NHS patient data to be made available for sale to drug and insurance firms
1–10 of 63 posts
Re: NHS patient data to be made available for sale to drug and insurance firms
#2"The extracted information will contain NHS numbers, date of birth, postcode, ethnicity and gender."
Yikes! Date of birth AND postcode? Pseudoanonymous that is not.
Re: NHS patient data to be made available for sale to drug and insurance firms
#3Long article without the one piece of information I wanted: How to opt out.
Re: NHS patient data to be made available for sale to drug and insurance firms
#4Long article without the one piece of information I wanted: How to opt out. Edit: http://medconfidential.org/how-to-opt-out/
yes.. very interesting..
give more details..
there's also an optout aesthetics (optout art??) idea/event on: http://arty.li/ZMo
Re: NHS patient data to be made available for sale to drug and insurance firms
#5Long article without the one piece of information I wanted: How to opt out. Edit: http://medconfidential.org/how-to-opt-out/
9th paragraph:
" unless people choose to opt out via their family doctor "
Re: NHS patient data to be made available for sale to drug and insurance firms
#6The NHS provide shockingly little information on how to opt out. The leaflet that came through all our doors about this was vague. There is no official form, they just suggest you talk to your surgery. Legislation passed in 2012 allows the NHS to use our data with out first seeking our consent.
So that's what I did. Because they don't give this scheme a name, it's hard to talk reception staff about exactly what it is you want to opt out of. They were very understanding, but left me with forms to opt out of the Summary Care Record which is not the same thing. Even if you've already oped out of the Summary Care Record you must still opt out of this.
An email to the practise manager did the trick though. I asked by what mechanism they achieve the opt out, as it all seem very vague. A very helpful and prompt response explained that a change has been made to the access conditions of my record in System One (the monolithic care record system) such that it can't be used for this purpose.
All of which is great. But this scheme should clearly be on an opt in basis.
Re: NHS patient data to be made available for sale to drug and insurance firms
#7"The extracted information will contain NHS numbers, date of birth, postcode, ethnicity and gender." Yikes! Date of birth AND postcode? Pseudoanonymous that is not.
Indeed (for info, for those based elsewhere, a UK postcode covers about 15 households on average).
Re: NHS patient data to be made available for sale to drug and insurance firms
#8It's worth noting that this appears to only affect NHS England.
Re: NHS patient data to be made available for sale to drug and insurance firms
#9Long article without the one piece of information I wanted: How to opt out. Edit: http://medconfidential.org/how-to-opt-out/
9th paragraph: " unless people choose to opt out via their family doctor "
That's both useless and inconvenient. Their site even says a doctor might not actually do it, and having the optout so hidden in that way would violate the spirit of not the letter of the Data Protection Act. It's also a huge waste of time and money on the NHS, which is already expensive and overstretched.