How can one receive a signal from one's brain?
This video explains it well http://www.ted.com/talks/elliot_krane_the_mystery_of_chronic...
Man receives constant pain signals from his brain
41–50 of 60 posts
Re: Man receives constant pain signals from his brain
#42I suggest the possiblity that this is a manifestation of TMS. Check out John Sarno's The Mindbody Prescription.
Your suggestion is uninformed; and John Sarno's advice is pure quackery. Please don't speculate like this on severe medical conditions.
How much research have you done on this? If you dig into the research you will see that Sarno's theory is the best explanation for these conditions. (I've suffered from one of these conditions myself, and done extensive research).
Re: Man receives constant pain signals from his brain
#43Re: Man receives constant pain signals from his brain
#44Earlier quoted context omitted.
Your suggestion is uninformed; and John Sarno's advice is pure quackery. Please don't speculate like this on severe medical conditions.
How much research have you done on this? If you dig into the research you will see that Sarno's theory is the best explanation for these conditions. (I've suffered from one of these conditions myself, and done extensive research).
I've been looking into these issues for over a decade. Sarno's theory is psychobabble: http://en.wikipedia.org/wiki/Tension_myositis_syndrome.
"The treatment protocol for TMS includes education, writing about emotional issues, resumption of a normal lifestyle and, for some patients, support meetings and/or psychotherapy"
For general back pain, I wouldn't be surprised if this "treatment" involves some very simple stress relief mechanism that relaxes muscles and reduces muscular pain for some people, some of the time.
The theory, however, is nonsense, and you could just as easily substitute "demons" and "exorcism" for "emotions" and psychotherapy" and get the same results. "TMS" is a made up term with no science behind it, just wilful speculation from a professional who should know better.
To suggest it has anything to do with the unremitting pain described in the OP is deeply irresponsible. It's like suggesting homeopathy for cancer. In fact it's probably worse, as it amounts to victim-blaming because the patient isn't dealing with their "repressed" rage/emotions. Awful.
Re: Man receives constant pain signals from his brain
#45Since July 2012 I suffer something similar (not as bad as the guy in the article thankfully); named "fibromyalgia", I get along with a couple of drugs, one called Duloxetine and the other one is Modafinil (that last one is for insomnia but one of the symptoms of my disease is being sleepy/tired all the time). I'm a strange case because I'm a 25 years old male but most people with the same illness are middle age women…
One of the most intensely frustrating things to me about doctors is the way they treat anyone explaining something not immediately diagnosable as though the patients are pathological liars or hypochondriacs. I don't care if there are a few people who fake conditions to get pain medicines. That's no excuse for ignoring people with real problems. If someone is coming to you who hasn't been to a doctor in five years, th…
There are penalties for giving out drugs to everyone who asks (potentially jail); there are no penalties for not giving out drugs apart from feeling like an asshole.
Re: Man receives constant pain signals from his brain
#46Earlier quoted context omitted.
How much research have you done on this? If you dig into the research you will see that Sarno's theory is the best explanation for these conditions. (I've suffered from one of these conditions myself, and done extensive research).
I've been looking into these issues for over a decade. Sarno's theory is psychobabble: http://en.wikipedia.org/wiki/Tension_myositis_syndrome . "The treatment protocol for TMS includes education, writing about emotional issues, resumption of a normal lifestyle and, for some patients, support meetings and/or psychotherapy" For general back pain, I wouldn't be surprised if this "treatment" involves some very simple str…
It's not psychobabble. There is extensive evidence showing that stress and depression result in pain, that FMS is triggered by stress, and that psychosocial factors are important in recovery. The same is true for CFS and IBS, which overlap with FMS.
And the pain isn't muscular in nature, it is neurological.
I've done extensive research into this area for 15 years, written a book about it, and published research, as well as suffering from it myself (and recovering).
Although I haven't digged very deeply into Sarno's theories, I can tell you that from what you have posted above, it is right on the money. However it's not simple 'stress relief' or 'relaxing muscles'. It's more to do with rewiring your brain through changes in behaviour.
Re: Man receives constant pain signals from his brain
#47My Father has suffered with full body RSD/CRPS like the patient in this article. Even the slightest breeze can cause him excruciating pain. He has a morphine pump in his abdomen that provides a constant drip of dilaudid on his spine, its the only thing that lets him manage his pain. There is some hope. Last year some scientists in Italy discovered a break through treatment that has had good success...though only test…
With all due respect, I have a question. Where does the pain come 'from'? Like, if we hurt ourselves, the pain comes from _that_ place. When it hurts, does it hurt _from_ a place or just a general feeling of pain over the whole body?
