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23andMe changed its terms of service to prevent hacked customers from suing

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Re: 23andMe changed its terms of service to prevent hacked customers from suing

#81
post #12

Automatically opting-in customers to a more restrictive TOS is pretty suspect, especially given the timing. IANAL, but I'm pretty sure that a court would not allow that, given that the TOS was changed AFTER the breach and it's pretty clear that the company is trying to avoid legal issues after-the-fact. I would expect the court would evaluate any breach under the TOS that was in effect at the time of the breach, rath…

Right! If this were a law rather than TOS it's the whole ex post facto situation.

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#82
post #76

Earlier quoted context omitted.

Yes, yours specifically, but what if I want like 200.000 people so I can find one that has a DNA profile similar to mine, who could serve as a escape-goat or victim? Maybe I want to steal a kidney, or a child that could reasonably pass as my own?

>but what if I want like 200.000 people so I can find one that has a DNA profile similar to mine There are already literally entire databases of millions of peoples DNA freely available for scientific research.

Not with names and contact information I assume?

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#83

Thanks for sharing. Will def opt out and roll into the class action suits already filed. Take security seriously people. Especially when dealing with super sensitive data.

Why did you send them your DNA? It was pretty obvious from day 1 that sending some random startup on the internet my DNA was a bad move.

For a lot of people it is a health decision.

I go to a doctor, they have a ton of info on me. Who knows what might happen with that data ... but I still go to the doctor because it is a good idea for health reasons.

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#84

I don't feel bad for anyone who sent their dna to a private capitalistic company. It was always obvious this was gonna happen. Especially when these companies paid so much to politicians like Bernie Sanders to appear on their ads to seem "benign".

23andMe thanks you for your lack of sympathy for their victims.

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#85
post #7

To duck out of the new ToS, just write this email to legal@23andme.com-- To Whom It May Concern: My name is [name], and my 23andMe account is under the email [email]. I am writing to declare that I do not agree to the new terms of service at https://www.23andme.com/legal/terms-of-service/ .

> If you do not notify us within 30 days, you will be deemed to have agreed to the new terms. WTF. This is outrageous. And I had find that email in my spam after I read this comment. Hope this POS company goes down in flames after this.

But they hold your DNA hostage. Don't you want this company to exist on so nobody gets hurt. Oh, they peaked and leaked that's why the users get TOSsed. Carry on, Sir, baldly into a classy action lawsuit against a bankrupt company were some zeroday employee will get the biggest payout by insurance ever.

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#86
I have tried to quickly diff the previous TOS with the new one and I wasn't able to identify any big changes. I would like to know what the actual changes are. I see a lot of articles criticizing the new TOS, but no one is showing the actual wording differences.

Does anyone have an actual diff?

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#87
post #27
post #21

I would have presumed that security-minded people, which includes those who work in tech, would not so easily give away their genome, and that most of 23andMe's customers are a slice of the general population. But then I read about things like WorldCoin and that people who go to startup parties jump at the chance to give away scans of their retinas and I'm befuddled. Why would anyone willingly do that?

I am a security engineer. When I signed up for 23andme, I assumed with certainty that it would be hacked and all data leaked at some point. I balanced that with the value of knowing potentially important health/genetic bio markers. In the end, I valued knowing these bio markers above the privacy of my genome. The former is actionable and I can use it to optimize my health and longevity; the latter is of vague value a…

[deleted]

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#89
post #78

Earlier quoted context omitted.

Most of the time we're leaking our DNA all over the place by existing

So you would be ok if governments around the world have sample of yours and store it in a database?

Yes. What's the problem?

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#90

Earlier quoted context omitted.

Yep. A small tangent for anyone who has seen these: they’re very clearly not specifically enforceable. I got a window banged up by things falling off a truck with this signage, and the first thing they said when I called their “How Am I Driving” number the first thing they said was that they were not responsible citing this sign. Fortunately that sign was non binding. :)

“If you can read this bumper sticker, the occupants of your vehicle agree to…”

"Private sign, DO NOT READ"
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