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My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

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Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#21
post #3

My old eyes cannot handle very very long lines of very small type, and after several tries I was not able to guess the URL for the story in human friendly form. Please submit links for humans, not machines. Add the machine link in a comment if you wish. PS: I'm aware of Readability and the ability to increase font sizes. There are other problems in general with print links that those do not address: • Print links gen…

Consider using a bookmarklet like this for an instantly-improved reading experience. http://peg.gd/2Ix

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#22
post #14
post #2

"Every year, one in every five children and one in every four adults has a diagnosable mental illness. A quarter of all mental illnesses are considered serious." 1/16 adults having a serious mental illness seemed awfully high to me, but I went and looked it up and that may actually be low-balling it: http://www.nimh.nih.gov/health/publications/the-numbers-coun...

I don't really like the term 'mental illness', not so much because of the stigma attached to it, but because the term implies there is some 'normal' from which only a small subsection of the population deviates. In reality, there is no 'normal'. There is no one person with perfect mental health; perfect clarity of thought, perception, of feeling and action. Everyone, to put things bluntly, is a little fucked up. Thus…

This has long been my opinion.

I worked with kids at a YMCA in a wealthy area, I would say 50% of them were diagnosed ADHD. I think if it's 50%, then it's just normal. 50 years ago ADHD was normal--we hadn't set our bar there yet.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#23
This is a tough story of a state legislator who became an adoptive father finding out that policies that he thought were humane reforms didn't end up helping people in this generation like his adoptive son. Some of my perspective on these issues comes from knowing Irving Gottesman,

http://en.wikipedia.org/wiki/Irving_Gottesman

who was credited as the main adviser on schizophrenia relied on by the author of the book A Beautiful Mind. Gottesman has spent much of his career researching schizophrenia and debunking former theories about the origin of schizophrenia. Twin studies, especially studies of the unusual cases of monozygotic twins reared apart, and adoption studies have consistently shown that schizophrenia develops from an underlying genetic vulnerability (probably varying greatly from patient to patient, according to the best evidence from genome-wide association studies) that makes a patient all too likely to develop full psychotic symptoms over the course of childhood without careful treatment. Gottesman's research goal is to define "endophenotypes" that can be reliably measured clinically to identify patients who need one kind of preventive or supportive treatment rather than another. But we are nowhere near identifying endophenotypes for any major mental illness.

"Self-medicating with marijuana, Tim’s drug of choice for lowering the volume of the voices in his head, got him suspended from the first high school he attended — a public, vocational-technical school in Middletown, Conn. — and placed on court-ordered probation." We do know that young people whose family history suggests genetic risk for major mental illness (which might not be known for a particular adopted child) are playing with fire if they take schedule I drugs without medical supervision. Many of the worst outcomes found in families in which some relatives become mentally ill and some do not are among the persons who "self-medicate" (that is, abuse drugs) rather than reduce risk of perturbing their brain chemistry.

"If I were a legislator today, I’d mandate — and provide funding to ensure — that every teacher receive training in recognizing symptoms of mental illnesses."

Teacher who are credentialed to teach elementary school receive specific training in how to teach reading, and receive specific training in how to teach elementary mathematics, but mostly do a remarkably poor job in those important tasks anyway. There are not today any reliable lists of early symptoms of mental illnesses to guide an adult who sees young children as to who will develop severe mental illness in adulthood. Diagnostic criteria for psychology and psychiatry are not that well developed yet, and communicating criteria for best practice to future teachers in schools of education or to in-service teachers through in-service training programs is already a vexing problem in reading instruction and mathematics instruction.

"I’d see that pediatricians are trained to make screening for mental health concerns a regular part of well-child exams."

I think some of that is already done today. At least, my four children certainly seemed to be asked routine questions in well-child pediatrician visits that could raise red flags on the basis of certain answers to those questions. Again, there simply aren't that many effective early screening tools for mental illness today of any kind. One of the best tools for identifying people at highest risk for developing mental illness is to know the complete medical history of their nearest relatives--but that is the hardest tool to use for some adopted children.

"I’d require school administrators to incorporate recommendations from pediatricians and mental health professionals into students’ IEPs."

What I hear from parents whose children have IEPs (individual education plans, under federal law about special education) is that it is often annoyingly difficult to get a school to follow an IEP, even though that is mandatory by law. It is the parents's responsibility, in the first instance, to make sure that all relevant information is provided to the professionals who work with the parents in drafting the IEP. The parents have to push back if the IEP isn't drafted helpfully at first, and they have to keep an eye on whether or not the school implements the IEP.

All in all, this sad story is a good reminder that EVERY parent, and maybe especially an adoptive parent, needs to be cautious about reducing risk of future harm for all children in the parent's care. The author's description of his situation makes his situation sound very rough. He surely hoped that his son would be living independently and thriving by the son's current adult age. What I've learned about parenting after two decades is that parenting never completely ends. Launching a child into self-sufficient adulthood is wonderful. (I have done that once so far.) But there will always be scary issues for parents to watch out for that they have to take care of themselves.

AFTER EDIT: Several comments below this comment talk about the risk of drug abuse for persons who have underlying vulnerabilities to mental illness. I agree with the suggestion that alcohol (legal for all adults) is surely dangerous in such cases and perhaps tobacco (also legal for all adults) is too. But I will remind all readers here that marijuana was specifically mentioned as the now homeless person's "drug of choice" in the submitted article, and marijuana alone, plus the genetic vulnerabilities, is enough to turn some formerly productive young people out on the street unable to support themselves. (It was probably observations of situations like this decades ago that helped convince legislators to change marijuana's legal status from permitted to largely banned. The article submitted here makes the correct point that sometimes legislation has unintended consequences, and perhaps the "drug war" is ineffective policy for reducing the harm that mind-altering drugs cause individuals and society.) Richard Branson has argued that Portugal's different pattern of regulating drugs has reduced drug use and has reduced various social harms from drugs that are Schedule I drugs here in the United States.

