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Taking my diabetes treatment into my own hands

martin.janiczek.cz

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Re: Taking my diabetes treatment into my own hands

#341

Post by RandomUser4976 »

kapitanjakc wrote: post #158

Dumb question here :- My father has diabetes since he was 30, my grand father had it too in his 30s. I am beginning my 30s, will I get it too ? Is it guaranteed that I'll get it ? Can I avoid getting it ? Both my father and grandfather had heart attacks...

Not a dumb question. You are damn near guaranteed to get type 1 diabetes if you test positive for two or more T1D autoantibodies and/or your A1C is 5.7 or higher. Both can happen before you show any symptoms of T1D.

Get blood test for all five Type 1 Diabetes Autoantibodies: (this can be done for free) GADA IA-2A IAA ZnT8A ICA

Get blood test for pancreatic C-peptide.

Get blood test for A1C.

Check out tzield if you test positive.

I can share sources if you’re interested. I’m. T1D.

Re: Taking my diabetes treatment into my own hands

#342

Post by freddealmeida »

jklinger410 wrote: post #137

What I've learned that, as an adult in 2024 in the United States, you cannot take for granted: - That your medical professionals are acting in your best interest - That your insurance company is acting in your best interest - That your medical professional knows what they are talking about - That things that are legal to put in your body will not cause irreparable harm to you - That the legal level of pollutants in t…

Sadly very true. Makes you wonder why we have big government.

Re: Taking my diabetes treatment into my own hands

#343

Post by RandomUser4976 »

Fantastic post. Great job Martin Janiczek! Fellow T1D here. Please keep posting because it is useful and interesting! I am a programmer and more glad to help you in any way with databases, SQL, Python, R, C#.

Resources that helped me achieve excellent control of my type 1 diabetes. My TIR is 95-100% and lowered my A1C from 11.9 to 4.1 (not low carb, I’m high carb in fact):

Fat and protein in meals require insulin 1-2 hours after eating via extend bolus (aka temp basal). Learn how to post-bolus (give yourself insulin AFTER meals) “Fat-Protein Units” (FPU).

Fat x .09 x 8 ÷ I:C = units of insulin Protein x .04 x 8 ÷ I:C = units of insulin

Sum both. Then dose insulin as a temp basal (extended bolus) over n-hours per the Warsaw Method time schedule linked below.

And continue to pre-bolus for carbs like usual 15-30 minutes before you eat (data driven approach is pre-bolus and eat meal AFTER blood glucose values on CGM trend down for 3-4 consecutive readings)

https://waltzingthedragon.ca/diabetes/nutrition-excercise/re...

https://drlogy.com/calculator/warsaw-method

Starting point to determine your insulin-to-carbohydrate ratio: 300 ÷ Total Daily Insulin Dose = 1 unit insulin covers n-grams of carbohydrate

https://diabetesjournals.org/diabetes/article/68/Supplement_...

Two books: https://www.amazon.com/Think-Like-Pancreas-Practical-Insulin...

https://www.amazon.com/gp/aw/d/0593542045/ref=tmm_pap_swatch...

One podcast: https://www.juiceboxpodcast.com/diabetesprotip

Re: Taking my diabetes treatment into my own hands

#345

Post by moffkalast »

autoexec wrote: post #326
moffkalast wrote: post #305

Earlier quoted context omitted.

Being good and working in your own self interest aren't mutually exclusive though. In fact most of good things are genuinely done out of complete self interest, and practically all good things on the corporate or bureaucratic level. There's always someone involved in the decision who directly benefits, luckily sometimes it's all/most of us too. Society gets better when the self interested goals of an individual are a…

> Being good and working in your own self interest aren't mutually exclusive though. Being good and selfish/doing whatever is in your own self interest no matter who else gets hurt are mutually exclusive. The reason we can't trust the food we eat is because companies are selfish and don't care that you get sick. They'll feed you poison because even though they already have billions in profits, it makes them a few ext…

A company only cares about money, always have, always will. The way you make them care about their actions is by taking away their money, it's all pretty simple.

The monetary damage from bad PR when caught clearly isn't enough, but when you have regulators like the EU who impose massive fines as a percentage of gross revenue, suddenly every company becomes super careful about what they do. And those regulations are there because it's in the selfish self interest of the electorate to not get poisoned :)

We don't live in the natural world, we bend it to our will. By recognizing what's the default we can leverage that to improve on it more effectively. If you know a bad person will do bad things, you can plan for it and make sure nobody gets hurt. Pretending a bad man isn't bad is just optimistic delusion and why libertarianism doesn't work in real life.

