There is absolutely no reason for these companies to collect your PII whatsoever. You should go to nearest pharmacy and buy sterile swab, swab yourself and write long random number on it and send it. Once a month company publishes one giant zip with all the monthly result where you find your file by that random number you wrote.
This fixes the issue with leaks. But it creates a much worse issue: anyone can now sequence anyone else's DNA with zero oversight or privacy controls. The film Gattaca covers how this could lead to a sort of night are society pretty well, I highly recommend it. It also makes it much much harder to use the data for clinical research.
Independent directors of 23andMe resign from board
281–290 of 372 posts
Re: Independent directors of 23andMe resign from board
#282There is absolutely no reason for these companies to collect your PII whatsoever. You should go to nearest pharmacy and buy sterile swab, swab yourself and write long random number on it and send it. Once a month company publishes one giant zip with all the monthly result where you find your file by that random number you wrote.
Re: Independent directors of 23andMe resign from board
#283Earlier quoted context omitted.
Or just create an account with a username and password and get the results there, like every other company does.
How would that avoid PII? One assumes there would need to be an email address to recover that account, and that would likely link to every single detail about the owner.
Re: Independent directors of 23andMe resign from board
#284Earlier quoted context omitted.
Others have shared some more heartwarming tales of using these services but I saw a story that in Australia a project is helping the children of sex tourists to look up their fathers via these services to get child support payments: https://www.abc.net.au/listen/programs/am/dna-helps-children...
If you are sleeping with a prostitute isn’t there like an implied contract that you aren’t responsible for any resulting child? That is practically the entire purpose of prostitution.
Re: Independent directors of 23andMe resign from board
#285Earlier quoted context omitted.
> write long random number on it Human brains when generating 'random' numbers: https://xkcd.com/221/ > Once a month company publishes one giant zip with all the monthly result where you find your file by that random number you wrote. Given how much of our appearance is due to genetics, that's basically all the harm with none of the convenience.
>Human brains when generating 'random' numbers Fortunately, contemporary humans have access to computers, which can generate random numbers for them free of charge. >Given how much of our appearance is due to genetics, that's basically all the harm I can't fathom your concept of "harm"; and neither, I think, would any prospective customer of this service.
At this point we practically have a single search engine that’ll take you genetic sequence aa input and return your face, you entire family tree, your current job and address and what you do in your free time.
Re: Independent directors of 23andMe resign from board
#286Earlier quoted context omitted.
https://stackoverflow.blog/2021/12/24/sequencing-your-dna-wi... ~$800 USB dongle (above article was published in 2021 and the price has gone down) plus consumables.
Nanopore sequencing fidelity was garbage back in 2021. Not sure what it is now.
Re: Independent directors of 23andMe resign from board
#287Earlier quoted context omitted.
I'm confused by this; isn't the board of directors who picks the CEO? Or are they locked in for some period of time and don't want to wait around?
The CEO owns 49% of the voting power so the board is pretty much toothless. Facing a direct conflict with her, loudly resigning is probably about the best they could do.
CEO Founder has a direct conflict of interest with shareholders...
Re: Independent directors of 23andMe resign from board
#288For the record, 23andme is one of the few companies where the CEO never once responded to one of my emails (2017, 2019, 2022, 2024). You can make a lot of money just by betting on companies where the CEO (or the CEO's office) takes listening to customers'(who are rooting for them!) emails seriously, and shorting those that do not.
You cold e-mail CEOs and get a >70% hitrate? I gotta try this more often.
Honestly CEOs (and/or their staff) paying attention to customers is a typical marker of successful companies.
Re: Independent directors of 23andMe resign from board
#289Earlier quoted context omitted.
My oldest brother did so I'm already screwed
Can even one single person here articulate their specific fears of using 23andme, or is it all FUD?
Re: Independent directors of 23andMe resign from board
#290Earlier quoted context omitted.
> leader in the find long lost relative space/your "roots" space. Acknowledging Ancestry.com are well ahead of the market here, but I never got their appeal of finding some long-lost second cousins... basically strangers, and saying, "hey, isn't it fascinating that we share some arbitrary level of common genetic makeup". If some randomer reached out via email to me doing this big reveal I'd be "thanks, but into the s…
The rise of services like 23andMe and AncestryDNA have actually allowed people to discover information about their parentage that they would otherwise not have had access to, basically they find out that one or both of their parents are not biologically related to them. Individual situations range from extramarital affairs, closed adoption, in-familiy adoption (teen gets pregnant, her parents raise the child as a sib…