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Taking my diabetes treatment into my own hands

martin.janiczek.cz

11–20 of 372 posts

Re: Taking my diabetes treatment into my own hands

#11
Interesting read.

My wife is T1D, moved to a closed loop last year. It has been life changing for her - this is not an understatement. Her mental health has massively improved because she isn't having up to 3-4 hypos a day.

One thing not mentioned in the intro, hormones hugely affect T1D. She's started perimenopause and everything went out of the window.

Closed loop has made this much more manageable.

Re: Taking my diabetes treatment into my own hands

#12
post #2

My dad had a strange case of Type-1 diabetes that manifested later in life, at the same time he also got hit with rheumatoid arthritis. > injecting insulin ~15min before you start eating would do wonders for neutralizing the BG spike, the issue is, nobody does it, My dad did. Yeah, it did cause a couple scares. He had very well-controlled numbers but it was all-consuming and I can’t imagine the average person being a…

The two T1D people I know both started as fairly small children, so perhaps having parents managing them made it easier for them to always do the injection 15 minutes ahead.

I wonder if the author has looked at an insulin port: makes the injection aspect much simpler. https://www.diabetes.shop/i-port-advance/iport_6mm/i-port-ad...

Re: Taking my diabetes treatment into my own hands

#13
One thing you would really benefit from that you don't need a doctor for is getting your BG displayed on a smartwatch.

Assuming you have an Android phone and a compatible smartwatch (Galaxy Watch4 in my case): 1. You need to install G-Watch Wear App on your phone and watch 2. You need to replace the official Libre app with a 3rd party app supported by G-Watch like xDrip or Juggluco. There are a few of those, mostly not on the app store and you can even feed their data into eachother, I'm not going to go into detail here. 3. Set your watch face to one of the two available godawful ugly G-Watch Wear App watchfaces and enjoy a live glucose graph on your wrist

Depending on your datasource it updates every minute or every 5 minutes with some smoothing applied - again, lots of fiddling here.

There are some alternatives for iPhone and probably other watch apps for Android as well.

Re: Taking my diabetes treatment into my own hands

#14

Hey fellow T1D, this is good stuff. As a tip, I’d recommend taking your daily insulin dose, splitting it in half and doing twice daily. It helped me quite a bit in dealing with the inconsistency of it all. I personally inject around midnight and noon if I can remember. Also, if you have an android phone (I have a separate android exclusively for CGM use), there are open source apps that can connect to Libre 3 sensors…

This sounds interesting, which basal insulin do you use?

Re: Taking my diabetes treatment into my own hands

#15
The pdf here:

https://news.ycombinator.com/item?id=14667430

Suggests muscle protein impacts insulin resistance.

If you have glucose in interstitial fluid, physical activity may help.

See:

https://news.ycombinator.com/item?id=25427090

I did a paper on Functional Hypoglycemia a zillion years ago. I have a condition which puts me at high risk of diabetes. Some thoughts I'm not going to try to give citations for because it's based on decades of reading etc:

The liver stores sugars that the body calls upon when you are hypoglycemic. Liver support, such as milk thistle, may help. (Tldr: you need to provide the building blocks for glutathione, which the liver uses a lot of. It cannot be consumed directly and must be manufactured in house.)

Diabetes is associated with inflammation which may be caused by either infection or high acidity. You could get pH test strips to pee on and track your pH levels as another data stream and IF you see a correlation, treat that as well.

Functional Hypoglycemia was traditionally managed with diet. I managed mine that way for years. Avoiding sugars and having fatty, high protein foods late in the day helped prevent middle of the night severe hypoglycemic attacks.

Studies show aloe vera does good things for diabetes. Will it help T1? No idea.

But you could read up on that and firsthand experience suggests to me it may remedy other issues that are pertinent to diabetes but maybe not recognized as directly related because it's more like an underlying issue.

Re: Taking my diabetes treatment into my own hands

#16
post #14

Hey fellow T1D, this is good stuff. As a tip, I’d recommend taking your daily insulin dose, splitting it in half and doing twice daily. It helped me quite a bit in dealing with the inconsistency of it all. I personally inject around midnight and noon if I can remember. Also, if you have an android phone (I have a separate android exclusively for CGM use), there are open source apps that can connect to Libre 3 sensors…

This sounds interesting, which basal insulin do you use?

Lantus, I started doing this when my insurance stopped covering Tresciba for some reason. Probably less needed on good basal insulin but I imagine it would still help some.

Re: Taking my diabetes treatment into my own hands

#17

Interesting read. My wife is T1D, moved to a closed loop last year. It has been life changing for her - this is not an understatement. Her mental health has massively improved because she isn't having up to 3-4 hypos a day. One thing not mentioned in the intro, hormones hugely affect T1D. She's started perimenopause and everything went out of the window. Closed loop has made this much more manageable.

Out of curiosity, is your wife's closed loop solution official, or homebrew? (If official, which country do you live in, if I may ask?)

Re: Taking my diabetes treatment into my own hands

#18
A friend of mine had to take insulin dose daily. Talking around with people, he found out that diet with carbon hydrates (bread, potato, rice…) increased blood sugar.

For the past few years, he is now on keto diet and eats 2-3 eggs per day, due to some missing aminoacyd (not entirely sure why). His blood sugar is normal and he doesn’t have to take insulin anymore.

If anyone needs some more info, contact and I can ask him for more details.

Re: Taking my diabetes treatment into my own hands

#19

> https://github.com/SmartCGMS/core/blob/dffdd89a274144d0e9ecb... > Especially, a diabetic patient is warned that unauthorized use of this software may result into severe injury, including death. I like the idea of the post - I have actually been thinking about including some biophysical models for medications in my app - but I do think that if you don't understand what a system of differential equations is, maybe tr…

Don't worry, I'm not using the app's suggestions blindly (or at all, currently). But yeah the SmartCGMS authors disclaimed as much - you're using it on your own risk.

This is probably also why apps like LibreLink don't provide predictions but only show historical data - easier to not get sued if you don't give the user advice that could kill them?

Re models, differential equations and finding minima: I do agree genetic algo is a bit wonky, and the greedy random walk at the bottom was able to get similar results. Do you have some resources for optimizing a N_51 x N_51 x N_51 x N_51 -> R+ unknown black-box function? My googling led me to eg. Metropolis-Hastings algorithm, but I don't currently get it (the translation to the probability domain escapes me). You're mentioning shooting method and bisection, I'll take a look at those.

Re: Taking my diabetes treatment into my own hands

#20
One of the first things I figured out on my own right away is my carb ratio.

15 minutes before eating is a must or else you’ll be on a wild chase.

We’re somewhat insulin-resistant in the morning. Plus some glucose is dumped into the bloodstream to wake us up. This requires some units of a fast acting insulin or else the BG will go up even if you don’t eat anything. This is also why carb heavy foods are the worst breakfast foods.

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