Earlier quoted context omitted.
In my experience, a blood panel doesn't cover everything typically. My A1C, Insulin, and fasting Glucose levels are all within normal range, but actually I have insulin resistance, likely genetic that wouldn't appear in my general panel for at least two or three more decades. This is common in people whose family history includes poverty or subsistence farming. I'm glad I have the resources to address this while I'm…
Why would a genetic tendency towards insulin resistance be correlated with a family history of poverty or subsistence farming? Is there any research on that? Which specific genes are involved? Which tests were used to diagnose your insulin resistance?
Taking my diabetes treatment into my own hands
221–230 of 372 posts
Re: Taking my diabetes treatment into my own hands
#222It’s all vibes! Type 1 here for 28 years. You are on the right path here but I think you are missing the “big players” for lack of a better term. The prediction software available now (open source) is quite good and works with different types of CGMS and pumps. You are really going to want to look at Loop. Loop basically collects the inputs in the app automatically for insulin if you use a pump. I’m on the Omnipod DA…
Off topic, but if skip your first sentence and the later mention of insulin, this reads like an acronym and jargon filled comment that could be about anything. Like you could refactor the comment to be about AI LLMs or something.
Re: Taking my diabetes treatment into my own hands
#223Earlier quoted context omitted.
> broader blood panels, body scans (eg. Prenuvo), VO2 max, metals tests, mold tests, genetic tests, GI tests, etc etc. Do you really need VO2 max test to tell you that you get out breath climbing a set of stairs? What genetic tests are you even talking about( brca ? ). Is there any actual proof that "catching cancer early" has any long term impact on survival ? ppl can go waste their money if they really want for ent…
Are you asking if early detection of cancer results in better outcomes? Yes, the data unequivocally supports that diagnosing cancer before it spreads leads to lower mortality.
Re: Taking my diabetes treatment into my own hands
#224What I've learned that, as an adult in 2024 in the United States, you cannot take for granted: - That your medical professionals are acting in your best interest - That your insurance company is acting in your best interest - That your medical professional knows what they are talking about - That things that are legal to put in your body will not cause irreparable harm to you - That the legal level of pollutants in t…
At the same time I would emphasize that people who offer any kind of advice online around life-threatening ailments do put down if they have a related degree, are currently practicing and are licensed in that or a very related field, or if they are conducting self experiments and sharing their results (with YMMV caveat to go along with it). Reasons why should be obvious, but listening to podcasts, or reading pop-scie…
Isn't it suspicious to offer YMMV caveats in a situation that is obviously dripping with caveats?
Re: Taking my diabetes treatment into my own hands
#225I'm T1D and currently working on something like this because diabetes healthcare in the UK is effectively non-existent past diagnosis. Managing the condition isn't too difficult after 30 years of it, but dealing with the politics of NHS diabetes care is astronomically more difficult than it was in any decade previously. In my experience, if you are not pregnant, or you aren't at risk of passing out in the next 15 min…
I was referred to a dedicated team with a specialist nurse who checks in with me regularly. Maybe I am fortunate not to live in a big city where most NHS facilities seem to have descended into third world standards?
Re: Taking my diabetes treatment into my own hands
#226Earlier quoted context omitted.
I almost completely agree, and think we mainly disagree on the nuances. >The idea that there could be a grift set up to take advantage of people in the medical space, for instance, which is highly regulated and supposed to be for the benefit of people first and for generating capital second, is not intuitive to children. The first thing I wanted to touch on is the idea of grift. Just because some has their interests…
The quality of the American medical system has deteriorated to such a point that if the Doctors are not the grifters they may at least be culpable for enabling the grift.
Re: Taking my diabetes treatment into my own hands
#227Earlier quoted context omitted.
None of those things are necessary most of the time, and they’re usually just going to make you paranoid. It’s why doctors don’t generally like to do full-body scans on healthy people: they’re rarely going to find anything clinically significant, but they’re often going to find something that causes a scare and some unnecessary tests. (And if the scan is a CT scan, on average, the radiation may cause more cancers tha…
People in high risk categories are warranted to go further than that
Re: Taking my diabetes treatment into my own hands
#228Earlier quoted context omitted.
