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I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard
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Anyone who suffers from what? Why is St John’s Wort good for it? I will never watch this type of video, but it sure does sounds like whatever affected @physicsgirl was awfully serious if it left her non-ambulatory for multiple years. It sounds like maybe you’ve had a positive experience that you might be willing to elaborate on?
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The 'pattern' is that comments are supposed to provide some value and not just generic statements. The HN community overall doesn't want the comment section to turn into a Facebook comment style section.
So if you're going to comment, at least have something to back it up or give something that contributes to the quality of the discussion.
Earlier quoted context omitted.
Anyone who suffers from what? Why is St John’s Wort good for it? I will never watch this type of video, but it sure does sounds like whatever affected @physicsgirl was awfully serious if it left her non-ambulatory for multiple years. It sounds like maybe you’ve had a positive experience that you might be willing to elaborate on?
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Earlier quoted context omitted.
Severe ME/CFS. I am a carer for my wife who has this forgotten & hidden disease. I am so glad Physics Girl is getting better with rest!
The state of all things Me/CFS is so bad. I remember reading about cases as a child in some boulevard or women’s magazine at my grandmas house, so it must have been about 25 years ago. Seemingly nothing happened since then. Even the explosion of cases after Covid hit somehow doesn’t lead to change. In Germany many doctors still don’t know it, a lot of them think it’s psychological. There is some research, but it look…
There is some good research into anti-virals for treatment. And this has been known for at least a decade. A challenge js few doctors will prescribe the course.
Anecdotally in the late 00s early 10s my Aunt was losing mobility due to CFS causing neurodegeneration. It was at the point she would sometimes crawl rather than walk up a flight of stairs.
Her and I flew to a specialist to get prescribed a cocktail of anti virals (most used for AIDS) and the results were more than a placebo.
Within a year the degeneration didn’t just stop but reversed. Its not a cure for her but it allowed her to reverse enough to have a high quality of life and mobility. Over time she’s progressed back down but who's to say if thats age or condition.
Here’s a link that discusses it, but a search for cfs and antiviruals will return cfs community material and journals.
https://massmecfs.org/more-resources-for-me-cfs/247-antivira...
What was wrong with her? Some type of long Covid or something?
Severe ME/CFS. I am a carer for my wife who has this forgotten & hidden disease. I am so glad Physics Girl is getting better with rest!
Earlier quoted context omitted.
Anyone who suffers from what? Why is St John’s Wort good for it? I will never watch this type of video, but it sure does sounds like whatever affected @physicsgirl was awfully serious if it left her non-ambulatory for multiple years. It sounds like maybe you’ve had a positive experience that you might be willing to elaborate on?
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Even though it's a plant and is natural, it can either reduce the effect of some medications or increase the strength. So wouldn't take it without medical advice.
I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard
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ADHD is diagnosed by looking at just symptoms if I remember correctly. I’m not sure about autism.
I knew someone who became sick. At first it was thought to be Lyme, it took a long while to determine and a bunch of other theories to determine it was lupus. Tests were not fully accurate and these illnesses manifest a little differently in different people.
What was wrong with her? Some type of long Covid or something?