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U.S. autism data project sparks uproar over ethics, privacy and intent

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Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#71

It’s interesting to muse about the larger picture here. What is it that makes autism so dangerous? To me it looks like part of an almost spiritual war against empathy/compassion by traumatized individuals trying to fight their own Jungian Shadow.

"Do not commit the sin of empathy"

“The fundamental weakness of Western civilization is empathy” — Elon on Joe Rogan

It’s a core tenant of this Curtis Yarvin / neo reactionary ideology that seems to be shared by a lot of VCs

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#72

Earlier quoted context omitted.

What would you suggest Americans actually do? They voted this in knowing this would happen. It’s one thing to shout into a void about some vague disagreement, but it’s entirely different to actually take some form of real action. What should that action comprise?

1. Join up on your local 50501 protest, next one is on May 1: https://www.fiftyfifty.one/events 2. Continue speaking loudly about the various criminal acts of this administration and continue reinforcing the importance of not tuning it out 3. Find promising candidates and fund their run in 2026 to flip the house and strangle the administration with impeachments over their long list of violations of the Constitution 4…

#1: Not available in New York - if you're in the wrong red county, trying to apply for a semi-automatic rifle permit means having to argue with the GOP about your "good moral character" and have your permit get denied. This also assumes your county will process your application in a timely manner - mine's a nearly 11-12 month wait to process. Even hardcore red areas are becoming a nightmare to gain access to 2A rights :)

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#73
post #31

Earlier quoted context omitted.

Calling it a "guess" seems very generous at this point, saying it is a "lie" is more accurate I think.

Never attribute to malice what cannot be adequately explained by stupidity. And he is one stupid fuck.

I don't know much about RFK Jr, I hope he is just stupid. But if you dig into the origins of the vaccine situation, much of it was driven simply by a desire to make money using vaccine manufacturers, and the "proof" was retrofitted to the goal with junk science that was essentially abusing disabled children. (Horribly invasive medical procedures with no medical necessity).

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#74
If they come out with a list of twenty adjustments they're going to make based on the study (things like but not necessary including: banning certain fire retardents, attempt to reduce break/tire pollution, adjusting the timing of (but not eliminating) the vaccine schedule, banning specific food additives, reducing/modifying specific pesticide use) I will believe this is a legitimate and well intentioned effort from someone who is orientationally correct but frequently epistemologically incorrect. If it's just "eliminate all vaccines" then I'll be very disappointed.

The third reich response a lot of other commenters are having is interesting. I'm no expert and have not investigated autism, but if the messaging in response to RFK JR is "yeah he says 1 in 36 kids have autism now but actually that's fine and how it always has been and actually autism is good and he's actually Eichmann" you're going to drive a lot of people right to every unsubstantiated thing he says.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#75

“Health and Human Services Secretary Robert F. Kennedy Jr., the nation’s top health official, repeatedly said before taking office that vaccines cause autism, despite overwhelming scientific evidence that they do not. He has declined to disavow his statements and has continued to promote a possible link.” Having worked directly with autism researchers, I can confidently tell you that RFK is making a wild guess not ba…

[flagged]

Why guess? Isn’t that basically what RFK is accused of doing?

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#76

Earlier quoted context omitted.

> The criteria for diagnosing ASD today are vastly different Not that much. The difference between now and 50 years ago is that a) we don't just throw them into asylums, b) we actually have accessibility of getting diagnosed, c) employment opportunities suitable for many people with mental disabilities (such as factory line assembly) have gone down the drain.

None of those points are related to diagnostic criteria.

No, they are related to the pool of people being diagnosed.

You're only getting a diagnosis if a) you have access to a psychiatrist and b) you are running into enough issues in your daily life to warrant having it looked into.

Life has gotten a lot more complex over the past few decades, so people run into issues more often - and earlier in life. Someone who would've just been "a bit of a weird guy" 50 years ago is getting an autism diagnosis today, simply because these days they run into issues as a child and are being put in front of a psychiatrist.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#77

[flagged]

I'll quote Kennedy's dehumanizing comments for context, that people can compare the two styles of rhetoric: - "Kennedy said many autistic children were “fully functional” and “regressed … into autism when they were 2 years old. And these are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a to…

What percentage of the millions of twiteraty proudly putting autism in their bio would you guess are "non-toilet trained"?

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#78
One thing this will do is disincentivize high functioning autists from identifying themselves as autists, which is a very good thing IMO. Just look at this channel https://www.youtube.com/@NationalAutisticSoc/videos. There is a lot of survivor-ship bias on this channel towards high functioning autists who can talk in front of a camera.

Just to give an idea to those not familiar with the difference between high functioning and low functioning autism, high functioning autists face problems like not being able to communicate properly some of the time, and low functioning autists face problems like not even being able to tell their caretaker which part of their body is in pain, or which kid in the group punched them.

Edit: The National Autistic Society is UK based but the situation is not that different in other countries.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#79

Earlier quoted context omitted.

"Do not commit the sin of empathy"

“The fundamental weakness of Western civilization is empathy” — Elon on Joe Rogan It’s a core tenant of this Curtis Yarvin / neo reactionary ideology that seems to be shared by a lot of VCs

And then he cries on TV because people are not buying his cars.

Can't make that crap up...

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#80
post #72

Earlier quoted context omitted.

1. Join up on your local 50501 protest, next one is on May 1: https://www.fiftyfifty.one/events 2. Continue speaking loudly about the various criminal acts of this administration and continue reinforcing the importance of not tuning it out 3. Find promising candidates and fund their run in 2026 to flip the house and strangle the administration with impeachments over their long list of violations of the Constitution 4…

#1: Not available in New York - if you're in the wrong red county, trying to apply for a semi-automatic rifle permit means having to argue with the GOP about your "good moral character" and have your permit get denied. This also assumes your county will process your application in a timely manner - mine's a nearly 11-12 month wait to process. Even hardcore red areas are becoming a nightmare to gain access to 2A right…

All the more reason to start today!

And yes the more general point is obviously gun ownership laws are highly localized. You should look up the requirements in your area and navigate them to acquire your very own check and balance, given that Congress has abdicated its role as such.

It is very dangerous that so much of the right wing thinks that liberals are afraid of (and therefore do not own) firearms. The meme needs to be that liberals are just as armed as anyone else and are a credible backstop on tyranny.

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