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Man receives constant pain signals from his brain

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Re: Man receives constant pain signals from his brain

#21

I suggest the possiblity that this is a manifestation of TMS. Check out John Sarno's The Mindbody Prescription.

Everything I have read about CRPS suggests that it is essentially the same as FMS, i.e. a psychosomatic pain disorder caused by stress. The unexplained weight loss experienced by the patient in this article would also be consistent with this.

What unexplained weight loss? He was diagnosed with a bacterial infection at the Mayo Clinic.

Re: Man receives constant pain signals from his brain

#22
My wife has a friend with CRPS here in Austin. She's just recently started a new treatment involving ketamine. She wasn't put under for five days like Justin, but did experience extreme mental disorientation accompanied by a few weeks of pain relief.

Its amazing how she stays positive when the majority of her life is spent alone, in pain, and with no cure in sight.

Re: Man receives constant pain signals from his brain

#23
post #5

I used to think that something like this wasn't possible. I always assumed that if you were in constant pain or something you would somehow grow used to it over time in the same way that being subjected to cold temperatures raises the bodies resistance to cold temperatures. Another example would be drugs and chemical receptors in the brain. Correct me if I'm wrong but shouldn't it be the same as with drugs, the more…

>Shouldn't you then technically feel less pain over time if it's constant?

getting accustomed to pain isn't a trait that would be carried through evolutionary selection. Pain is a signal about something that has to be addressed. Out of 2 possible reactions - acting on the signal vs. not hearing the signal the first is obviously evolutionary preferable. An yes, evolution and selection isn't merciful, and here i'm very agree with buddhism. We evolved to be scared and run away from sources of pain and constant risk of pain is what makes us moving through life.

BTW, am i the only one who is WTF??? while reading it:

>In 2006, Justin, an Upper Dublin High School grad pursuing an economics degree at Penn State University, lost 60 pounds over the course of a few months, with no end to the mysterious weight loss in sight. Justin’s doctors, perplexed by his condition, performed surgery on him to install a feeding tube in his small intestine.

Re: Man receives constant pain signals from his brain

#26
post #21

Earlier quoted context omitted.

Everything I have read about CRPS suggests that it is essentially the same as FMS, i.e. a psychosomatic pain disorder caused by stress. The unexplained weight loss experienced by the patient in this article would also be consistent with this.

What unexplained weight loss? He was diagnosed with a bacterial infection at the Mayo Clinic.

Stress is likely one of the main causes of SIBO.

Re: Man receives constant pain signals from his brain

#28
post #13

"...the brain to send pain signals to the body..." Is this wrong or am I missing something?

Instead of the other way, probably just a typo.

From what I understand, not sure if correct, the spine has a weird role. If you touch a hot stove with your hand you instinctively jerk your hand back but there is a small delay until your brain gets it and thinks "hey that's hot!"

Re: Man receives constant pain signals from his brain

#29
post #2

My Father has suffered with full body RSD/CRPS like the patient in this article. Even the slightest breeze can cause him excruciating pain. He has a morphine pump in his abdomen that provides a constant drip of dilaudid on his spine, its the only thing that lets him manage his pain. There is some hope. Last year some scientists in Italy discovered a break through treatment that has had good success...though only test…

I ask this with all respect for the suffering your father goes through but I am genuinely curious... Has he tried THC in any form (smoke a joint, pill extract)? I have heard of great pain relief from other diseases, and wonder if there would be any relief provided by medicinal marijuana?

My Dad also has had CRPS for the last 10 years now, and treats it with THC currently.

Initially, they weren't able to diagnose it due to the odd cause. Like the article said, mostly this disease is caused by extreme trauma. My father's case was when he cut himself and had to receive a Tetanus shot. About 5 hours after the shot, he was back an the hospital with an arm swelled to twice the size and it's been downhill since. He's actually been to a number of universities for studies, as he's the first documented case to get it from a shot I believe.

He's taken virtually all forms of THC to help, but the only way it is manageable is in addition to the extremely heavy methadone dose and oxycontin as well. Usually he relies on smoking, but pills are sometimes used. Unfortunately, his THC use has increased to the point that's it's insanely expensive and he rarely is thinking clearly any point in the day. It's had long term effects on his mood as well, either from the pain or the heavy drug use (it's hard to tell). He appreciates the THC because it's reduced his dependency a little on the methadone and oxycontin, which were beginning to do severe damage to his memory. It definitely wasn't a miracle cure though, but it's seemed to help.

Re: Man receives constant pain signals from his brain

#30
Since July 2012 I suffer something similar (not as bad as the guy in the article thankfully); named "fibromyalgia", I get along with a couple of drugs, one called Duloxetine and the other one is Modafinil (that last one is for insomnia but one of the symptoms of my disease is being sleepy/tired all the time). I'm a strange case because I'm a 25 years old male but most people with the same illness are middle age women.

I don't think a cure is between our reach (some doctors don't even believe its a real disease... just in case life doesn't suck enough with the disease itself) but I'm trying to lead the creation of better treatments, and topical pain-relieving in general.

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