81–90 of 91 posts
It took scientists ~18 years to sequence the first genome, I know that was ~15 years ago but they did have huge budgets.
At some point, I would love to setup something like this but then completely local and open-source. This could e.g. include a sequencing kit (Nanopore MinION sequencer (<$ 1,000) plus necessary consumables), protocols, and in silico workflows for basecalling, SNP calling, and interpretation.
to me this is like blood testing at home, I am surprised this is still not a thing
Earlier quoted context omitted.
One of the services they provide is giving you reports on new genetic studies and how it relates to your DNA. Another is online genome browser. Both require access to your genome. If you only want to sequence your DNA you can do that, download your files and delete your account. They promise to delete your genome once you close your account.
It's interesting to imagine how this would've worked in 1995 or something, if the sequencing was possible. You'd have done the sample, and in response they'd send you three CD-ROMs. The first is the visualizer program which you'd install as an executable. The other discs are your genome*. If your spouse or kid got their genome sequenced, you'd get two more discs. Every year the company would print an update to the di…
I would hope it compresses well (lots of repeating stuff), though I have no practical experience.
Neat that they're crafting this kind of product. But, given how easily such full sequences can plot your exact relations with any other unblinded records, this may be largely "DNA Security Theater" against the threat of their malfeasance or compromise. Also, I can't find anywhere in the Nebula materials describing the chain-of-custody of submitted DNA, & jurisdiction(s) of the sequencing labs. For example, if provide…
Even in the US, California requires 23andme to "bank" the DNA and store it for 10 years along with the name and PII. This is available to authorities. You cannot request for this to be deleted or destroyed by law.
I've not seen it reported, & when I last checked (long ago), 23andme seemed to allow a customer to decide whether their sample was retained beyond the current round of tests.
And, if it were a current requirement, wouldn't this Nebula offering be prohibited in California?
Neat that they're crafting this kind of product. But, given how easily such full sequences can plot your exact relations with any other unblinded records, this may be largely "DNA Security Theater" against the threat of their malfeasance or compromise. Also, I can't find anywhere in the Nebula materials describing the chain-of-custody of submitted DNA, & jurisdiction(s) of the sequencing labs. For example, if provide…
Even in the US, California requires 23andme to "bank" the DNA and store it for 10 years along with the name and PII. This is available to authorities. You cannot request for this to be deleted or destroyed by law.
Earlier quoted context omitted.
to me this is like blood testing at home, I am surprised this is still not a thing
I took a sample of my own blood for a mail-order blood test recently and it was stupidly difficult. One reason Theranos was so exciting that people lost their minds over it was basically that it made at-home blood samples feasible for the regular population.
Earlier quoted context omitted.
Even in the US, California requires 23andme to "bank" the DNA and store it for 10 years along with the name and PII. This is available to authorities. You cannot request for this to be deleted or destroyed by law.
Do you have a reference documenting this requirement? I've not seen it reported, & when I last checked (long ago), 23andme seemed to allow a customer to decide whether their sample was retained beyond the current round of tests. And, if it were a current requirement, wouldn't this Nebula offering be prohibited in California?
https://stanforddaily.com/2018/10/17/me-asl-23-and-me-is-not...
It’s a California “lab quality” law.
Earlier quoted context omitted.
Even in the US, California requires 23andme to "bank" the DNA and store it for 10 years along with the name and PII. This is available to authorities. You cannot request for this to be deleted or destroyed by law.
I am trying to google this but not finding much, do you have any sources or references I can read? I would really love to learn more about this if that's true..
Earlier quoted context omitted.
Do you have a reference documenting this requirement? I've not seen it reported, & when I last checked (long ago), 23andme seemed to allow a customer to decide whether their sample was retained beyond the current round of tests. And, if it were a current requirement, wouldn't this Nebula offering be prohibited in California?
https://www.23andme.com/en-int/about/biobanking/#:~:text=Unl... . https://stanforddaily.com/2018/10/17/me-asl-23-and-me-is-not... It’s a California “lab quality” law.
Instead, it's said to be kept for at most 10 years, & even that is in a paragraph describing what happens if a customer specifically chooses optional storage!
Further, if you're referencing 23andme's own privacy/terms documents, those also repeatedly pledge that samples are irreversibly destroyed upon request.
So while I can still believe your original claim might be true – California requires many dumb & anti-privacy things, sometimes in dishonest ways! – the links you've forwarded provide more grounds to doubt your claim than support it.
If it's truly a state legal requirement that overrides a user's explicit discard request for a full 10 years, that should be easy to document with a clear and authoritative link, shouldn't it?