Tinnitus Is Connected to Sleep

> silence isn't silent

Blindness isn’t “no sight” or pitch black, there’s visual snow.

If you pay attention, you can always feel your muscles/joints. Sometimes I smell burnt popcorn, but not usually, but maybe that’s because smell is always present. Similarly always taste saliva.

Also see sensory deprivation experiments. We don’t seem able to experience “absence of sensation”.

I first got it in 2015 after playing Fallout 4 almost nonstop for the entire weekend. The game ran poorly and the low stuttery fps caused a massive migraine in my head. I took Tylenol and went to sleep and woke up with it ringing in one of my ears which eventually moved to both. The doctors were pretty useless and said they couldn't see anything wrong and to just live with it.

My brain eventually figured out how to tune it out and now it associates the sound with silence.

Now I've developed it again after feeling depressed and blasting music in my car. The new version crackles and alternates tones in my left ear. I have a doctors appointment coming up to hopefully figure it out.

There is a new expensive treatment for it called Lenore which works by playing sounds and stimulating your tongue at the same time. Those pathways are located close together in the brain and by stimulating both at the same time, it's supposed to train it to filter out the noise.

I also have been suffering from tinnitus a little over a year now. It definitely has impacted my sleep, especially my mornings. It's the first thing I think about when I wake up.

I've been following the work of Auricle Inc., a company commercializing decades of neuroscience research out of Dr. Susan Shore's lab at the University of Michigan. (Full disclosure: I have spoken to their CEO about potentially helping with their funding, although my primary concern is getting their product to the public).

Instead of just masking the sound, their device targets the root cause using bimodal neuromodulation. It pairs specific audio tones with mild electrical pulses to the jaw/neck to desynchronize hyperactive neurons in the dorsal cochlear nucleus.

Here are the two papers that cover the underlying science, and go over the efficacy:

The foundational mechanism and Phase 1 trial showing how it induces long-term depression (LTD) in the brain circuitry: https://www.science.org/doi/10.1126/scitranslmed.aal3175

The Phase 2 double-blind, randomized clinical trial results showing significant reductions in tinnitus loudness and burden: https://jamanetwork.com/journals/jamanetworkopen/fullarticle...

I’ve been using my tinnitus to evaluate whether I got enough sleep or when I’ve become tired for years, so it’s nice to randomly trip over validation here that the link is universal to and not just a hyperlocal mutation. Thanks for posting this.

I suppose I wouldn’t have noticed this if I was trying to tune out tinnitus, but I’m just used to it? Not like anything is every quiet (my hearing is hyperactive), but, like, the tone and volume of it right now is “insufficient sleep but circadian forced us awake” so I need to be particularly measured and chill if I drive while it’s this loud.

Fellow tinnitus haver here.

The worst thing you can do is fixate on it. To avoid that, you want to make it so that you never hear it. Play some noise whenever you need it especially when sleeping. Then, over time, learn to accept it. And then the craziest thing happens: it does actually get better. You don’t just get used to it, it actually improves. It’s a profound connection of mind and body.