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U.S. autism data project sparks uproar over ethics, privacy and intent

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Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#131

Post by thrance »

cruzcampo wrote: post #85
an0malous wrote: post #71

Earlier quoted context omitted.

“The fundamental weakness of Western civilization is empathy” — Elon on Joe Rogan It’s a core tenant of this Curtis Yarvin / neo reactionary ideology that seems to be shared by a lot of VCs

[flagged]

More often than not, it's the other way around. Being born in the bourgeoisie, like Trump and Musk, grooms you into a certain way of thinking. You're told your whole life you are exceptional, above everyone else. No wonder they turn out like that. Read up on both of these guys' educations if you're interested in this.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#132

Post by gruez »

ChrisMarshallNY wrote: post #115
timoth3y wrote: post #91

Earlier quoted context omitted.

“I told you once that I was searching for the nature of evil. I think I’ve come close to defining it: a lack of empathy. It’s the one characteristic that connects all the defendants. A genuine incapacity to feel with their fellow man. Evil, I think, is the absence of empathy.” ― G. M. Gilbert, American psychologist who worked on the Nuremberg trials

Didn't someone recently mention that "The fundamental weakness of Western civilization is empathy"? Sounds familiar...

That quote was massively taken out of context. His argument was that the west has too much empathy, not that empathy is bad, period. He even specifically prefaced that with saying that empathy is a good thing.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#133

Post by brightball »

goku12 wrote: post #87
ohgr wrote: post #15

Aktion T4 next? This is a dark dark road. I suspect the US will become like Germany in the next few decades where the paranoia about handing any data over is justifiably high. I hope this burns the unethical side of the tech industry to the ground. It deserves it.

What makes you think this isn't it? I know that the primary reason for his fixation with autism is to attack vaccines. But have you listened to him talk about autistic people? It's pretty clear that he considers autistic individuals as unproductive (the tax remark) burden who destroys families. It's very clear that he considers them as subhuman. Sounds very close to 'life unworthy of life' argument made by the Nazis.…

Hasn’t RFK Jr spent his entire life trying to find the cause and cure for autism?

My life is pretty close to this community and I can verify that all of his comments are 100% accurate.

Parents who insist on traveling separately as a safeguard to ensure one of them is able to care for their adult child in the event of an accident, living with the knowledge that both of them passing away will mean the child moves to a group home most likely.

Others who cannot handle the demands as caregiver and simply get divorced over it. Some who call CPS because they can’t handle the danger that their child poses to their other children. Some who are flight risks that will literally just take off running (usually right to bodies of water) given the chance, putting parents completely on guard.

These are just a few of the issues before getting into “the autism diet” and chronic digestive issues. The fact that somehow a gluten free, casein free diet usually results in significant behavioral improvements leading many people to suspect that what we’re eating environmentally is contributing to the problem.

RFK Jr is giving a voice to parents who are scared, confused and fully aware that nobody is listening to them. If you had any idea the number of parents who are afraid to tell you when the symptoms started because they know you don’t want to believe them, it would shock you.

If you want to know what most people in the community believe is the root cause, it’s aluminum.

I realize that all things associated Trump are destined to get this crazy narrative but RFK Jr has been fighting for these families for at least 20 years. His desire to help people is genuine and not something in question.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#134

Post by A4ET8a8uTh0_v2 »

K0nserv wrote: post #82
goku12 wrote: post #69

Earlier quoted context omitted.

No amount of crypto is going to protect you from this mess. Technical safeguards work as long as it is backed by the law and the constitution. But when they are suppressed, the people in power will just find someone smarter than you and bribe, gaslight, bully, blackmail or beat them into helping them compromise such safeguards. And not to mention the fact that they love playing hideous psyops games. This is a social…

> No amount of crypto is going to protect you from this mess. Technical safeguards work as long as it is backed by the law and the constitution. But when they are suppressed, the people in power will just find someone smarter than you and bribe, gaslight, bully, blackmail or beat them into helping them compromise such safeguards. I don't agree. Having unbreakable crypto is the absence of a tool. My point is that a de…

True, while not panacea, there is a reason why 'going dark' was perceived as an issue.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#135

Post by thoroughburro »

coldtea wrote: post #128
timoth3y wrote: post #91

Earlier quoted context omitted.

“I told you once that I was searching for the nature of evil. I think I’ve come close to defining it: a lack of empathy. It’s the one characteristic that connects all the defendants. A genuine incapacity to feel with their fellow man. Evil, I think, is the absence of empathy.” ― G. M. Gilbert, American psychologist who worked on the Nuremberg trials

He said that because he couldn't empathize with those defendants...

This is the paradox of tolerance and it’s pretty cringe.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#136

Post by thrance »

austin-cheney wrote: post #47
cruzcampo wrote: post #44

[flagged]

What would you suggest Americans actually do? They voted this in knowing this would happen. It’s one thing to shout into a void about some vague disagreement, but it’s entirely different to actually take some form of real action. What should that action comprise?

This country needs to crumble on itself, 30% of Americans are still behind Trump, whatever he does. This will not be fixed easily.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#137

Post by A4ET8a8uTh0_v2 »

ohgr wrote: post #30
mschuster91 wrote: post #24

Earlier quoted context omitted.

> Google is certified That doesn't matter _at all_ when the government comes knocking at Google's door - in the best case, they have a subpoena that can at least be appealed afterwards, in the worst case it's DOGE teens backed by a bunch of heavily armed guys in camouflage.

Indeed. No data is safe or secure in such environments. This has become an issue big enough that the US company I work for is actually removing data from US cloud providers to make it harder to get at. The European divisions have started data sovereignty projects because it's now a principal risk. I'm out of the cloud as well.

Ha. My company was advising having a burner phone when traveling to US in a company-wide meeting. There has been something of a shift.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#139

Post by michaelt »

npteljes wrote: post #95
0x1ceb00da wrote: post #78

One thing this will do is disincentivize high functioning autists from identifying themselves as autists, which is a very good thing IMO. Just look at this channel https://www.youtube.com/@NationalAutisticSoc/videos . There is a lot of survivor-ship bias on this channel towards high functioning autists who can talk in front of a camera. Just to give an idea to those not familiar with the difference between high funct…

Why do you consider that a good thing?

If the public face of autism is someone who needs no support or accommodations and is in fact very successful - people will understandably be confused when someone with the same diagnosis needs substantial support.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#140

Post by everdrive »

0x1ceb00da wrote: post #78

One thing this will do is disincentivize high functioning autists from identifying themselves as autists, which is a very good thing IMO. Just look at this channel https://www.youtube.com/@NationalAutisticSoc/videos . There is a lot of survivor-ship bias on this channel towards high functioning autists who can talk in front of a camera. Just to give an idea to those not familiar with the difference between high funct…

This will unpopular, but I would recommend that anyone who can manage it to avoid any sort of formal psychological diagnosis. Unless you strictly need it for medication, it is always something which could potentially drag you down. Anyone can use the DSM (alongside an actual doctor) to get something of an "informal diagnosis" which will help them understand themselves better and to work with a doctor to form coping strategies. The formal diagnosis could potentially be used against you in the future, whether it's related to autism or not. For some people as well, the formal diagnosis does not seem to help and instead feels like a modern form of astrology; it becomes part of their internal view of themselves, and they trap themselves within the boundaries of their diagnosis.
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