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My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

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Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#111
post #10

You can blame the schools for misdiagnosing ADHD, and you can blame them for a poor IEP, but you can't blame them for a child not having a normal life due to one of the most tragic diseases known to man. Schizophrenia is not the kind of disease you can treat with an IEP, and it sounds like the author's son fell out of the system from a very young age. Trying to blame anything but genetics and development for his son'…

> The author is wrong, and I'm sorry for that, but it's very unlikely that his son would have ever been a contributing member of society. Schizophrenia is a severe mental disease that cannot be treated like a 'special need.'

I have met very many people with a diagnosis of schizophrenia. Some of those people were drug users (or had been drug users); some of those people were "forensic" patients and were being held in secure hospitals; some of those people were in the community, on medication, with full time work.

Schizophrenia is a complex illness that expresses in a wide range of behaviours, and a broad depth of severities of behaviours. One person may hear a few voices, but be able to cope well with those voices, while another people may hear more voices which are very threatening and hard to cope with.

Please, I understand what you're saying. (Some people with schizophrenia are very ill, and will need extensive support just to avoid homelessness) but I find your comment a bit stigmatising. Many people with schizophrenia do work; not all of them work full time paid employment but it's certainly possible for someone with a diagnosis of schizophrenia to lead a full and productive life.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#112
One of the major problems that I've seen first hand with mental illness is that the diagnosis is so subjective and often times relies on accounts of the patient and family. If you have family who don't know what to look for or the patient doesn't know how to explain it or is under the duress of the illness at the time, you run the chance of misdiagnosis.

This happened to me. My senior year of high school I had a "breakdown" of sorts. I was suspended from school until I saw a mental health professional. After the first visit, I was diagnosed with Bipolar disorder and given meds to treat it. After awhile, the diagnosis changed to Schizo-affective disorder and more drugs were added to help. Finally, I was diagnosed with epilepsy and told that the mental health diagnosis were wrong since epilepsy can cause both depression and hallucinations if untreated.

I shared my story for a few reasons. One the brain is complex and there can be many factors that causes symptoms. If mental health professionals can't get it right, there is no way to expect teachers or school administrators to get it right. I was lucky and had phenomenal insurance at the time that I went through that ordeal. Because of that, I was able to get tests and scans that I know others wouldn't not be able to afford. I fortunate enough to have a parent who could afford for me to get a SPECT scan which is (or was) considered cutting edge and would not be covered under insurance. That was what helped the neuro-psychiatrist realize that I have epilepsy and not a mental illness. Many people can't afford these things. Had I not had that scan, I would still probably be taking 20 pills a day and having to wake up early to take Adderall so that I'm able to physically wake up in time to be functional and the worst part is, that would be all for naught. It wouldn't help me since I don't have any problems.

There is so much wrong with the mental health system (at least in the US) that it really makes me sad. You start at the education level (such as the article talks about) but then when you move to insurance, so much isn't covered that it becomes either pay out of pocket or just let the individual suffer.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#113
post #25

Some problems just don't have good solutions. We're so used to political debates where the Republicans say "less regulation will solve X", the Democrats say "more spending will solve X", the libertarians say "X is none of the government's business", and each suggests that things will go swimmingly under their preferred way of attacking the problem. Some things, though, just suck. Schizophrenia is one of those things.…

I think this is too fatalistic. This sets the bar far too low -- you could substitute poverty or crime in here without substantially altering the meaning. No, you cannot "cure" it or "fix" it, but the alternative isn't "do nothing." That's a false dichotomy. At a minimum you can look for ways mitigate the impact it has on our society. See the pieces elsewhere in this thread which discuss the cost to our society incur…

Not so much...the fatalism here is not unwarrented.

If I give a pauper a million dollars, they are no longer a pauper--foolish noveau riche, perhaps, but not a pauper.

If I repeal laws pertaining to various things, drugs for example, a great many criminals cease to be so.

Mental illness, unfortunately, tends to stay with the person.

:(

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#114

Author's first impulse is to look to the state for the care of his child. WRONG!!!! YOU and your family are the primary folks responsible for this kid. Your wife had about the same chance of success as any set of teachers or state gov't goons but with much more incentives. What the hell was she doing? (probably getting her 'career' on - woo hoo!) Why are ppl so apt to think that state employees are miracle workers? C…

My state provides extensive education and training to some people, so they can become doctors.

My state provides hospitals and funding for treatment.

Imagine a person with full thickness burns to 75% of their body - "Why are ppl so apt to think that state employees are miracle workers?" - because they've been educated, trained, and provisioned to provide the help that other people need.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#115
post #78

Earlier quoted context omitted.

"The author is wrong, and I'm sorry for that, but it's very unlikely that his son would have ever been a contributing member of society." In many less developed countries people with schizophrenia have better outcomes. It's only in the US where the condition is usually debilitating for life, because: A) The US healthcare system relies on longterm use of anti-psychotic medication as the main form of treatment, which t…

Can you elaborate? Are you saying in other countries the family/extended family generally care for the individual? Why are they more likely to hold down a job?

In the UK we have something called the Sainsbury Centre for Mental Health.