> I think the problem is that you were raised to think that a "good and just" world is one where there is no risk, no variability, and limited self-reliance. I think that children are generally raised to not believe there is "risk" associated with listening to experts. This means specialists like Doctors but also politicians and military officials. The idea that there could be a grift set up to take advantage of peop…
I almost completely agree, and think we mainly disagree on the nuances. >The idea that there could be a grift set up to take advantage of people in the medical space, for instance, which is highly regulated and supposed to be for the benefit of people first and for generating capital second, is not intuitive to children. The first thing I wanted to touch on is the idea of grift. Just because some has their interests…
> A doctor doesnt put your individual wellbeing above their own
I think an example we could both agree on, would be something like...let's say you have several indicators that you might have a type of cancer. But the doctor will say, well let's not do a whole biopsy, because it's expensive and it's not covered by your insurance, and there's a low chance you have this cancer anyway. That might seem like a sensible conclusion to draw, but actually if we were simply caring for every person in a real way, like we would wish to be taken care of individually, we would do that biopsy anyway, because the alternative is death.
Now to draw a parallel to ancient tribes as I was doing earlier, the resources of the tribe dictates the care each tribe member can have. Okay. But we live in one of the most abundant eras in the history of the world. And, strikingly, we also have insane wealth inequality. So what I am positing here is that the default resource allocation for you is much lower than you might assume. People are going to make cost-cutting decisions that impact you greatly. And the only resort is for you is to manage your own health. Not that you SHOULDN'T manage your own health anyway, but this cost cutting resource allocation acts as a kind of betrayal. Things being "held together by duct-tape" is not the vision that children are raised with. We don't assume we are still in a period of being "left behind by the herd" because of how great everything is. But in fact, you will realize, when you see someone deny treatment for their advanced cancer due to finances and "the odds of survival" that in fact, you can be left behind by the herd. And the more you look into the way the healthcare system is structured, you realize that there really is no herd at all. At every step you are paying for help from someone who, in many instances, could care less.
What I am also saying is blatantly that these people make mistakes and sometimes do not care. And there is little recourse for that. Which isn't a point that you addressed, but anyway.
> Instead, they were conditional on good standing and mutual consent.
And this good standing has been converted to currency. Which is a much more isolated and cut throat version of good standing. In many ways it is more unfair. And what you don't realize as a kid is also how EXPENSIVE this "good standing" actually is. To receive the benefits of the technological state we purport to be in you usually have to be upper-class. The poor are often much closer to being completely alone. As if no society exists for them at all.
> Im saying their existence should not be taken for granted.
I, on the other hand, think that they don't go far enough. They aren't good enough. I'm actually not so sure what is being "taken for granted" in a for profit system, I pay every fucking dime of it. I am not impressed with its state.
Re: Taking my diabetes treatment into my own hands
#229Earlier quoted context omitted.
> broader blood panels, body scans (eg. Prenuvo), VO2 max, metals tests, mold tests, genetic tests, GI tests, etc etc. Do you really need VO2 max test to tell you that you get out breath climbing a set of stairs? What genetic tests are you even talking about( brca ? ). Is there any actual proof that "catching cancer early" has any long term impact on survival ? ppl can go waste their money if they really want for ent…
Are you asking if early detection of cancer results in better outcomes? Yes, the data unequivocally supports that diagnosing cancer before it spreads leads to lower mortality.
Re: Taking my diabetes treatment into my own hands
#230> This is called “closed loop” or “artificial pancreas”, and getting one officially is very hard or impossible: not FDA approved yet / you need to be part of an university study to get one / … It’s one of those things that “will be here in 5 years”, they say every year for the past 30 years.
These exist now. I've had one for a few years now. Medtronic 670G.
> My treatment is usually: keep the Freestyle Libre app on my phone open as much as possible and when I see my BG’s getting high, I inject a small amount of insulin. How much? No idea. IT’S ALL VIBES.
Your correction factor is
CF = 100 / (Total Daily Dose).
To make a correction you do
Additional insulin to administer = (current blood glucose - target blood glucose) / CF
Now, even after doing this you'll still have blood sugar spikes and dips but this should get you most of the way there when combined with diet and exercise with very little "vibes" involved.