelibrary.wiley.com/doi/10.1002/jmv.27627 https://bmcinfectdis.biomedcentral.com/articles/10.1186/s128...

All of your sources are about acute or active covid infection. As a physician who worked in an ECMO center during the pandemic I am well aware of severe Covid-19 infections and as I stated in my post I tried searching, specifically looking on: UpToDate, Medscape and Google Scholar. I am asking about "long-covid", also called "post covid condition". From Brandon's own description he had what would be classified as "mi…

The first link was about repeat infections. It seems possible that he could have had multiple infections and then that caused MoD?

> As a physician

Oh, you didn't mention that in the first post... I'm sure you know better than I.

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#24
post #7

With all respect to Brandon Gilles, I have never heard of "dying from long covid" before and am trying to understand what this means. There is a huge discrepancy and a lot of detail missing between "developed Long-COVID symptoms such as brain fog, fatigue, muscle pain and shortness of breath" and "he suffered from multiple organ failures". I tried searching but have not found anything (yes I know some death certifica…

While long Covid is an encompassing term, there is symptom overlap between long COVID and ME/CFS. Around 50% of people with long COVID meet the criteria for a diagnosis of ME/CFS. https://www.nature.com/articles/s41577-023-00904-7 https://www.nature.com/articles/s41579-022-00846-2 https://www.frontiersin.org/articles/10.3389/fneur.2023.1090... Mild ME/CFS is usually associated with around 50% reduction in daily funct…

Brandon describes slowly improving over ~1.5 years up to April 2023 when he was walking ~0.9 miles/day which so far is concordant with ME/CFS but where it gets discordant is that he progressed to multi-organ failure and death within 3 months.

I'm not questioning whether he suffered from ME/CFS but mortality is not reported in the Stanford data or what I've heard described of the syndrome.

It's hard to wrap my head around ME/CFS as he has described it being causative of organ failure. Did something happen? Is this a consequence of the therapeutic he tried?

Organ failure in a 37 year old without a history of end-organ dysfunction or acutely inciting event like a toxicity is incredibly unusual.

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#25

Earlier quoted context omitted.

That site is bizarre. The text was made unselectable for some reason. It also appears to be a rehash of some other random site. This is a bit better: https://twitter.com/BrandonGilles/status/1686937347819233280

Interesting, it affirms his timeline in the Google doc that he was improving up to April 2023. I can't rationalize how any of the symptoms he described, and having undergone many medical tests which were not described as indicating any end-organ dysfunction, would result in to organ failure which I've never heard of happening "out of the blue". I fully respect his family's right to privacy and of course don't expect…

Every other news article from reasonable sources that I could find indicate Long COVID exacerbates underlying conditions (cancer, respiratory diseases, heart disease), or triggers type II diabetes (something to do with the virus damaging the pancreas to tip conditions over some line).

The only place I can find claims for organ failure are on conspiracy forums. I can't put much credence in the idea, yet. (But I'm just a software geek, not a physician.)

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#26

Earlier quoted context omitted.

All of your sources are about acute or active covid infection. As a physician who worked in an ECMO center during the pandemic I am well aware of severe Covid-19 infections and as I stated in my post I tried searching, specifically looking on: UpToDate, Medscape and Google Scholar. I am asking about "long-covid", also called "post covid condition". From Brandon's own description he had what would be classified as "mi…

The first link was about repeat infections. It seems possible that he could have had multiple infections and then that caused MoD? > As a physician Oh, you didn't mention that in the first post... I'm sure you know better than I.

> The first link was about repeat infections. It seems possible that he could have had multiple infections and then that caused MoD?

His timeline on the Google document ends in April 2023 when he reported he was slowly improving. It's certainly possible another infection resulted in multi-organ failure and unfortunately his death but that would be "acute covid" and not "long-covid".

> Oh, you didn't mention that in the first post... I'm sure you know better than I.

I don't see long-covid in my practice and hence why I'm asking. I know some of the literature around it and tried searching without success, I'm wondering if someone who knows more can fill in some of the blanks here.

