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Yeah, I'm sick. Read all about it

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Re: Yeah, I'm sick. Read all about it

#22
I'm bracing for more down votes but:

Clean up your fucking diet. Cut out everything even remotely inflammatory. Drink a shitload of water. Eat grassfed. Meditate. Coconut oil. Tumeric. Blood tests for kidney, liver function.

Get your HORMONES checked. Testosterone, including free testosterone.

Get sunlight. Walk. Stop sitting.

Change your environment.

Re: Yeah, I'm sick. Read all about it

#23

It sounds like you actually have Chronic Fatigue Syndrome - everything you say is very typical of CFS. I actually suffered from CFS myself, but have now fully recovered - I run my own business, and I'm a private pilot as well. CFS is very treatable and you can recover from it. Unfortunately there is a lot of BS and quackery out there, making it difficult for patients to get the right information. Feel free to email m…

Is racking pain characteristic of CFS?

Yes, it can be. Some people have a lot of pain, others have none. The term ME tends to be used when pain is present. Also fibromyalgia overlaps to a very large extent with CFS, and pain is one of its main symptoms.

The problem is that all patients have slightly different symptoms and there is no definitive test as yet, so it makes it difficult to diagnose.

Re: Yeah, I'm sick. Read all about it

#24

It sounds like you actually have Chronic Fatigue Syndrome - everything you say is very typical of CFS. I actually suffered from CFS myself, but have now fully recovered - I run my own business, and I'm a private pilot as well. CFS is very treatable and you can recover from it. Unfortunately there is a lot of BS and quackery out there, making it difficult for patients to get the right information. Feel free to email m…

Is racking pain characteristic of CFS?

[deleted]

Re: Yeah, I'm sick. Read all about it

#26

I'm reading into this, but I would hazard a guess that it appears he plays a lot of video games or surfs the web/blogs (he seems to have a lot to write about games, etc), and his roommates probably see this and react negatively to it, especially when he complains about being tired all the time. It's not normal for good people to act like jackasses, so it feels like there's something more to this story than just them…

You're kind of proving his point, aren't you? Your default assumption is that his roommates are probably right. What if he had crippling fibromyalgia? Or some horrendous cancer?

> especially when he complains about being tired all the time

He never said he complains all the time. He says he is tired; he did not say he complains that he is tired all the time. So why did you immediately conclude he must complain all the time?

See, I read the point of the post as this: when you have a disease with no name -- no one can classify you as having a thing. You just have symptoms. I read his point as being that people sympathize with those who have a disease, but if you can't name your disease, it's almost as if you didn't have one. And hence his roommate who decided it'd be awesome to ride their exercise bike in his room as a form of punishment for not having a better sleep schedule. His roommate couldn't sympathize.

Here's an exercise: you know how recent security exploits all have fun little names? And how those exploits have all gotten fairly extensive press mentions as a result? Do you think they would have had the same if they were left nameless, as most exploits in the past were?

Re: Yeah, I'm sick. Read all about it

#27
post #16

Earlier quoted context omitted.

Doctor's pretty much dismiss flouroquinolones as potential causes for these kinds of problems, which is part of why I asked. I also asked because I've been suffering similar symptoms, and have been in the ER multiple times in the last couple weeks. The only thing I could possibly think of that spurred this on was getting a nosocomial infection 3 months ago and taking Ciprofloxacin for it. I had bad tendon pain and ne…

I apologize for the tone of my first comment. I didn't mean to direct that personally to you, just as a frustration to the common reaction of "helping". As to the question you made, the writer said that he has been sick for not a few weeks or month, but a decade. And when I first read your comment, it's practically saying to me "Are you taking steroids while being sick in the last 10 years?" - again, probably not a c…

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Re: Yeah, I'm sick. Read all about it

#28

I'm reading into this, but I would hazard a guess that it appears he plays a lot of video games or surfs the web/blogs (he seems to have a lot to write about games, etc), and his roommates probably see this and react negatively to it, especially when he complains about being tired all the time. It's not normal for good people to act like jackasses, so it feels like there's something more to this story than just them…

I agree! In the same paragraph he goes from saying '[my roommate] once screamed at me, calling me “lazy”' to 'these people are, in most aspects of their lives, good people. Honestly, couldn't recommend them enough'.

He also talks about suffering from fatigue so severe that he's 'too exhausted to sleep' and then explaining that he was able to: 'work part time, attend school full time, and do freelance writing...50 or 60 hour work weeks, effectively'. It's all a bit strange.

I'm curious about HN's fascination with health posts - I've seen quite a lot pop up on the front page. Especially things about depression and unusual illness.

(I hope the points/questions I've raised don't make me sound like a douche.)

Re: Yeah, I'm sick. Read all about it

#29

I'm reading into this, but I would hazard a guess that it appears he plays a lot of video games or surfs the web/blogs (he seems to have a lot to write about games, etc), and his roommates probably see this and react negatively to it, especially when he complains about being tired all the time. It's not normal for good people to act like jackasses, so it feels like there's something more to this story than just them…

You're kind of proving his point, aren't you? Your default assumption is that his roommates are probably right. What if he had crippling fibromyalgia? Or some horrendous cancer? > especially when he complains about being tired all the time He never said he complains all the time. He says he is tired; he did not say he complains that he is tired all the time. So why did you immediately conclude he must complain all th…

Actually I didn't say his roommates were right, I said there may be an explanation for why they are behaving as they do, which is a misunderstanding of his situation based on the fact he possibly plays a lot of video games or surfs the web to blog, and yet says he doesn't have any energy to do anything. I never said he wasn't sick. But his roommates could misunderstand the nature of his illness, and hear him complaining about his condition, and then see him play video games while sitting in bed. This could easily explain why they don't believe him.

He admitted himself that they are great people, and the fact they are behaving so strangely to him indicates to me that there is some other dynamic going on that we don't have an explanation for. The examples of the roommate taking an exercise bike into the room while he's sleeping is simply bizarre and toxic, if these people are as good as he says they are there must be some other explanation. There's always two sides to every story. Is he late with his rent because he doesn't have money, but always buys the latest video games? Is he playing games all night long because it doesn't take much energy, but does he not do his dishes because he's too physically tired? There's a lot of dynamics going on and we're getting a very 1 dimensional analysis of his roommates that he chalks up to them not believe he is sick.

Re: Yeah, I'm sick. Read all about it

#30

I'm reading into this, but I would hazard a guess that it appears he plays a lot of video games or surfs the web/blogs (he seems to have a lot to write about games, etc), and his roommates probably see this and react negatively to it, especially when he complains about being tired all the time. It's not normal for good people to act like jackasses, so it feels like there's something more to this story than just them…

You're kind of proving his point, aren't you? Your default assumption is that his roommates are probably right. What if he had crippling fibromyalgia? Or some horrendous cancer? > especially when he complains about being tired all the time He never said he complains all the time. He says he is tired; he did not say he complains that he is tired all the time. So why did you immediately conclude he must complain all th…

When he's complaining about a disease with no name, it might be worthwhile to provide a bit more medical background about the progress of his illness. Like many 'woe is me' stories on the internet, this left me with a lot more questions than answers and reading it ultimately proved to be a waste of my time. I feel sorry for the author but found his account of problems too incoherent to puzzle out, apart from the fact that he feels terrible and can only work about 30 hours in a good week. Maybe he needs to apply for disability and spend his limited uptime working on small-scale games rather than big commercial ones involving massive workloads and crunch time etc.
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