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Ten years of remembering every day that passes (2022)

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Re: Ten years of remembering every day that passes (2022)

#2
Alzheimer's has to be one of the worst. I do find euthanasia to be a slippery slope[0], but I'll make an exception for Alzheimer's.

0: picture an understaffed and underfunded hospital, with a single nurse walking around calmingly asking anyone if they want it to end

Re: Ten years of remembering every day that passes (2022)

#3
post #2

Alzheimer's has to be one of the worst. I do find euthanasia to be a slippery slope[0], but I'll make an exception for Alzheimer's. 0: picture an understaffed and underfunded hospital, with a single nurse walking around calmingly asking anyone if they want it to end

Making an exception for X is the same slippery slope. And easy talk for people who haven't had a family member die in agony or something like that in a place where they don't allow control over your own life. My life, my terms; if I want out, it needs to be an option.

Which is exactly the problem with Alzheimer; cancer is much easier; you are usually lucid but not very happy the last few weeks/months, so let's end it. Alzheimer's they cannot even ask you, as you cannot decide for yourself for probably a long time already.

Re: Ten years of remembering every day that passes (2022)

#4
I just moved to a new country for the first time, and I've been doing a micro journal every day. Basically, I write 3-5 sentences capturing the most meaningful moments of the day. I've been doing this for two months now, and I've already found some benefits--both in gaining equilibrium and dialing up key details in sequence when necessary (i.e., when exactly did I start that home renovation project?). I'm lucky to be young enough that my cognition is still sound, but I can see benefits in this practice as I age.

Re: Ten years of remembering every day that passes (2022)

#5
post #2

Alzheimer's has to be one of the worst. I do find euthanasia to be a slippery slope[0], but I'll make an exception for Alzheimer's. 0: picture an understaffed and underfunded hospital, with a single nurse walking around calmingly asking anyone if they want it to end

Making an exception for X is the same slippery slope. And easy talk for people who haven't had a family member die in agony or something like that in a place where they don't allow control over your own life. My life, my terms; if I want out, it needs to be an option. Which is exactly the problem with Alzheimer; cancer is much easier; you are usually lucid but not very happy the last few weeks/months, so let's end it…

I’ve had multiple family members die with Alzheimer’s; can I sign up when young and lucid to die early if I get diagnosed?

The sheer horror of forgetting your children and grandchildren sickens me — and I have to say, those relatives were gone long before they were gone.

Re: Ten years of remembering every day that passes (2022)

#6
post #2

Alzheimer's has to be one of the worst. I do find euthanasia to be a slippery slope[0], but I'll make an exception for Alzheimer's. 0: picture an understaffed and underfunded hospital, with a single nurse walking around calmingly asking anyone if they want it to end

Making an exception for X is the same slippery slope. And easy talk for people who haven't had a family member die in agony or something like that in a place where they don't allow control over your own life. My life, my terms; if I want out, it needs to be an option. Which is exactly the problem with Alzheimer; cancer is much easier; you are usually lucid but not very happy the last few weeks/months, so let's end it…

We afford old people in their last days less compassion than a dog. I look forward to the day when we look back at this as a moral outrage.

Our family have recently been in the situation where my partners 85 year old grandfather, who sometimes struggles to remember who we are, had to have his leg amputated due to some metalwork he had implanted in his knee 10 years ago having worn through his skin due to him losing muscle and being very thin from being bed bound. He has approximately zero chance of adapting to having his leg amputated and, in all honesty, most of the family hoped he would die on the operating table as he has no meaningful quality of life.

Re: Ten years of remembering every day that passes (2022)

#7
post #5

Earlier quoted context omitted.

Making an exception for X is the same slippery slope. And easy talk for people who haven't had a family member die in agony or something like that in a place where they don't allow control over your own life. My life, my terms; if I want out, it needs to be an option. Which is exactly the problem with Alzheimer; cancer is much easier; you are usually lucid but not very happy the last few weeks/months, so let's end it…

I’ve had multiple family members die with Alzheimer’s; can I sign up when young and lucid to die early if I get diagnosed? The sheer horror of forgetting your children and grandchildren sickens me — and I have to say, those relatives were gone long before they were gone.

> I’ve had multiple family members die with Alzheimer’s; can I sign up when young and lucid to die early if I get diagnosed?

In the Netherlands (and I guess other countries), you have to arrange this very early (if you know your family has Alzheimers, like mine). Once you have symptoms or even are diagnosed, you cannot decide anymore. And you'll end up in a home, knowing nothing and no-one and often drugged up, until you die of natural causes (although the last part you don't notice anyway; your family does).

Re: Ten years of remembering every day that passes (2022)

#8
post #5

Earlier quoted context omitted.

Making an exception for X is the same slippery slope. And easy talk for people who haven't had a family member die in agony or something like that in a place where they don't allow control over your own life. My life, my terms; if I want out, it needs to be an option. Which is exactly the problem with Alzheimer; cancer is much easier; you are usually lucid but not very happy the last few weeks/months, so let's end it…

I’ve had multiple family members die with Alzheimer’s; can I sign up when young and lucid to die early if I get diagnosed? The sheer horror of forgetting your children and grandchildren sickens me — and I have to say, those relatives were gone long before they were gone.

In Spain this is possible. It is called “testamento vital” or “documento de voluntades anticipadas”, and the goal is just that: to declare, in a legally binding way, your wish to receive or not receive certain kinds of medical treatments in the future, in case you can no longer decide when the time comes. This includes euthanasia in cases where it is legally allowed. Alzheimer is one of such cases.

Re: Ten years of remembering every day that passes (2022)

#9

Earlier quoted context omitted.

Making an exception for X is the same slippery slope. And easy talk for people who haven't had a family member die in agony or something like that in a place where they don't allow control over your own life. My life, my terms; if I want out, it needs to be an option. Which is exactly the problem with Alzheimer; cancer is much easier; you are usually lucid but not very happy the last few weeks/months, so let's end it…

We afford old people in their last days less compassion than a dog. I look forward to the day when we look back at this as a moral outrage. Our family have recently been in the situation where my partners 85 year old grandfather, who sometimes struggles to remember who we are, had to have his leg amputated due to some metalwork he had implanted in his knee 10 years ago having worn through his skin due to him losing m…

> We afford old people in their last days less compassion than a dog. I look forward to the day when we look back at this as a moral outrage.

Maybe religious groups/political parties/lobbies etc; if they are against abortion, they will definitely be against ending grandma (who doesn't know who you or your grandpa are, but let's not mention that); religious people see it as suicide and murder, so off to hell with 2+ people for every euthanasia.

Re: Ten years of remembering every day that passes (2022)

#10
post #5

Earlier quoted context omitted.

Making an exception for X is the same slippery slope. And easy talk for people who haven't had a family member die in agony or something like that in a place where they don't allow control over your own life. My life, my terms; if I want out, it needs to be an option. Which is exactly the problem with Alzheimer; cancer is much easier; you are usually lucid but not very happy the last few weeks/months, so let's end it…

I’ve had multiple family members die with Alzheimer’s; can I sign up when young and lucid to die early if I get diagnosed? The sheer horror of forgetting your children and grandchildren sickens me — and I have to say, those relatives were gone long before they were gone.

I don't have a lot of experience with Alzheimer's, but in the couple of cases I've observed, though not from very close, the patient didn't seem to be suffering or unhappy at the end. There was a brief intermediate period of paranoia, in which they obviously were unhappy, but then they settled down into a state of complete doolallitude in which they were an expensive burden for professional carers but seemed quite cheerful. That makes the euthanasia question a bit harder.
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