They provide evidence based advice. They've provided some advice about getting people with mental health problems who are claiming incapacity benefits off benefits and back into work.

The traditional response is a long slow curve; don't rush anything; work is stressful; start with a bit of part time voluntary work; build that up; there aren't enough jobs around anyway and no-ones going to employ mentally ill people and the stress of rejection is harmful. They also used to have a stock of low grade jobs (shelf filling at supermarkets) so when people turned up they'd get kludged into whatever was available.

The evidence shows that many people actually want to be much more active. We now have strong anti-discrimination laws. And "place then train" (get someone a job that they want, then support them to keep that job) is much more effective. If someone is a good employee an employer probably wants to keep them on, and if there's funding available to make reasonable adjustments then letting them know is good.

Here's a list of the Sainsbury Centre publications

(http://www.centreformentalhealth.org.uk/publications/publica...)

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#116
post #10

You can blame the schools for misdiagnosing ADHD, and you can blame them for a poor IEP, but you can't blame them for a child not having a normal life due to one of the most tragic diseases known to man. Schizophrenia is not the kind of disease you can treat with an IEP, and it sounds like the author's son fell out of the system from a very young age. Trying to blame anything but genetics and development for his son'…

Schizophrenia is a severe mental disease that can absolutely be treated with a comprehensive treatment plan, including medication and psychosocial interventions (including an IEP). I didn't think the author was stating that his son wouldn't have schizophrenia if the schools had done better. I think he was saying that his son would have a better outcome with his chronic severe mental illness if various government agen…

It can be treated if you're in the lucky few who happen to have medication work for them and are able to tolerate the side effects (glad I fall into this category). Treatment's by no means guaranteed to work.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#117
This is quite a personal story and It's not near this level but I grew up with a parent with Schizophrenia and still am.

I'm 18 and currently live alone with this parent and am moving out soon as I work on my company. The situation is fine (for me) because there are few things to set them off these days and I've just had to learn how to deal with many of the disturbances. Like paranoia of me (What I talk about to others), using certain words in relation to illness like saying something is "mental" or even how are you. The illness only pops up at certain times. People wouldn't know they are ill from speaking to them, most of the time. It's 10X better than it was when I was much younger and lived with both of my parents.

I won't go into detail out of respect to my family but their illness has broke up their marriage (Although sometimes couples don't work) and now they refuse to take any medicine or see anyone. Because they aren't anymore at the level that they are forced into treatment there's nothing that can be done.

What I've learned from this is most policy on mental illness is under the assertion that if the person is at extreme harm to themselves or the public, they require treatment. If this isn't the case and the person refuses to believe they are ill or that they need treatment, little is done.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#118
post #38

Earlier quoted context omitted.

Hmmm let me try… Psychedelics -> Social rejection MDMA -> Problems with parents Weed -> Infantilism Alcohol -> low IQ NOTE: they are not absolute (e.g IQ below average), but relative to what would make that particular individual comfortable given the life challenges he deals with at the time.

Alcohol abuse has actually been correlated with High IQ and is most commonly abused by this group because of the despair they see in the world due to their high IQ's. Essentially, because they tend to be more educated, and aware of global problems that makes them depressed.

That sounds like an urban legend.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#119
post #106
post #93

Earlier quoted context omitted.

This research paper seems to suggest that at least alcohol does: http://www.dartmouth.edu/~dcare/pdfs/fp/GreenAlan-Alcoholand... Even if Alcohol doesn't specifically make schizophrenia worse, alcohol abuse is the most common comorbid disorder of schizophrenics and generally exacerbates all mental health problems to some extent.

Thanks, interesting... though the opening line does seem to suggest marijuana use remains especially linked with schizophrenia -- in prevalence at least: Alcohol use disorder, which is three times more common in patients with schizophrenia than in the general population, and cannabis use disorder, which is up to 10 times more common, both contribute to the morbidity of schizophrenia, through increased relapse, noncom…

As far as I've read, and I read whatever I can, there's still no evidence one way or another about which causes which.

Does cannabis have a causitive or trigger effect on schizophrenia? Or are schizophrenics more likely to live on the fringes of society and encounter (and like) cannabis?

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#120
post #111
post #10

You can blame the schools for misdiagnosing ADHD, and you can blame them for a poor IEP, but you can't blame them for a child not having a normal life due to one of the most tragic diseases known to man. Schizophrenia is not the kind of disease you can treat with an IEP, and it sounds like the author's son fell out of the system from a very young age. Trying to blame anything but genetics and development for his son'…

> The author is wrong, and I'm sorry for that, but it's very unlikely that his son would have ever been a contributing member of society. Schizophrenia is a severe mental disease that cannot be treated like a 'special need.' I have met very many people with a diagnosis of schizophrenia. Some of those people were drug users (or had been drug users); some of those people were "forensic" patients and were being held in…

All of what you said is true but this guy's son hsd early onset schizophrenia. The prognosis for late onset is really bad but for late onset it's terrible. Most schizophrenics are not capable of a full and productive life unless medicated and many, many people fail to keep up their treatment regimen because the drugs are hell for many too.
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