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How to Replace Your CPAP in Only 666 Days

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191–200 of 273 posts

Re: How to Replace Your CPAP in Only 666 Days

#191
post #131

Earlier quoted context omitted.

Not at all. You can figure out how to configure one yourself with a few hours reading on /r/CPAP or watching YouTube. Source: myself after trying to acquire one and get it configured for months through a similar bureaucratic nightmare as the article.

I'd love to try a CPAP, any suggestions other than asking an Indian coworker to bring one back? Is there a gray market? Maybe Mexican mail order pharmacies? I'm the US with health insurance but I bet it'll be more expensive to go the legit way.

Buying/Selling medical devices is illegal so you won’t find any reliable website or marketplace. You can sometimes find people trying to get rid of one (for free or for sale) on /r/cpap and /r/cpap_swap

Most of the time you have go through a sleep study to get one. I got very lucky during the pandemic and my allergist ordered one (no sleep study) after explaining that I was waiting months for a sleep study and having suicidal ideation from weeks of waking up every ~15min.

Re: How to Replace Your CPAP in Only 666 Days

#193
I have one rule when it comes to these things. Play dumb. Don't try to be smart. It's remarkable how the system detects people trying to be smart and considers it abuse and deals with it using high latency.

I found any number of people I worked with were much more productive (car repair, internet service, insurance) if I avoided any speculation about what the problem was, or what the solution could be. Like other folks in this thread, I identify as mildly autistic, and dealing with normies in the service industry took a lot of retraining my mental model of how things work.

Re: How to Replace Your CPAP in Only 666 Days

#194

Having one's tonsils and adenoids removed and getting palette-hardening RF treatment seems like it would be a lot easier and more permanent than this rigamarole. Worked for me, and I suspect it would for a lot of other folks too.

I don't think advocating for invasive surgery is a good way of dealing with awful insurance bureaucracy. With OP's luck, he might need 666 days to get his hospital fees sorted by insurance.

Snark aside, AFAIK palate hardening is not terribly permanent, it works by creating scar tissue, which can become more floppy than the original tissue as you age. It's only useful if a floppy palate is causing obstructions/snoring. Removing tonsils and adenoids will may free up some space in the airway, but it's not going to make any difference if they're not the cause of the obstruction, and this may weaken your immune system.

While I'm sure you were trying to be helpful, I do wish people would stop treating sleep apnea like it's something that's easy to fix. Just have these body parts removed. Just lose weight. Just get on CPAP. Just fix your allergies. Just have your jaw broken and moved forward. Just have an electrode implanted. Etc.

Re: How to Replace Your CPAP in Only 666 Days

#195
post #88

Earlier quoted context omitted.

Funnily enough, we have a constitutional amendment guaranteeing the right to own machines that are designed with the singular purpose of killing people. How could a “medical device second amendment” be worse?

People owns and uses a gun know what can be done with it. People uses faulty medical device, however....

If you say so!

https://www.independent.co.uk/news/world/americas/toddler-sh...

https://apnews.com/article/toddler-shot-kenton-county-parent...

Re: How to Replace Your CPAP in Only 666 Days

#196
post #183

"Compliance" is the other half of the US insurance nightmare with CPAP. Often insurers demand access to logs of the machine to verify you are actually using it before they will reimburse you. CPAP machines have an elaborate tamper-proof logging mechanism including a cellular modem for data uploads outside your control. Largely to enable surveillance by US insurance companies. In addition to the surveillance being off…

As someone who treats people with CPAP, it’s absurd how many people get them and then don’t use them hardly at all. Yes there’s an adaptation period where you need to get used to using it, but you do need to use it for it to do anything. It doesn’t seem crazy for insurance to want to not keep paying for something that is sitting under a pile of clothes in the corner.

I don't know. I feel like the compliance checks are more expensive than the machines at this point. They retail for around $/€ 500. I suspect that sleep centres (or whoever hands out CPAP devices to patients where you are) get significant volume discounts. Say they last for 5 years. That's a near zero cost.

Of course, someone is upcharging somewhere, but that's hardly the patient's fault.

Re: How to Replace Your CPAP in Only 666 Days

#197
post #189
post #85

Earlier quoted context omitted.

I've never had to wait more than a month to see a specialist in the US

When was the last time you went? Nearly everything, even non-specialist, are booked out a month or more.

Mine are booked out forever because usable health insurance is far out of reach.

Re: How to Replace Your CPAP in Only 666 Days

#198

Earlier quoted context omitted.

> pass a Constitutional amendment allowing every human the unlimited and absolute right to buy, make, modify, and sell medical things including importing and exporting those items. The ironically terrifying evidence about what a horrible idea this is is that it was just in the news that the FDA said that recalled CPAP machines made by Philips killed 561 people: https://www.cbsnews.com/news/fda-sleep-apnea-philips-rec…

How does that not demonstrate the ineffectiveness of the regulations? Plain old consumer device safety stuff would apply here.

>How does that not demonstrate the ineffectiveness of the regulations?

The only reason there was a recall was because of the regulations and the gargantuan and slow bureaucratic apparatus surrounding Philips.

Philips tried, and would have succeeded without the regulations, to brush this off. They stalled, delated, cajoled, and lied.

Consumer protection laws (i.e. just sue after someone dies) are almost worthless in this case. No amount of rationally acting rational actor's next of kins bringing individual actions after the death of a loved one would have gotten Philips to move. Those wouldn't have even occurred because the only reason the link was made was because of a medical device monitoring system put in place by the FDA and government medical researchers looking into anomalous death statistics whose only common factor was Philips CPAP machines and the ensuing technical evaluation. Numerous deaths occurred, were attributed by some other cause because dissecting a deceased person and examining their alveoli for microscopic particles isn't an action typically performed after someone dies of what appears to be a stroke in their sleep.

Indeed, when this whole mess first started Philips deflected and delayed for years and their teams of lawyers would have annihilated each individually rationally acting rational actor's lawyers one by one to protect their bottom line drowning each litigant in delays, appeals, and litigation by financial attrition as the cases popped up one-by-one.

"Duh gubmint" is slow and often ineffective, but in this case the only reason anything happened at all and Philips CPAP machines aren't still out there literally and actually killing people is because of "a fat cat gubmint parasite" enforcing "onerous and burdensome" laws.

Of course I could be wrong. We all remember how magnanimous and ethical corporations were prior to all of these systems being put into place, don't we?

Wait. We don't?

Re: How to Replace Your CPAP in Only 666 Days

#199
post #39

Yeah try importing a CPAP from the states into Vietnam if you want a real adventure. A $650 cpap machine costs well over $2K here. So I thought I'd import one. Apparently you need a prescription in the states? Ok, get a "prescription" from an online service that basically just asks you if you snore over a video call. Amazing. Buy machine and have it sent to a freight forwarding service. They fuck up the paperwork. It…

I feel like you were expected to pay a gratuity several times in that process and they were baffled you didn't.

"Gratuity" is an amazing euphemism for corruption in a system :))

Re: How to Replace Your CPAP in Only 666 Days

#200
God, reading this is awful. I have a CPAP and I would not be willing to go one night without it. I'd buy the parts/machine out of pocket and make insurance pay for it later. The impact on my health and quality of life is way too high.

But I'm privileged to be able to do that. I can shell out $1,000 for a medical device in an emergency, and my doctors are local and return my calls. Not everyone is so lucky.

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