If you think that's dumb, here are a couple of petitions you can sign:
http://www.change.org/petitions/fda-administrator-margaret-h...
https://petitions.whitehouse.gov/petition/overrule-fdas-deci...
23andme has suspended health-related genetic tests
11–20 of 68 posts
Re: 23andme has suspended health-related genetic tests
#12I bought 23andMe ages ago and haven't sent in my test yet. Because I purchased it quite a while ago, will I still be able to get all the info? If not, I'm gonna be pretty disappointed.
Re: 23andme has suspended health-related genetic tests
#13I bought 23andMe ages ago and haven't sent in my test yet. Because I purchased it quite a while ago, will I still be able to get all the info? If not, I'm gonna be pretty disappointed.
Yeah, you should be OK.
Re: 23andme has suspended health-related genetic tests
#14This seems to be the nuclear option. As a (now fortunate) previous purchaser of 23andme, I still have my health information. The information is really valuable, and considering the price ($99!) it is cheaper than a lot of standard medical exams and bloodwork. Obviously not a replacement for any of those things, but it's amazing they can offer DNA health results for so little. The FDA seems to be mostly concerned that…
Is there any way to export all existing test results and not just the raw data?
Re: 23andme has suspended health-related genetic tests
#15Government, once again, deciding they know what is best for you. I really hope people are paying attention and vote with their intelligence during the next several elections. We need less government. Everywhere. Not more.
Re: 23andme has suspended health-related genetic tests
#16Earlier quoted context omitted.
Their interpretations were based on poorly proven associations between genes and disease-outcomes. I bet with the info you could look up on wikipedia/google scholar much of what you needed to know. But it depends on the format of this data dump.
No, that is pure FUD. 23andme provides a confidence assessment for the associations and risks. Here is a screenshot from their site: https://dl.dropboxusercontent.com/u/49805/confidence.png
And no one has problems with their privacy policy?
Re: 23andme has suspended health-related genetic tests
#17This seems to be the nuclear option. As a (now fortunate) previous purchaser of 23andme, I still have my health information. The information is really valuable, and considering the price ($99!) it is cheaper than a lot of standard medical exams and bloodwork. Obviously not a replacement for any of those things, but it's amazing they can offer DNA health results for so little. The FDA seems to be mostly concerned that…
Is there any way to export all existing test results and not just the raw data?
Yes, in PDF form: https://www.23andme.com/user/report/health/
Re: 23andme has suspended health-related genetic tests
#18Since they are discontinuing their interpretation of the data, they should just open source the interpretation engine and dataset. People still have to pay the $99 for the tests to get the data to interpret, so it wouldn't harm their business. It would keep their service out of the FDA's crosshairs, while keeping the service as useful as ever. In fact, it would likely improve it over what it will become with this latest development.
Re: 23andme has suspended health-related genetic tests
#19Earlier quoted context omitted.
No, that is pure FUD. 23andme provides a confidence assessment for the associations and risks. Here is a screenshot from their site: https://dl.dropboxusercontent.com/u/49805/confidence.png
And no one has problems with their privacy policy?
Your DNA is pretty much public domain anyway. You drop tons of it all over the place.
Re: 23andme has suspended health-related genetic tests
#20This seems to be the nuclear option. As a (now fortunate) previous purchaser of 23andme, I still have my health information. The information is really valuable, and considering the price ($99!) it is cheaper than a lot of standard medical exams and bloodwork. Obviously not a replacement for any of those things, but it's amazing they can offer DNA health results for so little. The FDA seems to be mostly concerned that…
I don't see how the results could be harmful or negative. My highest risk item was a 54% chance of Type 2 Diabetes. It's interesting information, but I'm not making any huge life decisions based on it..