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I have tinnitus. I don't recommend it

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Re: I have tinnitus. I don't recommend it

#2
Welcome to your new life. This upgrade is not optional and a reboot will not clear it.

Tinnitus has many causes. Most of them are avoidable but some (antibiotics) less so.

People's ability to internalise a coping mechanism also varies. My own ability rises and sets like the tide. Some days it's all encompassing and some days it's just the liveness check for the nuclear storage tank alarm which reassures me I'm not dead yet.

White noise can help. Tuned noise can help. Other sounds can help. Apple ipods are said to help. It's all subjective. Do you want to test a rather odd mouth fitted electrode plate and a series of tuned sounds? It might help, and is being licenced with Food and Drugs.

Seeing "the Who" live in Glasgow twice in the 70s probably triggered mine. Or a number of other over-amped gigs. But my GP assured me the drugs for blood pressure, or antibiotics, or any number of situations were just as likely or what is known as "idiopathic" which is Latin for "who knows"

My partners tinnitus is much more intrusive and causes her more grief, since she now misses much ambient bird song lost in the ear soup. Beyond commiserations there isn't much I can say, inside my own kilohertz whine sound bath.

Re: I have tinnitus. I don't recommend it

#4
"Complex trauma opens up another possible pathway between tinnitus and trauma -- one similar to that proposed for the connection between tinnitus and traditional trauma. Let’s say, for example, that my parents belittled me constantly and that as a result I never felt myself competent in handling challenges. Instead, I was made to feel powerless in the face of adverse circumstances and carried this insecurity into my adult life. Hence, when I am faced with the challenge of responding to tinnitus, my sense of helplessness as a child reemerges and blocks my ability to adequately deal with it. As the authors of the EMDR studies propose, this would mean that to treat the tinnitus we would need to treat the trauma."

https://therapistwithtinnitus.com/2023/01/31/is-tinnitus-tra...

Phillips JS, Erskine S, Moore T, Nunney I, Wright C. Eye movement desensitization and reprocessing as a treatment for tinnitus. Laryngoscope. 2019 Oct;129(10):2384-2390. doi: 10.1002/lary.27841. Epub 2019 Jan 28. PMID: 30693546.

Rikkert M, van Rood Y, de Roos C, Ratter J, van den Hout M. A trauma-focused approach for patients with tinnitus: the effectiveness of eye movement desensitization and reprocessing - a multicentre pilot trial. Eur J Psychotraumatol. 2018 Sep 11;9(1):1512248

Moore, Tal & Phillips, John & Erskine, Sally & Nunney, Ian. (2020). What Has EMDR Taught Us About the Psychological Characteristics of Tinnitus Patients?. Journal of EMDR Practice and Research. 14. 229-240. 10.1891/EMDR-D-19-00055.

"This brief summary considered literature from both the hearing and trauma disciplines, with the goal of reviewing mechanisms shared between tinnitus and PTSD, as well as clinical reports supporting mutual reinforcement of both their symptoms and the effects of therapeutic approaches."

https://www.mdpi.com/2076-3425/12/11/1585

"clinicians who offer tinnitus and hyperacusis rehabilitation should screen for suicidal and self-harm ideations among patients with symptoms of depression and a childhood history of parental mental illness"

https://tinnitustherapy.org.uk/adverse-childhood-experiences...

"Good mental health/EMDR treatment with tinnitus includes a comprehensive phase 1 history taking, targeting any precipitating trauma experiences, and “float back,” targeting the negative cognitions about the present experience of tinnitus."

https://www.emdria.org/blog/emdr-therapy-and-tinnitus/

Re: I have tinnitus. I don't recommend it

#6
Shit. I have never been to a loud concert. And I think I’ll go without for the rest of my life. I do love my Bose noise cancelling headphones. I listen to music at a low volume. I am now wondering if the noise cancellation part that generates its own frequencies helps or hurts.

Re: I have tinnitus. I don't recommend it

#10
post #8

I pray every day for a cure.

The bilateral stimulation devices aren't a cure, but they do meaningfully help. My tinnitus is much quieter after using it.

Did you use the Lenire? I was hoping the Susan Shore device would be available by now since it supposedly had a much better study backing it but it seems to be stuck in limbo. I’m not even sure if it’s been submitted to the FDA yet.
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