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U.S. autism data project sparks uproar over ethics, privacy and intent

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151–160 of 377 posts

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#151

It’s interesting to muse about the larger picture here. What is it that makes autism so dangerous? To me it looks like part of an almost spiritual war against empathy/compassion by traumatized individuals trying to fight their own Jungian Shadow.

an interesting book related to this discussion is "Speed of Dark" by Elisabeth Moon. It tells the story of an autistic person and their struggles while faced with the possibility of a "cure"

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#152

One thing this will do is disincentivize high functioning autists from identifying themselves as autists, which is a very good thing IMO. Just look at this channel https://www.youtube.com/@NationalAutisticSoc/videos . There is a lot of survivor-ship bias on this channel towards high functioning autists who can talk in front of a camera. Just to give an idea to those not familiar with the difference between high funct…

Why do you consider that a good thing?

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Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#153

If they come out with a list of twenty adjustments they're going to make based on the study (things like but not necessary including: banning certain fire retardents, attempt to reduce break/tire pollution, adjusting the timing of (but not eliminating) the vaccine schedule, banning specific food additives, reducing/modifying specific pesticide use) I will believe this is a legitimate and well intentioned effort from…

Some of those proposed adjustments are already in place in EU like the dyes. Regardless of possible autism link, it’s a good thing. But some are blinded by politics and can’t see that two things can be true. Trump Admin does bad things and good things

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#154

It’s interesting to muse about the larger picture here. What is it that makes autism so dangerous? To me it looks like part of an almost spiritual war against empathy/compassion by traumatized individuals trying to fight their own Jungian Shadow.

Autists (and neurodivergent people in general) tend to think more freely and follow the crowd less than average.

I’d say they’re dangerous in the same way as librarians are dangerous.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#156

If they come out with a list of twenty adjustments they're going to make based on the study (things like but not necessary including: banning certain fire retardents, attempt to reduce break/tire pollution, adjusting the timing of (but not eliminating) the vaccine schedule, banning specific food additives, reducing/modifying specific pesticide use) I will believe this is a legitimate and well intentioned effort from…

I think 1 in 36 kids having autism is similar to how breast cancer diagnosis shot up when we had better imaging ability or when we figured out prostate cancer was actually fairly common in older men but not usually something worth doing anything about. When we merged in aspergers and autism together that obviously makes autism rates higher and as research continues on diagnosing autism it makes sense rates increase f…

I sincerely hope this is the explanation and I will be frustrated if this information is not presented as a percentage of the increase as part of the report. If it fully explains the increase, even better.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#157

Earlier quoted context omitted.

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More often than not, it's the other way around. Being born in the bourgeoisie, like Trump and Musk, grooms you into a certain way of thinking. You're told your whole life you are exceptional, above everyone else. No wonder they turn out like that. Read up on both of these guys' educations if you're interested in this.

Both Trump and Musk may have been born into “bourgeoisie“, but the connecting and relevant factor here is a highly traumatizing childhood with highly traumatized parents.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#158

If they come out with a list of twenty adjustments they're going to make based on the study (things like but not necessary including: banning certain fire retardents, attempt to reduce break/tire pollution, adjusting the timing of (but not eliminating) the vaccine schedule, banning specific food additives, reducing/modifying specific pesticide use) I will believe this is a legitimate and well intentioned effort from…

I think 1 in 36 kids having autism is similar to how breast cancer diagnosis shot up when we had better imaging ability or when we figured out prostate cancer was actually fairly common in older men but not usually something worth doing anything about. When we merged in aspergers and autism together that obviously makes autism rates higher and as research continues on diagnosing autism it makes sense rates increase f…

This is a very valid point, but one RFK has mention he controls for in the past

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#159

It’s interesting to muse about the larger picture here. What is it that makes autism so dangerous? To me it looks like part of an almost spiritual war against empathy/compassion by traumatized individuals trying to fight their own Jungian Shadow.

>What is it that makes autism so dangerous? That the parents of severe cases eventually pass away and unless they figure out to take the kid with them, he is condemned at best to a life in mental health institutions - and usually they make One Flew Upon Cuckoo's Nest look like Teletubbies. Add to that more and more people are single kids and usually born out of geriatric pregnancy (which also increases the chances of…

Surely you can see that this isn't going to be about preventing autism?

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#160

Earlier quoted context omitted.

Context: Musk: Yeah, [Gad Saad is] awesome, and he talks about, you know, basically suicidal empathy. Like, there's so much empathy that you actually suicide yourself. So, we've got civilizational suicidal empathy going on. And it's like, I believe in empathy, like, I think you should care about other people, but you need to have empathy for, for civilization as a whole, and not commit to a civilizational suicide. Ro…

To me, “suicidal empathy“ (if that exists) is a lack of empathy (for self) — not “too much of it“. It’s not zero sum. You could go as far as to say that empathy only occurs in moments where there is no me or other, just an “us“. Which includes me. His statements and behavior make me question whether he really experiences empathy or whether he lost that too early in his life to consciously remember.

>To me, “suicidal empathy“ (if that exists) is a lack of empathy (for self) — not “too much of it“. It’s not zero sum.

"Empathy" in the form of thoughts and prayers might not be zero sum, but that's probably not the "empathy" that Musk is talking about. He's probably about government spending on refugees or foreign aid, which is zero sum.

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