141–150 of 321 posts
In this case the data is your genome.
I was thinking about getting a DNA testing kit for my parents and my conclusion was that I'd have to advise them that they'd need to be comfortable with their genome being public because over time leaks are inevitable. As the UK marches on towards increased fascism the chances a Tory government will demand access to such data "for security purposes" gets higher.
Earlier quoted context omitted.
> This disaster is the perfect counter-argument to those always saying "why do you care so much about privacy. It doesn't affect you when I share things. You can just choose not to do it" While I agree it's a perfect counter-argument to that, is that what people always say? I'm not sure I've heard that argument as much as "why do you care so much about privacy?" full stop. As in, they don't really understand why anyo…
> What do you think will happen to people who had their ancestry data stolen here? Sounds like an absolute treasure trove for a life insurance company. Or, would you disagree?
Earlier quoted context omitted.
I think the more common one I've heard is "Why do you care about privacy if you have nothing to hide?" In the case of 23andme, it's a perfect answer: We don't know what's hiding in our DNA and I don't know how people will use that against me in the future.
So, the reason for privacy is because the profit motive of capitalism is not sufficiently restrained as to protect citizens from being abused by corporations?
Earlier quoted context omitted.
> What do you think will happen to people who had their ancestry data stolen here? Sounds like an absolute treasure trove for a life insurance company. Or, would you disagree?
Yes, but one would hope that if an insurance company was caught using stolen data to calculate the premiums, that would be the end of that company and jail time for management (like the leaders of VW responsible of the emissions testing cheating).
"Feed personal data into this service and it'll spit out a risk assessment based on a model built on 6.9M historical health data sets."
Earlier quoted context omitted.
I think the more common one I've heard is "Why do you care about privacy if you have nothing to hide?" In the case of 23andme, it's a perfect answer: We don't know what's hiding in our DNA and I don't know how people will use that against me in the future.
So, the reason for privacy is because the profit motive of capitalism is not sufficiently restrained as to protect citizens from being abused by corporations?
This disaster is the perfect counter-argument to those always saying "why do you care so much about privacy. It doesn't affect you when I share things. You can just choose not to do it", except no, I can't choose when we're relatives and you chose to share our genome. It is so obvious that your relatives sharing their genomic data with 23andMe reveals a lot of information about you. We can only hope people will reali…
To clarify, genomic data was not reported stolen. It sounds like the breach was about genealogical data. The stolen data included the person’s name, birth year, relationship labels, the percentage of DNA shared with relatives, ancestry reports and self-reported location.
The real breach is for recently deceased people (here the time span varies greatly, but dead for ~100 years is definitely enough if you ask me) and for living people. Actually in Sweden the death info is publically available generally right away, more or less. You can buy USB sticks with ~all deaths up until very recently.
Something super creepy that happened to me recently: a hospital where I've been to a few months ago called me and asked me to participate in some DNA analysis program. They said "oh and the best part? You don't need to do anything! We will use blood samples we collected the last time." I obviously declined, but it was a huge wtf to me - they stored biological samples associated with me without informing me and can do…
Well they did call you and tried to trick you into letting them use it. But assuming they obey the law they did not used your samples. So there are privacy laws in place? Also they could have been cleaning old results/samples and this was one step.
And also - could eg. police use it?
This disaster is the perfect counter-argument to those always saying "why do you care so much about privacy. It doesn't affect you when I share things. You can just choose not to do it", except no, I can't choose when we're relatives and you chose to share our genome. It is so obvious that your relatives sharing their genomic data with 23andMe reveals a lot of information about you. We can only hope people will reali…
> This disaster is the perfect counter-argument to those always saying "why do you care so much about privacy. It doesn't affect you when I share things. You can just choose not to do it" While I agree it's a perfect counter-argument to that, is that what people always say? I'm not sure I've heard that argument as much as "why do you care so much about privacy?" full stop. As in, they don't really understand why anyo…
Do you talk family problems with all your neighbours ? With strangers ?
How would you feel when your employer will know everything you did last night ?
Earlier quoted context omitted.
I think the more common one I've heard is "Why do you care about privacy if you have nothing to hide?" In the case of 23andme, it's a perfect answer: We don't know what's hiding in our DNA and I don't know how people will use that against me in the future.
So, the reason for privacy is because the profit motive of capitalism is not sufficiently restrained as to protect citizens from being abused by corporations?