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23andme has suspended health-related genetic tests

23andme.com

1–10 of 68 posts

Re: 23andme has suspended health-related genetic tests

#3

Well this sucks. I was going to pay for the test this weekend. Anyone have any idea how useful the health data is without the 23andme interpretation? I'm guessing it will be basically useless.

Their interpretations were based on poorly proven associations between genes and disease-outcomes. I bet with the info you could look up on wikipedia/google scholar much of what you needed to know. But it depends on the format of this data dump.

Re: 23andme has suspended health-related genetic tests

#4

Well this sucks. I was going to pay for the test this weekend. Anyone have any idea how useful the health data is without the 23andme interpretation? I'm guessing it will be basically useless.

Since they're still going to provide the data to new users, I wonder if some of their interpretations could be recreated and published by existing users who still have access to the interpretations.

Re: 23andme has suspended health-related genetic tests

#5
post #3

Well this sucks. I was going to pay for the test this weekend. Anyone have any idea how useful the health data is without the 23andme interpretation? I'm guessing it will be basically useless.

Their interpretations were based on poorly proven associations between genes and disease-outcomes. I bet with the info you could look up on wikipedia/google scholar much of what you needed to know. But it depends on the format of this data dump.

No, that is pure FUD. 23andme provides a confidence assessment for the associations and risks. Here is a screenshot from their site: https://dl.dropboxusercontent.com/u/49805/confidence.png

Re: 23andme has suspended health-related genetic tests

#6

Well this sucks. I was going to pay for the test this weekend. Anyone have any idea how useful the health data is without the 23andme interpretation? I'm guessing it will be basically useless.

You can get the basically same report running Promethease on 23andMe data dump. There is a website even providing automatic 23andMe data import using 23andMe's API.

Re: 23andme has suspended health-related genetic tests

#7

Well this sucks. I was going to pay for the test this weekend. Anyone have any idea how useful the health data is without the 23andme interpretation? I'm guessing it will be basically useless.

You can run the raw data through a 3rd party tool like Promethease (http://snpedia.com/index.php/Promethease) while you wait for the FDA kerfuffle to work itself out. YMMV though.

Re: 23andme has suspended health-related genetic tests

#8
This seems to be the nuclear option. As a (now fortunate) previous purchaser of 23andme, I still have my health information. The information is really valuable, and considering the price ($99!) it is cheaper than a lot of standard medical exams and bloodwork. Obviously not a replacement for any of those things, but it's amazing they can offer DNA health results for so little.

The FDA seems to be mostly concerned that the results of 23andme could be misinterpreted, or wrong. As far as I am aware, 23andme was advertising the health assessment as the first step in prevention - not a one stop shop for diagnosis. I am not very impressed with the FDA.

Re: 23andme has suspended health-related genetic tests

#9

Well this sucks. I was going to pay for the test this weekend. Anyone have any idea how useful the health data is without the 23andme interpretation? I'm guessing it will be basically useless.

Since they're still going to provide the data to new users, I wonder if some of their interpretations could be recreated and published by existing users who still have access to the interpretations.

Yes, for the mendelian ones that can be inferred in a relatively straightforward way from the raw data. Not really, for the more complicated risk assessments.

Re: 23andme has suspended health-related genetic tests

#10
post #8

This seems to be the nuclear option. As a (now fortunate) previous purchaser of 23andme, I still have my health information. The information is really valuable, and considering the price ($99!) it is cheaper than a lot of standard medical exams and bloodwork. Obviously not a replacement for any of those things, but it's amazing they can offer DNA health results for so little. The FDA seems to be mostly concerned that…

I agree. Trying noninvasive but inaccurate tests before accurate but invasive tests is just par for the course. 23andMe is certainly noninvasive, and as far as I can tell more accurate than most such preliminary tests.
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