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Hunting Down My Son's Killer

matt.might.net

131–140 of 339 posts

Re: Hunting Down My Son's Killer

#131
post #102

Colloidal silver will probably help as well.

Yes, if you want irreversible metal poisoning. If you want to try poisoning yourself with an old fashioned treatment, then mercury -- at one time a treatment for syphillis -- is probably a better bet if only because there are well established chelation protocols for getting it out of your system. In contrast, I can find no well established, proven means to remove silver. And I have tried, repeatedly, since colloidal…

Ha.. Mercury? Really? You are right, mercury is poison. But... there are too many people who have had spectacular results with colloidal silver, including myself, who would disagree with your post. Hospitals still use it in the eyes of newborns today to combat infections. Did you know that arsenic is not poison in the body if it is in organic form?

Re: Hunting Down My Son's Killer

#132
post #69
post #47

Earlier quoted context omitted.

A non-parent could similarly argue that you don't get to pass judgement since you are under the influence of cognitive dissonance. Regardless, I have met parents who feel that way, and it can often turn out poorly for the child, though it really depends. One person I know who feels this way is a DBA who earns more than enough for his wife to raise the kids. She works part-time more to escape cabin-fever than to earn…

"A non-parent could similarly argue that you don't get to pass judgement since you are under the influence of cognitive dissonance." The difference is that someone who is a parent has also been a non-parent. Someone who is a non-parent has never been a parent.

That doesn't really make sense. Cognitive dissonance may cause a smoker to rationalize their habit even though they have also been a non-smoker. In fact you could argue that cognitive dissonance is more likely to affect a parent than a smoker, as parents don't have the alternative option of quitting.

You could argue that non-parents may also be under the influence, but having formerly been a non-parent doesn't necessarily mean you're not rationalizing your choice to make you feel better about it.

Re: Hunting Down My Son's Killer

#133
post #47

Earlier quoted context omitted.

Balls to this. As your sibling commenter says, you simply don't get to pass judgement on this if you haven't had a child of your own. Sure, we're programmed to behave with an otherwise inexcusable amount of irrationality with our kids, but that's not by accident. If anything, it demonstrates the level of evolutionary importance in keeping our offspring healthy and ensuring their success: it's such an important direct…

A non-parent could similarly argue that you don't get to pass judgement since you are under the influence of cognitive dissonance. Regardless, I have met parents who feel that way, and it can often turn out poorly for the child, though it really depends. One person I know who feels this way is a DBA who earns more than enough for his wife to raise the kids. She works part-time more to escape cabin-fever than to earn…

This is already a busy topic, and this is as good of a chance as I'll have to get something off my chest, so here goes...

There's an obsession verging on dogma in much of the hacker world that rationality is the only path to correct action; that by virtue of being hackers we are all somehow divested of otherwise human frailties like emotion, love, and irrational behaviour. As one of the commenters on this thread so wonderfully said:

> No, you're not some amazing savant that has popped up out of the mass of mediocrity that is humanity.

We are, every single one of us, a fallible creature full of fault, vanity, and ego. To argue that I am under the 'influence of cognitive dissonance' because I am falling prey to one of life's most unstoppable impulses is perhaps the strongest example I've yet seen of the absurdity of rational behaviour as the highest truth.

There is a time to be rational and to appeal to such sensibilities, and as hackers we live in those times more than most people. Crafting, debugging, and similar work pleads for rationality; indeed it is a necessary ingredient for much of the work a hacker does. But its applicability has definite limits, and as with any tool it's critical to know where those limits lie.

The core act of deceit comes when, drunk on the power and clarity of thought that rationality brings, the hacker mind tries to apply this tool to matters of the heart or soul. To pretend that the behaviour of a parent towards their child has its basis in rational thought is to presume rationality is a more human trait than love, or than the desire to express one's will on the world.

When parents say things like 'I love my kid so much that it makes my heart hurt', they aren't being flowery; that's actually what it feels like. A feeling so grounded in the core of our existence as a species that it's inseparable from physical pain; to try and apply rationality to that is the height of naivety. Likewise, when people say things like 'you can't understand unless you've had a child yourself', they aren't being dismissive. Parenthood isn't just another mouth to feed or diapers to change. It is a rewiring of your mind and your soul so complete and severe that it can turn love into physical pain. It is perhaps the most human event that has ever occurred in my life, and I suspect most other parents would say the same.