Re: Taking my diabetes treatment into my own hands

#346

Post by moffkalast »

shrimp_emoji wrote: post #241
jklinger410 wrote: post #240

Earlier quoted context omitted.

And this makes for a pretty lonely and downright harmful society, when viewed through that lens. And I'm not going to feel stupid or naive for feeling like children are tricked into believing the opposite is true. I want to also say, this state that everyone is acting in their self interest is not something we should promote, or be proud of, or assume is the natural state of things. It is a state that we are being fo…

Children aren't tricked into believing it because it's actually true. As you point out, people are inherently good, and they act against their self-interest all the time. It's always a mistake though. ;D

It's important to separate objective self interest (knowing all the facts combined with perfect reasoning) and subjective self interest (based on limited and likely misleading data, with possibly faulty reasoning). The first one will obviously not be true for the most part and is usually only knowable in retrospect, but aside from some amount of purely random decisions, the rest will largely fall in the second group, if only subconsciously. But I'd argue it's still the same exact principle :P

Re: Taking my diabetes treatment into my own hands

#347

Post by supertofu »

kshacker wrote: post #216
nradov wrote: post #212

Earlier quoted context omitted.

Other researchers have also achieved T2D remission in many patients through nutritional ketosis (carbohydrate restriction). https://doi.org/10.1007/s13300-018-0373-9

And here I am following a WFPB diet with high carbs and reversing my A1C + some other markers. My philosophy is that many diets work, you just can not have a cocktail. Our body is not a hybrid car. It takes time to switch/ Choose what you can live with - high carb, low carb, keto - and stay focused.

I'm WFPB (plus salmon and eggs) myself. I grew up as a vegetarian and the carnivore diet is too unpalatable to me, even though it would probably work. WFPB can work to stave off T2D, but at least for me, I have to be vigilant about my choices and always pair carbs with proteins and fats.

Re: Taking my diabetes treatment into my own hands

#348

Post by kelipso »

s1artibartfast wrote: post #226
dleink wrote: post #220

Earlier quoted context omitted.

The quality of the American medical system has deteriorated to such a point that if the Doctors are not the grifters they may at least be culpable for enabling the grift.

That hasn't been my experience. I have never experienced or heard of a doctor deceiving or lying in real life. I dont think I can think of an example from hospitals either.

There are a large number of cardiologists who advocate patients for invasive surgeries they don't require so that they can make a bit more money.

Re: Taking my diabetes treatment into my own hands

#349

Post by phil21 »

s1artibartfast wrote: post #336
autoexec wrote: post #335

Earlier quoted context omitted.

> I have payed millions to doctors, and think my actions are justified. You aren't at all worried that paying those doctors will result in them prescribing something to a patient when they might not have otherwise or influence their choice for one option over another? I'm not talking about the education or awareness a doctor might get, purely the influence of the money/benefits and perhaps their hope to get more of t…

The vast majority of the payments are either education or payment for services rendered, like the article mentions. At a high level, companies actually think their products have value to patients and want doctors to know about what it can do. It is virtually impossible to decouple knowledge sharing from influence. The point of knowledge sharing is to impact choice and behavior. On the services front, If I want to hir…

I’ve found the “collective common knowledge” regarding pop-culture topics such as this, is much like generals preparing for the last war they fought.

Direct kickbacks were an actual problem decades ago. That has long been “solved” all the way to the typical over correction the industry is known for.

The same holds true for the opioid epidemic and folks still thinking pill mills and the medical industry as a whole are the primary way folks get hooked.

It’s fighting last decades battles that have long since moved on. The zeitgeist seems to “stick” each generation and does not seem to keep up with current reality.

Re: Taking my diabetes treatment into my own hands

#350

Post by kelipso »

nradov wrote: post #173
carimura wrote: post #119

Earlier quoted context omitted.

In the US, my experience has largely been that it's not healthcare, it's sickcare. Wait until sick, get treated. Annual checkups are a weight check, blood pressure, a few questions, maybe a blood panel if you're lucky, and then a "you look great see you next year", aka, come back when you're sick. I spent the last few years seeking proactive healthcare and the "system" is very much stacked against you. If you're fort…

I don't know why you would expect the healthcare system to do all of that stuff. If you want to know your VO2 Max you can just go to the local running track and execute a Cooper Test for free. But the results aren't really actionable. Regardless of the quantitative result, unless you're already an elite athlete the prescription will always be the same: exercise more.

Are you exercising enough or do you need to exercise more is an actionable question worth asking.
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