I have been a migraineur for decades. Mine are classic aura, with the whole "looking through broken glass" thing for a half hour or so when they happen. This year one of my partner's doctors mentioned positive results from supplementing with Vitamin B-2 and Coenzyme Q10, and it has dramatcially lowered their frequency. Mine are especially bad when the air pressure is seesawing which it does a lot here in the spring a…
> "looking through broken glass"
I think we have similar symptoms, but I have no headache, just the "broken glass" that passes over my vision. Usually takes about 15 mins to half an hour or so to pass.
This is the best visual representation that I have found of it ove the years:
> “I used to think that disability travels with pain, and it’s only when the pain gets severe that people are impaired. That’s not only false, but we have treatments to do something about it,” says Richard Lipton, a neurologist at the Albert Einstein College of Medicine in New York City. Am I the only one unable to grok this statement?
He's saying that he used to just view the pain of migraines as a disability, but now realizes that there are other components to migraines besides pain that cause disability (such as brain fog, emotional instability, blindness, etc)
Thank you, that makes more sense now; with that explanation I can re-read the original quotes.
> Migraine can even drive full-blown visual hallucinations similar to the ‘reflections of the living light’ painted by Hildegard von Bingen, a twelfth-century abbess who was thought to have experienced a condition that is now called migraine with aura. I don't think the aura effects are usually considered hallucinations? I get mild migraines sometimes, with hardly noticeable headache, but with aura. In a way, it's pr…
my mom used to get these and said it was like "seeing dots" anecdotally of course too, but is it more common for women? I've only ever known 3-4 people that got these kinds of migraines and they were all women.
Yes, its much more common for women, its rare for men.
I was around 13 when I had my first migraine. A solid block of pain on the right side of my head. That occasional migraine became more frequent over the years. I had a headache 24/7 in one specific place in my head. In my early 30's, after blood tests, food elimination, x-rays and finally an MRI I was told that I had Chronic Daily Migraines. Most days were 6-7/10 pain. Those days that were 10/10 I perfected the art o…
I'm willing to try it! Are you able to wear earbuds with the daith piercing? Airpods Pro are one of my most-used pieces of tech both at work live-streaming classes and at home listening to books and music.
Yes!
I have worn various and my current are Airpods 2 Pro.
The daith is discreet, does not get in the way of anything.
First, I know different people have different triggers from me. I used to have migraines every few days to every few months from age 13 to 23. These would incapacitate me. I would get the aura and be almost blind for an hour, then throw up a couple times, and have a bad headache for 2-4 hours, then I could function again but still felt crummy for the next 24 hours. I noticed that pickles were a trigger, and I thought "pickles have a lot of sodium". So, out of desperation as something to try, I read the labels of everything I was eating and cut out everything that had more than a little sodium: frozen pizza, frozen dinners, deli meats, etc. At the time I was having migraines every few days, and then I didn't have another migraine for years. I was so glad they stopped. I now doubt it was the sodium. In cutting out sodium, I happen to cut out processed foods, which includes lots of suspicious ingredients. I suspect Tyramine was the main culprit. There's a diet called The Headache Diet that is focused on minimizing Tyramine. Guess what else pickles have a lot of? For last last 30 years, here are all the things that have caused my migraines: Lithium Carbonate (Orotate is OK), Pickled Herring (Tyramine), Soy Sauce (Tyramine), Hyaluronic Acid (synthetic, Mobilee is OK), Tianeptine, Sulbutiamine, and a strobe light. Every migraine I have had in the last 30 years can be explained by those - only 8-12 migraines total. I still precisely control my sodium and eat no processed foods.
I was around 13 when I had my first migraine. A solid block of pain on the right side of my head. That occasional migraine became more frequent over the years. I had a headache 24/7 in one specific place in my head. In my early 30's, after blood tests, food elimination, x-rays and finally an MRI I was told that I had Chronic Daily Migraines. Most days were 6-7/10 pain. Those days that were 10/10 I perfected the art o…
Throwing in my anecdata:
I had migraines at least once every two weeks for most of my life. Nothing too out of the ordinary, just that 7/10 dull pain in the center of my head that shut me down for 5 or 6 hours.
I'm very skeptical about supposed instant fixes like this. I didn't expect it to work, but I wanted to start getting ear piercings and I figured I'd give it a shot with something not too flashy. I went with my wife to her piercing appointment and convinced them to pierce my left daith while we were already there.
That was at least seven years ago. I haven't had a migraine since. I keep assuming it's placebo and it'll wear off, but it hasn't.
> Migraine can even drive full-blown visual hallucinations similar to the ‘reflections of the living light’ painted by Hildegard von Bingen, a twelfth-century abbess who was thought to have experienced a condition that is now called migraine with aura. I don't think the aura effects are usually considered hallucinations? I get mild migraines sometimes, with hardly noticeable headache, but with aura. In a way, it's pr…
my mom used to get these and said it was like "seeing dots" anecdotally of course too, but is it more common for women? I've only ever known 3-4 people that got these kinds of migraines and they were all women.
I happen to be a man who gets migraines with aura, but I do think they’re more common in women. They started when I was 14.
I get visual issues like tunnel vision and sparklies, but I also get numbness in my face and extremities, confuse my words (right parts of speech, not what I intend to say), and often vomit.
Needless to say, the first one scared the crap out of my mother and I.
I may or may not have a headache when this happens.
Neat, eh? I was talking to a guy who suffered from seizures in college, and apparently his “aura” is very similar, and I've always wondered if there was some connection since my father also suffers from epilepsy.
Thanks anyway, I'm definitely looking into this. Suffering from the occasional migraine myself (3-4x year) it seems a bit too drastic for myself... but my wife has very frequent migraines, anything that could possibly help is worth investigating
I got a new puppy - Dogue de Bordeaux - some months ago and she was/is on a raw food diet, so I had to get that delivered frozen. Couple of deliveries in and I got chatting to the guy bringing the food. He mentioned he had headaches constantly. I told him about the daith. Days later he messaged me - he'd got a daith after we talked and today, for the first time in 10+ years he woke in no pain, no need to take codeine…
> Migraine can even drive full-blown visual hallucinations similar to the ‘reflections of the living light’ painted by Hildegard von Bingen, a twelfth-century abbess who was thought to have experienced a condition that is now called migraine with aura. I don't think the aura effects are usually considered hallucinations? I get mild migraines sometimes, with hardly noticeable headache, but with aura. In a way, it's pr…
my mom used to get these and said it was like "seeing dots" anecdotally of course too, but is it more common for women? I've only ever known 3-4 people that got these kinds of migraines and they were all women.
My eyes were opened a few years ago when I was reading my mom’s brain mri report. She had cancer and was undergoing radiation treatment. The MRI noted lesions and said they could be due to cancer/radiation OR MIGRAINES! Holy moly! Migraines can cause brain damage!
Anything backing this up except that one report? I haven't heard of headaches or migraines causing permanent damage.
Can confirm, I had a brain MRI in my early 20s and had a number of white matter lesions that were supposedly caused by migraines. No other cognitive or neurological issues. But I'm due for another scan soon and hoping they haven't worsened :P