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US healthcare marketplaces shared citizenship and race data with ad tech giants

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Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#71
post #23

Earlier quoted context omitted.

What's the point of this kind of comment? Have pro-citizen anti-corporate laws never been passed in the past?

Only when Congress might be embarrassed. The VPPA exists so we can't find out what videos they watch in their spare time between orgies.

So it should be as easy as buying tracking data and searching for Congressmen. We can put up license plate readers around Washington too, since that's legal.

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#72

It should be illegal to send the data, and illegal to accept it; burn both sides of that bridge.

At least make it an explicitly protected right to lie about your race in any context. It's a lot easier to ruin a dataset than it is to hide from it.

Yes, but does anyone treat it as ruined, or do you get targeted for both/all races?

If someone targets black people, you're on that list; if someone targets white people, you're also on that list!

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#73
post #58

I’m more annoyed that these government healthcare marketplaces are asking people their race in the first place. Really don’t think anything should be, including job applications.

do they ask about pre existing conditions? then prbly race also makes sense.

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#75
post #54

The richest tech companies and richest men in the world got rich by invading people's privacy and selling invasive ads.

They got rich because people were stupid enough to think free services come without a cost.

People prefer to pay with tracking data instead of money because they have lots of tracking data and not much money.

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#76

Earlier quoted context omitted.

At least make it an explicitly protected right to lie about your race in any context. It's a lot easier to ruin a dataset than it is to hide from it.

Yes, but does anyone treat it as ruined, or do you get targeted for both/all races? If someone targets black people, you're on that list; if someone targets white people, you're also on that list!

It's a two way street. The companies doing the targeting lose money if their models are inaccurate.

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#77

[flagged]

Is it that incomprehensible that you might want to limit healthcare offerings to lawful residents only, or that the government might track metadata about how services are doing so, regardless of how they choose to take action on it?

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#78
post #42

Earlier quoted context omitted.

The second “P” in HIPAA stands for “Privacy”

I wonder if that's why so many people write it as HIPPA.

That's because it's very similar to the name of an animal which is not called a hipoo.

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#79

Earlier quoted context omitted.

I wouldn't be surprised if both are illegal. But these days, the correlation between "X is illegal" and "larger org's do not do X" just ain't what it yousta be.

My understanding is that it's legal with opt-in, but the opt-in is allowed to be confusing, opaque, and sticky, so most people "consent" without informed consideration. We really need to revisit contract law in a modern context. Call me crazy but I don't think it's reasonable that our society operates in such a way that easily 90+% of people are subject to contract terms they signed but don't know or understand.

On top of the GDPR/American concept of "it is all OK if there is consent" which applies to most organization, health related organizations face stronger HIPPA regulations in the US.

Re: US healthcare marketplaces shared citizenship and race data with ad tech giants

#80

Earlier quoted context omitted.

HIPAA applies to healthcare professionals and providers, not ad tech companies. And race and citizenship are not personal health-related data.

That's not actually true. It applies to health care data. If you're a software engineer making a system that includes HIPAA-protected data, you can face individual criminal liabilities for mishandling the data.

No, not really. If you are not a covered healthcare entity, or a business association of a covered healthcare entity, the law simply does not apply to you at all.

Also, I believe (but am not certain) that if there was any criminal case, it would be leadership (C*O) not individual software engineers who would be charged. This is speculation on my part, if anybody has clear facts I'm happy to hear them.

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