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Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

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Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#61

Post by lnsru »

dinkblam wrote: post #54
the-dude wrote: post #47

Earlier quoted context omitted.

I was halfway through your comment and wondered which country this would be. Well, hello fellow Dutchie. Since my father's death, I say In the Netherlands, doctors only start acting when you are dying . My father's GP let him die of acute leukemia, guessing his severe tiredness had something to do with an onset of diabetes. It was not a single visit. Had no bloodwork done. GP claimed to be specialized in geriatrics.…

> In the Netherlands, doctors only start acting when you are dying. this horrible situation is in no way restricted to the Netherlands.

There is obviously whole medical system for cash paying upper class. That’s why I am trying to have some cash on hand for medical emergency. Few thousand euros can make a difference of 50 years in treatment methods here in Germany. The outcome may be massively better this way. Sadly I learned this lesson the hard way.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#62

Post by davidt84 »

jdietrich wrote: post #58
proto-n wrote: post #10

Earlier quoted context omitted.

The "so called Long COVID" really just means "I got covid and I remain unwell in some way, long term". I'm not sure it needs to be questioned if those two qualifying things are given. Very well might be the same thing as ME/CFS, or might not, I don't think we have a conclusive answer yet about what causes either.

"Long COVID" encompasses several very distinct nosological categories, which makes it a difficult term to talk about. There are at least four distinct subtypes - people who had severe acute illness and suffered respiratory injury, people who had severe acute illness and suffered cardiovascular or renal injury, people who had a relatively mild acute illness but developed long-term neurological or musculoskeletal seque…

Without knowingly being infected with COVID is probably a better way to phrase that.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#64

Post by jddj »

tunn3l wrote: post #52

I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro . although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!

You write very well, and there are some nice insights in there. I clicked through out of curiosity but ended up reading a lot.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#65

Post by hgomersall »

tempfile wrote: post #38
acomjean wrote: post #28

Earlier quoted context omitted.

I think the point being made was diseases can be difficult to diagnose. Some diseases don’t have explicit tests. ADHD is diagnosed by looking at just symptoms if I remember correctly. I’m not sure about autism. I knew someone who became sick. At first it was thought to be Lyme, it took a long while to determine and a bunch of other theories to determine it was lupus. Tests were not fully accurate and these illnesses…

I am not objecting to the general point that diseases are hard to diagnose. The wording OP used does not just say that - phrases like "so-called" come with an implication that the thing being referred to is just made up. That's why my comment asks if they would say the same thing about ADHD and Autism. They probably wouldn't, because it would carry an implication that they thought ADHD and Autism were somehow "fake".

ADHD and Autism are interesting, because they are entirely based on certain clinical presentations and the opinion of the diagnosing practitioner. There are a certain set of traits that are "classically" ADHD for example, so what happens if you show 80% of those traits and show the counter-case for 20% of the traits? I expect that neurodivergence is going to become far more nuanced in its assessment, with a better understanding of an individual's whole psychological profile.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#66

Post by ajsnigrutin »

dinkblam wrote: post #54
the-dude wrote: post #47

Earlier quoted context omitted.

I was halfway through your comment and wondered which country this would be. Well, hello fellow Dutchie. Since my father's death, I say In the Netherlands, doctors only start acting when you are dying . My father's GP let him die of acute leukemia, guessing his severe tiredness had something to do with an onset of diabetes. It was not a single visit. Had no bloodwork done. GP claimed to be specialized in geriatrics.…

> In the Netherlands, doctors only start acting when you are dying. this horrible situation is in no way restricted to the Netherlands.

Yep, same in slovenia.

We pay a lot of taxes for healthcare insurance, and the primary level of healthcare is totally fscked. When the employer has to deduct the insurance from your paycheck, even goddamn cent is double checked by the government... when your primary care physician quits/dies/retires, well, "sorry, there are no doctors taking new patients in your area". Further away? Nope. Somewhere finally a new doctor starts and accepts new patients... this: https://images.24ur.com/media/images/1106xX/Sep2024/5916255a... (yes, this is the line of people without a primary doctor trying to get one).

So, fever, general unwell feeling... could be a flu.. could be bacterial.. probably just a flu.. or a cold... it's always just a cold.. but are you sure? You could go to a private doctor, pay for the checkup, pay for the blood work, but will you pay if it's probaby just a cold/flu?

Feeling really bad and also start vomiting + diarrhea? Go to the only place where you can get checked out fast... the emergency room... and then emergency protocols have to be implemented there, because there are too many people there, and they can't handle it.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#68

Post by krageon »

tunn3l wrote: post #52

I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro . although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!

I have had the same issue for about as long and it's been a bear of a time to get anything done with it. Kudo's to you for taking a trip to have a treatment that might work done! It is very hard to take a lot of initiative and keep pushing (at least for me) with long covid.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#69

Post by Tade0 »

That's great to hear. I remember Simone Giertz breaking out the bad news to her followers and sounding no less serious than when she was talking about her own brain surgery.

My former co-worker got COVID twice, as preventive measures didn't fit into his moral framework, and the second time resulted in a mild case of long COVID. I'm saying "mild" as he was not bedridden, but the cognitive decline was noticeable.

Long COVID is no joke and seriously affect one's work as well private life.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#70

Post by krageon »

H8crilA wrote: post #59
proto-n wrote: post #10

Earlier quoted context omitted.

The "so called Long COVID" really just means "I got covid and I remain unwell in some way, long term". I'm not sure it needs to be questioned if those two qualifying things are given. Very well might be the same thing as ME/CFS, or might not, I don't think we have a conclusive answer yet about what causes either.

[flagged]

It's not that it sucks to have this brought up, it's that the people who do are pretty consistently dismissive and infantilising about it. Naturally, folks that this happens to develop an aversion to people that say the same thing for the millionth time. It's not novel, it's not interesting (in that it never leads anywhere novel either) and it's frequently hostile.
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