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The cochlear implant question

aeon.co

51–60 of 158 posts

Re: The cochlear implant question

#52
post #21

> it is unarguable that only signed languages are easily accessible in all situations Even in the dark? Or at a distance? Or not facing the signer? Or with arthritis? Differently abled folks are entitled to their own culture and beliefs. Yet claims like that seem to be trying too hard to find a silver lining.

Or if you have to talk to a visually impaired person. My vision impairments are on the very mild end of the spectrum, but they're still enough to prevent any effective use of or learning of sign.

See tactile signing: https://en.wikipedia.org/wiki/Tactile_signing

Re: The cochlear implant question

#53

> it is unarguable that only signed languages are easily accessible in all situations Even in the dark? Or at a distance? Or not facing the signer? Or with arthritis? Differently abled folks are entitled to their own culture and beliefs. Yet claims like that seem to be trying too hard to find a silver lining.

My deaf coworker does not even know sign language, she uses phone for everything. She lives perfectly normal life. Entire office is not going to learn new language, just to speak with an odd deaf person. And communicating specialized stuff like technical programming is not possible, gestures only cover basic words.

When I sign with other deaf programmers, we don't have trouble communicating with signs, even about technical programming.

When I go to the doctor's office and someone interprets for me, I don't have trouble understanding the doctor.

Please don't speak so assuredly about things you clearly don't understand. https://en.wikipedia.org/wiki/Sign_language

I agree with the 1st sentence however. You don't have to know sign language to be content or happy with your life, even if you are deaf.

Re: The cochlear implant question

#55
post #47

I feel like the narrative around disabled people has advanced to the point where some now insist that they aren't disabled. In reality, it's a pretty objective fact that being disabled means being unable to do something. It is a net negative on someone's quality of life. I'd be jolly pissed off if my parent decided not to get me an implant that enabled me to hear just because someone had told them that being deaf was…

  Children with autism or ADHD might struggle in some ways, but be better off in others.
  It seems clear that there is no objective reason they are worse than a neurotypical
  person, so if a "cure" to these conditions was developed, you would have some degree of
  moral quandary.
Careful, you are most likely talking about someone spending their energy at masking their handicaps. *You only see the handicap you can see*.

Someone with high intelligence but severely damaged executive functioning might look like the under performer in your team, but is giving all they have to work and still failing in silence, with their personal life being a giant mess.

Re: The cochlear implant question

#57
post #47

I feel like the narrative around disabled people has advanced to the point where some now insist that they aren't disabled. In reality, it's a pretty objective fact that being disabled means being unable to do something. It is a net negative on someone's quality of life. I'd be jolly pissed off if my parent decided not to get me an implant that enabled me to hear just because someone had told them that being deaf was…

Children with autism or ADHD might struggle in some ways, but be better off in others. It seems clear that there is no objective reason they are worse than a neurotypical person, so if a "cure" to these conditions was developed, you would have some degree of moral quandary. Careful, you are most likely talking about someone spending their energy at masking their handicaps. *You only see the handicap you can see*. Som…

No, I'm not talking about that.

Re: The cochlear implant question

#58
post #39

Earlier quoted context omitted.

Sign language is not gestures. This is covered in (among many other places) the introduction to the Wikipedia article on sign language: https://en.wikipedia.org/wiki/Sign_language

Pedantic and wrong. What was your point here? Sign languages per your own link are expressed through manual articulation in combination with non-manual markers. That's gestures in common speech in all cases unless you are operating with the most specific and unhelpful definition of gestures.

I use sign language myself everyday.

Sign language is way more than just gesturing. I did not see read that link from the above post, regardless, gestures are fundamentally a semiotic expression of meaning with the body rather than speech.

Like sounds, one can create a basic Piercian sign, and build onto that sign.

I believe that sign language has the unfortunate implication of being composed exclusively of gesturing. The word “sign” is confusing as well, especially when “sign” signifies (pun intended) a set of commonly understood meanings in linguistics. Body language, gestures, manual expressions all are just parts that come together and become more than the total of sum parts.

I see spoken and sign languages as two different tools that can do similar job with different features and weaknesses. Like python vs go vs JavaScript.

Re: The cochlear implant question

#59
My wife and I faced a similar situation and found it a simple decision. We both carry GJB-2 gene mutations that will likely result in profound non-syndromic hearing loss. We went through Orchid Health to get a whole genome sequence of our prospective embryos and then selected one that was not affected by the condition.

We have 1 more carrier girl and 2 more unaffected girls to work with, and if we want boys later in life we will probably wait for Decibel Therapeutics / Regeneron to finish their GJB-2 gene therapy before we have that child. If there are constraints then we will have a cochlear implant or simply not implant that embryo.

It was obvious to us how it should play out. My wife and I have an obligation to maximize the cone of possibility for our children and a duty to equip them best to experience the world so that they can choose the path through it that they wish.

Just like I would not pierce the eardrums of my child after she is born, I shall not intentionally choose an embryo that carries a debilitating condition that I cannot remedy or mitigate if I can choose otherwise. I don’t think this is a dilemma in any way. There is an obvious choice for us. We will not deny her normative sense organs. My parents got me glasses and contact lenses. My life would have been much less vibrant if they had chosen to not provide me those prosthetics.

Some parents are not so fortunate as us to have this choice. I hope modern therapeutics will enable all children and adults to have the full range of sensors that most humans carry.

Re: The cochlear implant question

#60
post #47

I feel like the narrative around disabled people has advanced to the point where some now insist that they aren't disabled. In reality, it's a pretty objective fact that being disabled means being unable to do something. It is a net negative on someone's quality of life. I'd be jolly pissed off if my parent decided not to get me an implant that enabled me to hear just because someone had told them that being deaf was…

A common thread across all the disability groups is an intrinsic desire to normalize it, a drive towards a world where everyone has the disability and therefore no one is disabled.

Prune it down and it is simply "You can fix something by developing a fix, and if you can't do that you can fix something by redefining what "fixed" means".

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