21–30 of 48 posts
So the insurance company gets the genetic report.
And your child happens to be born with a disease that was noted with a 25% chance of occurrence.
Will your insurance balk at paying your child's health bills? Oh, who knows...
So it costs $99 if your insurance pays for it. So the insurance company gets the genetic report. And your child happens to be born with a disease that was noted with a 25% chance of occurrence. Will your insurance balk at paying your child's health bills? Oh, who knows...
Earlier quoted context omitted.
Your statement about privacy is already suspect since your opening comment talks about sharing that data. The two are mutually exclusive. As soon as your system is sharing, rather than me sharing I have no privacy.
It depends on the level of 'sharing.' If it's just statistics (e.g. 10% of people that use our service have discovered X disease), then I don't know how much of your privacy is pierced.
If my spouse and I do the tests and find out there's a 25% chance our child will have a particular health problem, what are we supposed to do about it? Adopt? Roll the dice anyhow?
In the article, there's a couple that did the test then decided to do in vitro fertilization (IVF), but I don't see how that helps. It seems to me that any offspring that arise from IVF are going to have the same probability of having the health problem. What am I missing?
There's something I'm not understanding here: If my spouse and I do the tests and find out there's a 25% chance our child will have a particular health problem, what are we supposed to do about it? Adopt? Roll the dice anyhow? In the article, there's a couple that did the test then decided to do in vitro fertilization (IVF), but I don't see how that helps. It seems to me that any offspring that arise from IVF are goi…
There's something I'm not understanding here: If my spouse and I do the tests and find out there's a 25% chance our child will have a particular health problem, what are we supposed to do about it? Adopt? Roll the dice anyhow? In the article, there's a couple that did the test then decided to do in vitro fertilization (IVF), but I don't see how that helps. It seems to me that any offspring that arise from IVF are goi…
* IVF-PGD (like the couple in the article): http://en.wikipedia.org/wiki/Preimplantation_genetic_diagnos...
* Use a donor egg or sperm
* Adoption
* For certain diseases like phenylketonuria, which are not life-threatening if certain dietary restrictions are followed, the pregnancy can proceed as normal but the baby can't be fed anything with phenylalanine in it.
Earlier quoted context omitted.
Your statement about privacy is already suspect since your opening comment talks about sharing that data. The two are mutually exclusive. As soon as your system is sharing, rather than me sharing I have no privacy.
It depends on the level of 'sharing.' If it's just statistics (e.g. 10% of people that use our service have discovered X disease), then I don't know how much of your privacy is pierced.
10% of people who used service discovered they have BrandonWirtz's Disease.
Requirements: Male. Primarily Caucasion as primarily limited to Arian Descent. Symptoms onset at 55. Not symptomatic for those with BMI under 22.
With this information I can take the 100% and cut the list to 50% that are male. 50% that are caucasion. (25%) Would have already know if they were over 55 so we cut another 25% Strip last names for ones that would not be of the right heritage. Suddenly the eligible candidates are only 12% of the total. I know that 80% of those are the people on that list.
That's how mining works.
You can't share data anonymously becuase each facet of data allows me more information to piece things together.
Sharing has to be opt in. But if it is opt in then it is no longer statiscitally relevant. Because just as an example. People are going to be less apt to share data if they have a disease associated with a stigma. Which will skew the results.
[Brandon Wirtz's Disease is an imaginary disease used for demonstration only. I don't have any genes shared with other humans as I am from another planet.]
Also, if you are an engineer and are approached to join the team, give it every consideration. Those guys are so smart it's scary. Learning how microfluidic assays work was one of the coolest things I'd seen in a long time.
I had a lovely 2-3 month contract with Counsyl last year to help them build some internal systems. I have to say that they really have their stuff together and working with the team was a lot of fun. I've mostly had to stay silent the last year about what they're doing due to NDA and such, and won't say much here, but I HIGHLY recommend anyone looking to have kids consider going through Counsyl's program. Also, if yo…
Earlier quoted context omitted.
It depends on the level of 'sharing.' If it's just statistics (e.g. 10% of people that use our service have discovered X disease), then I don't know how much of your privacy is pierced.
I do data mining. Ready here we go. 10% of people who used service discovered they have BrandonWirtz's Disease. Requirements: Male. Primarily Caucasion as primarily limited to Arian Descent. Symptoms onset at 55. Not symptomatic for those with BMI under 22. With this information I can take the 100% and cut the list to 50% that are male. 50% that are caucasion. (25%) Would have already know if they were over 55 so we…