My first thought as someone who has high comorbidity of autoimmune diseases is that this sounds like extremely severe neuropathic pain.
Since I wasn't familiar with CRPS I did a quick search for it and found this article
http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystro...
A search for autoimmune on that page turns up this nugget, "CRPS is more common in individuals with other inflammatory and autoimmune conditions such as asthma." Seeing as how it is a rare disease very little research is going to go towards this, so I'm just throwing out some conjecture that CRPS is likely an autoimmune disease itself.
Autoimmune diseases often cause neuropathic pain. Link below provides some details, a quick excerpt though is provided here.
"Neuropathic pain is distinguished from other pain conditions where the pain generator begins with disease of nonneural tissues. These nonneuropathic pain entities are said to be nociceptive and include conditions such as osteoarthitis and inflammatory pain."
Now to put it in layman's terms from a patient that doesn't understand the medical condition (me); the pain comes from my nerves/brain not working right.
I'm nowhere near as bad as the guy in this article; I am highly functioning on a day to day basis, but still have to use benzodiazepines in conjunction with opiates. As I understand it the former helps to slow down the overreaction of messages going between the nerves and brain, while the latter helps to take the "edge" off from the constant pain that remains.
The pain can come from anywhere and everywhere. I really feel for this guy; on a real bad day the pain has gotten so bad I can barely get out of bed and move. On the rare occasion that happens I double up on the drugs and sleep it off. Sounds like this guy is suffering times 1000 on a daily basis what I am on my worst days. That's some seriously awful shit.
Re: Man receives constant pain signals from his brain
#48Earlier quoted context omitted.
I ask this with all respect for the suffering your father goes through but I am genuinely curious... Has he tried THC in any form (smoke a joint, pill extract)? I have heard of great pain relief from other diseases, and wonder if there would be any relief provided by medicinal marijuana?
My Dad also has had CRPS for the last 10 years now, and treats it with THC currently. Initially, they weren't able to diagnose it due to the odd cause. Like the article said, mostly this disease is caused by extreme trauma. My father's case was when he cut himself and had to receive a Tetanus shot. About 5 hours after the shot, he was back an the hospital with an arm swelled to twice the size and it's been downhill s…
Why doesn't he just juice the raw plants for the THCA? I doubt the THC actually has any significant benefit, and then he wouldn't have nearly as much of the mental fog.
Re: Man receives constant pain signals from his brain
#49Earlier quoted context omitted.
How much research have you done on this? If you dig into the research you will see that Sarno's theory is the best explanation for these conditions. (I've suffered from one of these conditions myself, and done extensive research).
I've been looking into these issues for over a decade. Sarno's theory is psychobabble: http://en.wikipedia.org/wiki/Tension_myositis_syndrome . "The treatment protocol for TMS includes education, writing about emotional issues, resumption of a normal lifestyle and, for some patients, support meetings and/or psychotherapy" For general back pain, I wouldn't be surprised if this "treatment" involves some very simple str…
So you think all the studies linking stress with inflammation are some kind of conspiracy?
Re: Man receives constant pain signals from his brain
#50Earlier quoted context omitted.
I've been looking into these issues for over a decade. Sarno's theory is psychobabble: http://en.wikipedia.org/wiki/Tension_myositis_syndrome . "The treatment protocol for TMS includes education, writing about emotional issues, resumption of a normal lifestyle and, for some patients, support meetings and/or psychotherapy" For general back pain, I wouldn't be surprised if this "treatment" involves some very simple str…
It's not psychobabble. There is extensive evidence showing that stress and depression result in pain, that FMS is triggered by stress, and that psychosocial factors are important in recovery. The same is true for CFS and IBS, which overlap with FMS. And the pain isn't muscular in nature, it is neurological. I've done extensive research into this area for 15 years, written a book about it, and published research, as w…
I'd be interested in your studies and book - can you share a link?
I follow the research. Psychosocial factors have been studied to death and certainly aren't important for recovery, particularly given recovery is not a particularly common outcome (for CFS/FM at least). (If only they were, it would make recovery a lot easier.) They are, however, peddled by people giving false hope to the vulnerable and desperate.
IMO your certainty about what is or isn't the cause of all those conditions is certainly not justified. For example, how can you be so sure Sarno is "right on the money" when you admit you haven't looked into it very deeply? And Sarno's theory is very much about emotional release, that's the whole point. Gotta get that repressed rage out.