141–150 of 273 posts
Considering 25-30% of autistic individuals suffer from hypermobility / Ehler Danlos [1], finding out this affects their gait makes sense. Interesting to have no mention of this in the current study though. [1] Autism in the context of joint hypermobility, hypermobility spectrum disorders, and Ehlers–Danlos syndromes: A systematic review and prevalence meta-analyses https://journals.sagepub.com/doi/10.1177/13623613251…
I am hesitant to post this because of JFK JR and ignoring with the politicians in power against ASD. Gait is not constant in the stride. It all depends on the footwear. The constant for me is being silent while walking. Be the ball of your feet or the heels. Having auditory issues / sensitive to sound, I walk to be silent and unheard. Walking and scaring wildlife and other humans was a personally taught process. I ca…
I'm sure everyone involved means well, but we are really starting to embrace a culture of defining "normal" down to some arbitrary amount that seems to have no floor. I'm all for making sure that effective treatments are made available to anyone they might help, but couldn't a lot of this be addressed society just...being tolerant of diversity in people? Gating everyone through "thrives in American High School" as a…
I tend to agree, as an autistic person. And a lot of autistic people hold the belief that, "My autism is not a problem, your expectations that I behave like you do are the problem." If I need to move a little differently, or not hold eye contact when I speak, the fact that I get made fun of is the problem. If we just accepted, "hey, some people are like that" more, I think we'd have a lot fewer problems.
This is to say that everyone is slightly different and a healthy dose of tolerance goes a long way. After all, some of your behaviour is probably annoying to others and you do not even realize it.
Earlier quoted context omitted.
I tend to agree, as an autistic person. And a lot of autistic people hold the belief that, "My autism is not a problem, your expectations that I behave like you do are the problem." If I need to move a little differently, or not hold eye contact when I speak, the fact that I get made fun of is the problem. If we just accepted, "hey, some people are like that" more, I think we'd have a lot fewer problems.
> If we just accepted, "hey, some people are like that" more, I think we'd have a lot fewer problems. This is how much of the world works. Johnny doesn't have autism, he's just really into trains. It would be incredibly rude to say much more.
I'd like to draw a parallel with disability. I don't think anyone in their right mind would express that they actively work against people with disabilities, and I'm sure most people would express support if asked directly. But this doesn't translate to actually accessible infrastructure and culture. That takes a lot of special work - and regulation actually, without which the work wouldn't have happened.
All this to say that intentions and expressions are a great first step, but there is much more to acceptance than that.
Earlier quoted context omitted.
High school is truly fun for maybe 15% of the students, is an utter nightmare for 15%, and has its moments but still generally sucks for everyone else.
maybe it's being 15 that sucks for 85%, and has nothing to do with high school at all.
Earlier quoted context omitted.
I tend to agree, as an autistic person. And a lot of autistic people hold the belief that, "My autism is not a problem, your expectations that I behave like you do are the problem." If I need to move a little differently, or not hold eye contact when I speak, the fact that I get made fun of is the problem. If we just accepted, "hey, some people are like that" more, I think we'd have a lot fewer problems.
Well said. I am not autistic personally but working in tech and being into field-associated hobbies, I have a much more autism-dense social circle than the average person. This was awkward for me at first because it felt like I was either constantly irritated or being irritating to others by following my standard learned social conventions. Once I changed my expectations to clarify and verify intent instead of derive…
"Normal" people (whatever that means) tend to forget things quite quickly, and for us it's really hard when states change and contracts change. Meaning that if e.g. in a discussion 3 months ago we casually agreed upon "I do task X and you do task Y" then this will be the assumed state for autistic people until the end of time, because that's what we agreed upon.
When other people at work communicate their feelings, have a bad day and don't want to do those things, or are just lazy about it... Then this is a breach of a social contract. And dealing with those breaches of social contracts without getting very defensive about it is a huge problem for a lot of autistic people I've spoken with. We tend to spiral quickly into a defensive argument that won't help either involved parties and it tends to escalate into a "mudfight" instead of a rational debate.
I just wish that a lot of therapy would help prepare you for these situations of misunderstood (or misagreed upon) situations more. You can compensate for them to a small degree, but they put a lot of stress and burden on us because it's quite a big deal if the state of assumptions changes without having a discussional part in it.
Additionally, talking in conversations about the assumed outcome first before you get into detail helps a lot. Do you need emotional support? Do you want to feel that we are together in this? Do you need a practical solution? Do you need a change in what we agreed upon?
This way we can prepare much easier for what's about to come in the following discussion, and we realize it's not about critique and rather about finding a mutual compromise that both parties are happy with.
Also don't use sayings like "you always do X" or "you never do X" in those conversations when it is not always, because autistic people tend to interpret these as accusations very quickly because to us they sound excessive and are huge trigger points, because they are essentially lies.
If you say instead something like "I feel like you do never X" or even better "I feel like I am alone doing X, can you help me more with it in the future?" we can realize that it's more about the perception and how to improve our contributions, because we can keep the discussion about the actual topic underneath which is "How to balance each party's contributions to the task at hand".
I'm sure everyone involved means well, but we are really starting to embrace a culture of defining "normal" down to some arbitrary amount that seems to have no floor. I'm all for making sure that effective treatments are made available to anyone they might help, but couldn't a lot of this be addressed society just...being tolerant of diversity in people? Gating everyone through "thrives in American High School" as a…
If you have autism and experience dysfunction at such a small level that you can put the blame on other people, then consider yourself extremely lucky. I volunteer at an autism center and many of those individuals struggle to maintain hygiene, feed themselves, and perform other basic aspects of living in ways that persist regardless of how tolerant their peers may or may not be. Of course, these individuals are not a…