The NHS is selling your private data – here's the price list [pdf]
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Re: The NHS is selling your private data – here's the price list [pdf]
#2A good explanation of the scheme, from Dr Neil Bhatia can be found at http://care-data.info/
It includes details of how to opt-out.
Re: The NHS is selling your private data – here's the price list [pdf]
#3A good explanation of the scheme, from Dr Neil Bhatia can be found at http://care-data.info/ It includes details of how to opt-out.
It's a long site so I'd just like to highlight the following:
"The data extracted - your Primary Care Dataset - will include the following:
Your NHS number Your date of birth Your postcode Your gender and ethnicity Your medical diagnoses (including cancer and mental health) and any complications Your referrals to specialists Your prescriptions Your family history Your vaccinations and screening tests Your blood test results Your body mass index (height/weight) Your smoking/alcohol habits"
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Go to that site. Opt out here http://optout.care-data.info/. It's really simple.
Re: The NHS is selling your private data – here's the price list [pdf]
#4This would be straight up illegal in the US due to HIPAA, which guarantees a patient's right to privacy.
HIPAA = http://en.wikipedia.org/wiki/Health_Insurance_Portability_an...
Re: The NHS is selling your private data – here's the price list [pdf]
#5A good explanation of the scheme, from Dr Neil Bhatia can be found at http://care-data.info/ It includes details of how to opt-out.
It's a long site so I'd just like to highlight the following: "The data extracted - your Primary Care Dataset - will include the following: Your NHS number Your date of birth Your postcode Your gender and ethnicity Your medical diagnoses (including cancer and mental health) and any complications Your referrals to specialists Your prescriptions Your family history Your vaccinations and screening tests Your blood test…
If you prefer, you can just write a letter to your surgery:
- State that you wish to opt-out of care.data
- Request that both the 9Nu0 and 9Nu4 codes are added to your GP records
- Remember to include full names and DOBs (and your address if you are happy to)
Re: The NHS is selling your private data – here's the price list [pdf]
#6This would be straight up illegal in the US due to HIPAA, which guarantees a patient's right to privacy. HIPAA = http://en.wikipedia.org/wiki/Health_Insurance_Portability_an...
The irony. It's illegal in the US where EU countries cannot send data because of the weak data protection laws and the UK with 'strong' laws is the one selling off all your private medical records (including identification details) for a paltry sum.
The price list looks so cheap that Russian or Nigerian scammers can afford these extracts and it would save them a hell of a lot of time setting up ID scams and instantly make them much more profitable.
No longer any need to mass mail in the hope of finding someone likely to buy V!agr4, the NHS will give you a list of likely marks to direct market to and save all the useless pitches to women !
Re: The NHS is selling your private data – here's the price list [pdf]
#7Would this enable the private industry to create services and analyses based off this cheaply available data?
Yes, it seems heinous at first, but are there legitimate, palatable Big Data opportunities here, assuming the data is properly anonymized?
Re: The NHS is selling your private data – here's the price list [pdf]
#8Would this enable the private industry to create services and analyses based off this cheaply available data? Yes, it seems heinous at first, but are there legitimate, palatable Big Data opportunities here, assuming the data is properly anonymized?
[deleted]
Re: The NHS is selling your private data – here's the price list [pdf]
#9A good explanation of the scheme, from Dr Neil Bhatia can be found at http://care-data.info/ It includes details of how to opt-out.
It's a long site so I'd just like to highlight the following: "The data extracted - your Primary Care Dataset - will include the following: Your NHS number Your date of birth Your postcode Your gender and ethnicity Your medical diagnoses (including cancer and mental health) and any complications Your referrals to specialists Your prescriptions Your family history Your vaccinations and screening tests Your blood test…
wow. having that being already identified to the individual is pretty dumb. what is the excuse for this to even be like so in the first place?
Re: The NHS is selling your private data – here's the price list [pdf]
#10Earlier quoted context omitted.
It's a long site so I'd just like to highlight the following: "The data extracted - your Primary Care Dataset - will include the following: Your NHS number Your date of birth Your postcode Your gender and ethnicity Your medical diagnoses (including cancer and mental health) and any complications Your referrals to specialists Your prescriptions Your family history Your vaccinations and screening tests Your blood test…
If you prefer, you can just write a letter to your surgery: - State that you wish to opt-out of care.data - Request that both the 9Nu0 and 9Nu4 codes are added to your GP records - Remember to include full names and DOBs (and your address if you are happy to)
The conundrum I have is knowing this has been done.
I wrote a letter with all of this, took it to the GP surgery. The receptionist was bemused. There has been no acknowledgement. Can I tell if I've been opted out, without hassling the already-overworked reception staff?