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#27

Earlier quoted context omitted.

That document is incredibly long and I didn’t find any mention of vaccination in the sections I skimmed. What is the timeline you’re referring to?

From the Google doc, he had COVID in 2020 and made a quick and full recovery. On May 6th 2021 he had his second vaccination and, almost immediately, all of his bizarre health issues began. Search "COVID-19 January 11th 2020" to jump to this section.

This gets ignored alot in the discussion about long covid.

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#28

Earlier quoted context omitted.

It was an easy google search ("covid multiple organ failure") with a bunch of responses, including: https://medicine.wustl.edu/news/repeat-covid-19-infections-i... https://onlinelibrary.wiley.com/doi/10.1002/jmv.27627 https://bmcinfectdis.biomedcentral.com/articles/10.1186/s128...

All of your sources are about acute or active covid infection. As a physician who worked in an ECMO center during the pandemic I am well aware of severe Covid-19 infections and as I stated in my post I tried searching, specifically looking on: UpToDate, Medscape and Google Scholar. I am asking about "long-covid", also called "post covid condition". From Brandon's own description he had what would be classified as "mi…

As someome going through something similar to Brandon but a bit less severe let me plant this thought in your process:

The initial covid infection can be a "death blow" for some people, especially if genetically at risk for long-covid (as proven in recent studies)

Just like Brandon I had a near fatal covid infection in 2020, I was on 24/7 oxygen for two months and never fully recovered.

I've stabilized but it is clear I am on a slow but steady decline over the past few years and if this slope continues, I could end up like Brandon.

So if I die in a couple years from Long-Covid, are you going to argue it's not long-covid that killed me or the original covid infection?

Because the damage persists and is getting worse even without active infection.

There are several papers on premature aging (aka radical aging) from covid->long-covid, the ultimate final outcome of that is organ failure and death many years, decades, before one's time.

Look at his twitter and you'll see some of his photos, he was not well and that's three years later after infection.

https://twitter.com/BrandonGilles/with_replies

Covid basically finds every genetic and environmental triggered weakness in the body and doesn't relent in some people. That's long-covid, at least one kind.

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#29
post #7

With all respect to Brandon Gilles, I have never heard of "dying from long covid" before and am trying to understand what this means. There is a huge discrepancy and a lot of detail missing between "developed Long-COVID symptoms such as brain fog, fatigue, muscle pain and shortness of breath" and "he suffered from multiple organ failures". I tried searching but have not found anything (yes I know some death certifica…

That site is bizarre. The text was made unselectable for some reason. It also appears to be a rehash of some other random site. This is a bit better: https://twitter.com/BrandonGilles/status/1686937347819233280

I am hoping either HN mods replace my link or someone writes a proper post by human hand.

I kinda regret not taking a deeper look at that website first but at least the news is out and people are talking about it and remembering him.

I wish there was a way to archive all his posts but of course now that's even more impossible given twitter's degradation

https://twitter.com/BrandonGilles/with_replies

Re: Brandon Gilles Dies from Long-Covid, Electrical Engineer and Spatial AI Pioneer

#30
post #2

Found this old interview with him, it's sad to see someone with so much energy taken down. https://www.youtube.com/watch?v=-DG2LOj8Upw His long-covid google doc survives him, which I guess is what happens these days https://docs.google.com/document/d/1X3dNPgEuQ2j8x7w8OqLEDP7l... (PDF) https://docs.google.com/document/export?format=pdf&id=1X3dNP...

I wonder how much of what he was taking added to his distressed state. There's a ton of supplements listed there. I understand wanting to get better as I'm also dealing with long covid symptoms (histamine issues, inflammation, etc.) and understand the extreme internal discordance it can cause - I just want to get back to normal! But it's necessary to be cautious with what you throw at yourself, I've personally experienced several negative reactions (sometimes catching them quite late) from supplements I have experimented with in efforts to get well.
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