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The NHS is selling your private data – here's the price list [pdf]

hscic.gov.uk

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Re: The NHS is selling your private data – here's the price list [pdf]

#121

Earlier quoted context omitted.

The main page, http://www.hscic.gov.uk/dles , states > The data we supply is normally pseudonymised. We only provide identifiable data when there is a lawful basis to do so i.e. with patient consent, approval under section 251 of the NHS Act 2006 which enables The Health Service (Control of Patient Information) Regulations 2002, or where appropriate statutory regulation is in place. This "About Section 251" page, htt…

"... or where appropriate statutory regulation is in place" You do know that means civil servants have written a statutory order, it has been signed by the minister (might have to be Secretary of State) and it has been placed in Parliament for a week (no vote required). [Exact details may be wrong but that is the overall concept of statutory orders]. My comment is based on a general understanding of statutory orders/…

I think "statutory regulation" just means there has to be a law allowing it ("statute" meaning law). From reading their website the other day, I got the impression that the case they had in mind was certain laws about containing contagious diseases, which could override privacy laws.

Reading on Wikipedia, "Statutary orders" and "statuatory instruments" seems to be particular ways of delegating law-making power from parliament. I don't think they are directly relevant here (since there has to be some enabling legislation)? But the section 251 thing already allows the Secretary of State for Health to disclose data, so if you are worried about ministers operating without parliamentary oversight, that is indeed possible....

Re: The NHS is selling your private data – here's the price list [pdf]

#122
post #107

Earlier quoted context omitted.

You seem to think that the NHS is releasing all this information. It is not. GPs send this "pseudo-anonymous" information to HSCIC. The HSCIC needs the extra information to create statistically useful cohorts. The HSCIC control access to that data. The HSCIC do some of their own statistics work and they release the results (but not the data sets!) which are often reported in UK news. Researchers, after being assessed…

...and it is now going to be available for sale to anyone who cares. You're laughably wrong. http://medconfidential.org/whats-the-story/ http://www.theregister.co.uk/2013/11/21/what_does_nhs_it_wan... Did you even look at the price list? I guess not. "Bespoke extract – containing personal confidential data"

But there are various safeguards in place for who can get database extracts containing personal data. The typical case is that all patients affected first need to sign a consent agreement. They charge a fee to cover the cost of processing the application.

In general, I'm kindof annoying with whoever submitted this URL to hacker news. I guess there are various complaints one can make about this system, but showing the price list in isolation seems calculated to just cause outrage without understanding...

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