But that said, I will stand by my statement "We do know that young people whose family history suggests genetic risk for major mental illness (which might not be known for a particular adopted child) are playing with fire if they take schedule I drugs without medical supervision. Many of the worst outcomes found in families in which some relatives become mentally ill and some do not are among the persons who "self-medicate" (that is, abuse drugs) rather than reduce risk of perturbing their brain chemistry" because it is a factually correct statement. I don't know of any physician who regularly treats psychotic patients in emergency rooms who recommends that young people with family history medical risk for psychosis use marijuana. That is a distinctly bad idea.

ONE MORE EDIT:

I shared the article submitted here among my Facebook friends, and one thoughtful friend suggested the article, from the same newspaper in 2005, "Social Network's Healing Power Is Borne Out in Poorer Nations"

http://www.washingtonpost.com/wp-dyn/content/article/2005/06...

as an interesting contrast to the situation described in today's article. There is some good back and forth among experts on schizophrenia in different countries in the previous article. Diseases influencing human behavior often manifest differently in different cultures.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#24

Earlier quoted context omitted.

When you consider that (probably) most of the people who exhibit serious substance abuse problems are self-medicating, the numbers aren't difficult to digest. (I say this not as somebody with studies in hand, but as a person who's been clean and sober for more than a quarter-century, and who has significant experience dealing with other addicts and alcoholics. One can make pretty reliable predictions about underlying…

What underlying issues do you see with someone who takes psychedelics (shrooms, LSD, DMT, etc)?

It isn't about just trying them, it is about using them to medicate or escape other symptoms.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#25
Some problems just don't have good solutions.

We're so used to political debates where the Republicans say "less regulation will solve X", the Democrats say "more spending will solve X", the libertarians say "X is none of the government's business", and each suggests that things will go swimmingly under their preferred way of attacking the problem.

Some things, though, just suck.

Schizophrenia is one of those things. You can't cure it. You can't treat it very well. There's not much to be done.

Sometimes bad things happen to good people, and no amount of "training teachers" or "diagnosing diseases" or whatever will change that.

It's a tragedy.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#26
It's really sad that this isn't a priority in the United States. Somehow we have so little money for the government to pay for anything, that any possible solutions are either underfunded or written off completely. Overloaded case workers, run-down facilities, lack of facilities, lack of integrated programs, are just a few of the consequences.

It's an odd sort of poverty where all sorts of gadgets and innovations are commonplace, but where the marginalized in society still suffer through neglect and lack of funding for any viable solutions.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#27
What a timely article. Just today received a call from the school that my grade 3 son had thrown a girl to the ground threatening her. This was the second incident in a week. A team of councilors and mental health workers were called in as an emergency response team.

The similarities between the child in the article and my son are startling and scary.

Although we are still at the beginning of our story, I do believe that in my area in Canada, the system has gotten better. I can only hope that this continues and the system does not let him down like it did to the child in the article.

My son will be seeing a counselor and accessing services that were previously unavailable to us starting in 2 days. Thanks Hacker News, you are always so poignant.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#28
post #10

You can blame the schools for misdiagnosing ADHD, and you can blame them for a poor IEP, but you can't blame them for a child not having a normal life due to one of the most tragic diseases known to man. Schizophrenia is not the kind of disease you can treat with an IEP, and it sounds like the author's son fell out of the system from a very young age. Trying to blame anything but genetics and development for his son'…

> No, he isn't. The author is wrong.

How about partially wrong? Maybe it's more accurate to say "Tim is where he is today partially because of a host of health policy decisions..."

absolutes often lead to unnecessary, counterproductive arguments.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#29
post #10

You can blame the schools for misdiagnosing ADHD, and you can blame them for a poor IEP, but you can't blame them for a child not having a normal life due to one of the most tragic diseases known to man. Schizophrenia is not the kind of disease you can treat with an IEP, and it sounds like the author's son fell out of the system from a very young age. Trying to blame anything but genetics and development for his son'…

This fatalistic attitude isn't wrong, but it is manifestly unhelpful and surprisingly expensive. Being homeless is not a zero-cost alternative to real treatment; in many cases, the cost of lavish treatment is far lower than the cost of ER visits and criminal proceedings that would otherwise be incurred. I believe Malcolm Gladwell wrote an article about chronic homelessness a few years ago, about Denver rolling out a program to take some number of homeless folks and set them up in an apartment free of charge with on-site nursing 24/7, and it was saving the city millions just by keeping them out of the ER. I believe the program ultimately came under fire because of how essentially un-American such a system is, even when it makes both ethical and financial sense.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#30
post #19
post #10

You can blame the schools for misdiagnosing ADHD, and you can blame them for a poor IEP, but you can't blame them for a child not having a normal life due to one of the most tragic diseases known to man. Schizophrenia is not the kind of disease you can treat with an IEP, and it sounds like the author's son fell out of the system from a very young age. Trying to blame anything but genetics and development for his son'…

His son might not have been contributing, but having him homeless and bouncing in and out of jails is more expensive to society than appropriate institutional support. Furthermore one of the stated issues is his unwillingness to take antipsychotic medication, and one of the characteristic traits is that in a structured jail environment, where he's presumably receiving those medications, he is able to function well. T…

Anti-psychotic medication isn't like taking Tylenol. It can completely change a person's personality, and people have likened it to living in a fog.
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