I have weeped openly for days in both happiness and fear for my daughter's well being. I have walked away from a life that took me a decade to build in order to ensure her health, and I never once questioned the correctness of that decision. Many of my decisions as a parent have been made in the face of rationality, made on a balance of many factors of which the rational course of action was just one. Walking that razor edge between the rational way and the biological imperative is an essential skill of any parent. It is a path impossible to describe yet clear as day if you just know where to look.

The only objective truth is that there are no objective truths. I won't pretend to say that my perspective is any more or less correct than anyone else's, but I will say this: rationality is a double edged sword. It is a potent weapon against bugs, suits, and dogma, but it is also capable of separating you from that which makes you human. Like any tool, it's up to you to decide how to wield rationality. Please just know the consequences before you start swinging it.

Re: Hunting Down My Son's Killer

#134

It pays to become an expert in your own (or your family members') medical conditions, because you'll quickly become more of an expert than 99% of the doctors you will rely on for care. It helps when they all ask the same dumb questions, which they will do. If your condition is mildly rare, you'll notice when you see a new doctor, that their knowledge will be limited to what you found out in the first hour of internet…

This comment rings too true. Most doctors quickly realize that they're outgunned when my wife and I start talking about our son. We have a lot more luck with PhDs than MDs.

Sir, your story is absolutely amazing. You, your wife, and your son deserve to be recognized for your struggles that will undoubtedly help others in the future.

Re: Hunting Down My Son's Killer

#135

As a father with a son with severe autism (not to suggest it's equivalent to Bertrand's condition), there is an important lesson here that might not be apparent at first read. Before you have children, understand that it's for the rest of your life. Really understand the impact. Your concerns are second, beyond anything you've ever understood. Marriage is about compromise. Children, however, afford no such privilege.…

> Before you have children, understand that it's for the rest of your life. Really understand the impact.

As a father with a son with severe autism, and remembering the time before you were a father, do you think that anybody can imagine what it's like?

I have a healthy daughter (16 months old), and that alone changed my live beyond anything I could have imagined before.

I don't want to belittle anybody's imagination, but in my experience imagination only works well for envisioning things happening to you in short time scales.

Re: Hunting Down My Son's Killer

#136
post #102

Earlier quoted context omitted.

Yes, if you want irreversible metal poisoning. If you want to try poisoning yourself with an old fashioned treatment, then mercury -- at one time a treatment for syphillis -- is probably a better bet if only because there are well established chelation protocols for getting it out of your system. In contrast, I can find no well established, proven means to remove silver. And I have tried, repeatedly, since colloidal…

Ha.. Mercury? Really? You are right, mercury is poison. But... there are too many people who have had spectacular results with colloidal silver, including myself, who would disagree with your post. Hospitals still use it in the eyes of newborns today to combat infections. Did you know that arsenic is not poison in the body if it is in organic form?

People also got "spectacular" results from antibiotics. Initially, optimists announced that we were ushering in an age free from disease. Fast forward a few decades and we now have frightening antibiotic resistant infections to contend with.

I am not claiming there are zero short term benefits to be had. I am only claiming there is a long term cost and I deem it to be too high since there is no known means to reverse silver poisoning. My genetic disorder is deemed to be degenerative and fatal. I have reversed a lot of the symptoms, gotten off eight prescription drugs and gotten my life back. I recommend against colloidal silver any time anyone asks me. I am clear the build up of poisons in the body is why my condition is degenerative.

Re: Hunting Down My Son's Killer

#137

As a father with a son with severe autism (not to suggest it's equivalent to Bertrand's condition), there is an important lesson here that might not be apparent at first read. Before you have children, understand that it's for the rest of your life. Really understand the impact. Your concerns are second, beyond anything you've ever understood. Marriage is about compromise. Children, however, afford no such privilege.…

Sorry, not worth it at all. Years 1-10 - you will loose all your time - cleaning diapers, making the child eat, making it study, teaching it values - waking up at night - and doing a lot of things for it. Yes you'll see it learn, smile, grow up and you're genetically conditioned to like it. But you will not be able to play your games, go to your parties - read book or contemplate on life, or code without expecting in…

I think a lot of people start out this way including myself. As you hit your late 30's I think is when even some hard-core no-kids people start to re-evaluate their thinking.

