Live data from Hacker News

The Healing Power of Your Own Medical Records

nytimes.com

1–10 of 30 posts

Re: The Healing Power of Your Own Medical Records

#3
There is a YC company that will collect and maintain medical records for you. PicnicHealth - https://picnichealth.com/ I am a customer, recommended.

Also, "medicine for the rich" companies like Pinnacle Care and Private Health will do it for you as part of their services. And for a good reason, you need records to do anything else.

Whether you do it yourself, or have somebody do it for you - do it. EMR portals are nice, but not nearly enough, you need the real backend records.

Re: The Healing Power of Your Own Medical Records

#4
My initial thought is how long will it take doctors to cross-over to acceptance of patients having more data and coming to see them well informed. Experience comes with age, and many of our doctors today just aren't use to being given detailed data by their patients. It will happen, but right now I don't feel that this is the case. Will it be 10 years, 20 years?

Re: The Healing Power of Your Own Medical Records

#5
post #3

There is a YC company that will collect and maintain medical records for you. PicnicHealth - https://picnichealth.com/ I am a customer, recommended. Also, "medicine for the rich" companies like Pinnacle Care and Private Health will do it for you as part of their services. And for a good reason, you need records to do anything else. Whether you do it yourself, or have somebody do it for you - do it. EMR portals are ni…

Just checked out your suggestion, i agree that the aggregation is nice, but $40/month for something i won't actively use but a few times a year is quite expensive.

Re: The Healing Power of Your Own Medical Records

#6

My initial thought is how long will it take doctors to cross-over to acceptance of patients having more data and coming to see them well informed. Experience comes with age, and many of our doctors today just aren't use to being given detailed data by their patients. It will happen, but right now I don't feel that this is the case. Will it be 10 years, 20 years?

I am an MD, and this happens all the time right now. It has been happening consistently for at least 10 years. Grab your hoverboard, son, this is the future.

Re: The Healing Power of Your Own Medical Records

#7
post #3

There is a YC company that will collect and maintain medical records for you. PicnicHealth - https://picnichealth.com/ I am a customer, recommended. Also, "medicine for the rich" companies like Pinnacle Care and Private Health will do it for you as part of their services. And for a good reason, you need records to do anything else. Whether you do it yourself, or have somebody do it for you - do it. EMR portals are ni…

Just checked out your suggestion, i agree that the aggregation is nice, but $40/month for something i won't actively use but a few times a year is quite expensive.

Agree. This service sounds interesting, but as an infrequent consumer of health care, this subscription model doesn't make sense. I would be interested in paying a flat fee to get my records. Then pay again in a year or two to have them updated. Wondering if the cost of obtaining the records is so high, that they need the subscription to run for x months to recoup? Maybe a hybrid approach would work: $5/mo to keep the account active, and then a user-initiated update feature at $40 a pop.

Re: The Healing Power of Your Own Medical Records

#8

My initial thought is how long will it take doctors to cross-over to acceptance of patients having more data and coming to see them well informed. Experience comes with age, and many of our doctors today just aren't use to being given detailed data by their patients. It will happen, but right now I don't feel that this is the case. Will it be 10 years, 20 years?

Patients who know their conditions to the extent that they're able to have a well informed discussion with you at the visit are still quite uncommon. Most people google their diagnoses and glance at the top 2-3 hits, but very very few really dig deep into the guidelines, physiology or publications to see if what is being recommended makes sense. I think there's still a lot of faith being placed in experts, which in my opinion is appropriate because the likelihood of someone misunderstanding what they've read still exceeds the chance that they've uncovered ways to further optimize.

That being said, learning is always good. I always encourage people to discuss anything they've read with me. I print out guidelines, trial data, etc in the interest of leveling the playing field and complete transparency. There's really no point in trying to maintain an information gradient.

Now the article is not about understanding your disease, but rather, having complete access to your medical records- which is a related but different issue. Unfortunately, 99% of people have no idea what people are writing about them and I find that really troubling. Not sure why, but patients still seem to feel that it's somehow antagonist to ask to have a look. Like it's some threat or precursor to a lawsuit. It's not. When I turn the screen and ask the family to gather around so I can explain stuff, there's often hesitation or even surprise - "What? Can I really look at that? Is that ok?". Yes You Can folks.

Re: The Healing Power of Your Own Medical Records

#9
post #3

There is a YC company that will collect and maintain medical records for you. PicnicHealth - https://picnichealth.com/ I am a customer, recommended. Also, "medicine for the rich" companies like Pinnacle Care and Private Health will do it for you as part of their services. And for a good reason, you need records to do anything else. Whether you do it yourself, or have somebody do it for you - do it. EMR portals are ni…

Just checked out your suggestion, i agree that the aggregation is nice, but $40/month for something i won't actively use but a few times a year is quite expensive.

I agree. Think their price point is too expensive for most healthy consumers, so they are currently positioned for people who have a significant need to use them.
Post reply on HN