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U.S. autism data project sparks uproar over ethics, privacy and intent
41–50 of 377 posts
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#42Aktion T4 next? This is a dark dark road. I suspect the US will become like Germany in the next few decades where the paranoia about handing any data over is justifiably high. I hope this burns the unethical side of the tech industry to the ground. It deserves it.
It was notable that he started with "these people will never pay taxes" when announcing this.
*looks at Elon Musk*
I suppose he has a point.
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#43Aktion T4 next? This is a dark dark road. I suspect the US will become like Germany in the next few decades where the paranoia about handing any data over is justifiably high. I hope this burns the unethical side of the tech industry to the ground. It deserves it.
It was notable that he started with "these people will never pay taxes" when announcing this.
https://en.wikipedia.org/wiki/Life_unworthy_of_life#/media/F...
This poster (published in the NSDAP's Office of Racial Policy's monthly magazine Neues Volk around 1938) urges support for Nazi eugenics to control the public expense of sustaining people with genetic disorders. The poster says: "This person who suffers a hereditary disease has a lifelong cost of 60,000 Reichsmarks to the National Community. Fellow German, that is your money as well."
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#44[flagged]
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#45The criteria for diagnosing ASD today are vastly different from those that would’ve resulted in an autism diagnosis shortly after the abolishment of lobotomy, it is hardly surprising the rate keeps going up as you widen the net.
> The criteria for diagnosing ASD today are vastly different Not that much. The difference between now and 50 years ago is that a) we don't just throw them into asylums, b) we actually have accessibility of getting diagnosed, c) employment opportunities suitable for many people with mental disabilities (such as factory line assembly) have gone down the drain.
None of those points are related to diagnostic criteria.
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#46Earlier quoted context omitted.
Progress of understanding.
Sorry, still not that clear to me. Are you saying that there is no direct link but rather understanding of various areas increased due to the stopping of this practice?
> understanding of various areas increased due to the stopping of this practice
Yes, this absolutely. You can't study something after altering it.
The "treatments" for people with any kind of neurodivergence (real, or imagined) in the past were often interventions that destroyed enough of their brain or body to prevent them from exhibiting any neurodivergent symptoms (e.g. lobotomy, EST/ECT, teeth-pulling[1], etc).
[1]: https://www.amusingplanet.com/2019/01/henry-cotton-psychiatr...
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#47[flagged]
What would you suggest Americans actually do? They voted this in knowing this would happen.
It’s one thing to shout into a void about some vague disagreement, but it’s entirely different to actually take some form of real action. What should that action comprise?
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#48[flagged]
What would you suggest Americans actually do? They voted this in knowing this would happen. It’s one thing to shout into a void about some vague disagreement, but it’s entirely different to actually take some form of real action. What should that action comprise?
Look at what the Serbians are doing.
https://old.reddit.com/r/Damnthatsinteresting/comments/1jc0y...
https://en.wikipedia.org/wiki/2024%E2%80%93present_Serbian_a...
Be more like the Serbians. Don't just let things happen. You have agency. The government is supposed to be for the people, by the people - democracy doesn't only happen once every four years.
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#49Earlier quoted context omitted.
Progress of understanding.
Sorry, still not that clear to me. Are you saying that there is no direct link but rather understanding of various areas increased due to the stopping of this practice?
There is no direct link, but the point is that an increasing trend in diagnosis of ASD is not surprising when the baseline is coming from a time when doctors thought cutting out parts of your brain to make you more calm was a good idea. Basically, we shouldn't look at numbers reported by doctors willing to perform lobotomies for depression as a reliable indicator of the incidence of ASD in the population at the time.
Re: U.S. autism data project sparks uproar over ethics, privacy and intent
#50[flagged]
Wanna bet?