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UK Biobank leak: Health details of 500k people offered for sale on Alibaba

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31–40 of 94 posts

Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba

#31

Earlier quoted context omitted.

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I pay for some good quality news and the quality and the lack of native advertising is worth it.

Unfortunately that is almost never enough. If your competition is populist media financed by state-level/billionaire agendas, it is impossible to compete in the long term. We would need a complete and general ban on political financing across all media to sustain such a market.

Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba

#32
post #9

"Access this article for 1 day for: £50 / $60/ €56 (excludes VAT)" Man, the scientific publishing cartel is something else. Note that author will generally get exactly £0 / $0 / €0 for his text.

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I guess you can't imagine a free, open democratic state with rule of law either. Because when broad, independent, quality journalism with a wide audience is gone, all you'll have to worry about is that poor cat in a tree in Ottawa.

Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba

#36
post #17

Earlier quoted context omitted.

Buy a desktop sequencer? https://nanoporetech.com/products/sequence/minion

I have the same sentiment as OP, but for me the main benefit of a company doing it is the analysis that comes with it.

If we are censoring our daily activities and major life decisions like healthcare due to the data economy, then it is making us less free. But who knows how many generations will pass before a solution shows up. We would need representatives who act collectively towards motives beyond profits.

Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba

#40
post #21

That kind of data should be public anyways.

Yeah, as long as all 500,000 people in the data set agreed for it to be public then thats fine. But how do we verify that?

They're on the list, their information is out there. Isn't that what 'opt in' means?
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