Jonathan here. Being woke up by my wife crying because the donations just aren't stopping is both heart-breaking and comforting.
For those of you who haven't seen the 'Bucket List' post, here's what it says at the very top:
As I try to deal with the reality that is my impending death I can't help but wonder how many things I might have been able to accomplish given just a little more time. When I was diagnosed, I had only one thing that I wanted; to live long enough to see my children grow up. The reality is that the odds of me living long enough to see my children grow are quite slim. The only available treatment will eventually stop working and then it's just a matter of time.
This is the list of things that I want to accomplish while I still have time. Many of them aren't for me. They are for my family. They are meant to provide security for my wife and kids so that they can celebrate my life instead of mourning my death when that time comes.
My priorities are taking care of my family just as they always have been. Sometimes, we just can't plan far enough ahead to deal with something like this. If you saw the original page you would also note that Trips and meeting celebrities is not high on my list of priorities. Those are things that would provide me with a small boost on an emotional level but I don't consider them something that must happen before I die.
Life Insurance: I changed jobs and don't have any and now that I'm terminal, the cost for obtaining it is prohibitive. I agree that this is poor planning on my part, however, I'm 35 and no one expects to find out that they are going to die at 35. We all think we have plenty of time and the reality is that we don't.
Health Insurance: Thank god that I have this or we would've been sunk from the beginning. Despite having insurance, there continue to be ongoing costs and once I go on long-term disability I'll be paying cobra rates to keep the same coverage. I have no idea how expensive this will be but I don't expect it to be cheap.
This really isn't about me or the money, this is about my family and trying to ease their pain. I know that I'm living on borrowed time right now and I could be dead at any moment. All I want to do is spend as much time as I can with my kids so that they know I loved them. You try telling a 6 year old that her daddy has cancer and will be dead before she turns 8. Hardest thing I've ever had to do and I would never wish it any one.
For those of you that have helped us, thank you is not enough.