I still don't have kids but I'm not anti-kids anymore so if one day it happens I'll be ok with it. What changes is that you go around year after year and you start to see things become a bit repetitive. Holidays with the family, celebrations. Your family starts getting smaller. You start to see how much fresh new energy kids bring to life in general. You start to chill out about the crying and hassles that babies bring and not see them as so much of a burden. All of the things that you've done a million times are suddenly new and exciting because you have somebody to share them with and pass off all of your knowledge, show them all the tricks you've learned in life. I didn't really feel any of that until I had nieces, but I really love hanging around with them.

Re: Hunting Down My Son's Killer

#138

As a father with a son with severe autism (not to suggest it's equivalent to Bertrand's condition), there is an important lesson here that might not be apparent at first read. Before you have children, understand that it's for the rest of your life. Really understand the impact. Your concerns are second, beyond anything you've ever understood. Marriage is about compromise. Children, however, afford no such privilege.…

Sorry, not worth it at all. Years 1-10 - you will loose all your time - cleaning diapers, making the child eat, making it study, teaching it values - waking up at night - and doing a lot of things for it. Yes you'll see it learn, smile, grow up and you're genetically conditioned to like it. But you will not be able to play your games, go to your parties - read book or contemplate on life, or code without expecting in…

Kids are a lot of work, but you don't have to make it unnecessarily hard on yourself by raising them American-style.

As long as your child is healthy, it's perfectly possible to wean them early, send them to child care, get them to sleep through the night by not rushing to their side every three seconds, train them to play quietly by themselves, teach them not interrupt their parents when they're busy, get babysitters whenever you have a social occasion, and put your relationship with your spouse first and foremost. Your kids will be just fine.

Re: Hunting Down My Son's Killer

#139

As a father with a son with severe autism (not to suggest it's equivalent to Bertrand's condition), there is an important lesson here that might not be apparent at first read. Before you have children, understand that it's for the rest of your life. Really understand the impact. Your concerns are second, beyond anything you've ever understood. Marriage is about compromise. Children, however, afford no such privilege.…

> Before you have children, understand that it's for the rest of your life. Really understand the impact. As a father with a son with severe autism, and remembering the time before you were a father, do you think that anybody can imagine what it's like? I have a healthy daughter (16 months old), and that alone changed my live beyond anything I could have imagined before. I don't want to belittle anybody's imagination…

> do you think that anybody can imagine what it's like?

Oh, no. Of course not. But they should consider the possibility. You cannot assume that it's going to be 18-20 years and they are on their own. That it's diapers for only a couple years and then you don't have to change them.

No, there is no way they can fully grasp what it means. But they can't just assume everything will be fine. My wife and I did this, and we waited, and prepared, and we had kids once we were ready. Really ready, and I'd like to think it shows in our children, in our marriage, and in our lives. No, we weren't ready for autism, but we did understand that things could go wrong.

So yes, you are right. But it still can't hurt to think about it. Really think about it. More than what some people do.

Re: Hunting Down My Son's Killer

#140
post #120

Earlier quoted context omitted.

To be fair to (most) doctors, especially your primary physician, have to diagonose a huge range of conditions. The edge cases are rare and so they are not as well versed on them. System specialists are an order of magnitude better. I.e. going to an Ear, Nose & Throat doctor if you have Asthma. Disease specialists are the pinacle. Sometimes these are researchers rather than normal doctors.

I have a genetic disease that shows up in 4/100k people, so rare, but not that rare. Any sizable town has at least a few dozen people with my disease. In my experience, "an order of magnitude better" in specialists means they've at least heard of it, but know nothing about it. Every time I move, I have to spend some time educating my new specialist on the disease. I know damn well that every time one of them excuses…

Yep, it's also disheartening to see them holding a printout of one of the few articles available online, which I already know is pretty out-of-date and down-right wrong in places.
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