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Tinnitus linked to undetected auditory nerve damage

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Re: Tinnitus linked to undetected auditory nerve damage

#151
post #79
post #60

Most people having a peeep tone tinnitus including myself can experience complete silence for a few seconds (up to 30) by listening to a tone at the specific frequency of their Tinnitus. For example listen to the following, at a level that it isn't uncomfortable and your Tinnitus might be gone for a short time: https://www.youtube.com/watch?v=qNf9nzvnd1k This is called residual inhibition. You can Google "tinnitus re…

Well if tinnituses arises from the brain not having an input, then it seems like the proper way to fix it is to restore the input. Now restoring damage to the nerve or those little hairs inside the ear, I'm sure that's tricky, but it also seems like it should be quite doable if you just throw resources at it. This seems promising? https://hms.harvard.edu/news/scientists-regenerate-hair-cell...

there is also this similar project from the EU https://www.regainyourhearing.eu/ this is very interesting. They put hair regrowth stuff in the ear

Re: Tinnitus linked to undetected auditory nerve damage

#152

I have tinnitus. I had brain surgery to remove an acoustic schwannoma. The doctor said that I would lose all hearing in the ear due to the unavoidable damage to the acoustic nerve. Well, at least that will get rid of the tinnitus, I thought. No such luck! I still have tinnitus. As such I think there may be more to tinnitus than undetected nerve damage. It isn’t clear cut though: I have some hearing in that ear after…

My dad had one of those. They used to be called acoustic neuromas. He lost hearing in one ear because of the lack of microneurosurgey at the time and the way it was wrapped around CN 8.

Re: Tinnitus linked to undetected auditory nerve damage

#153
post #77
post #67

I've had Tinnitus since I was 14 (when I went to a concert and stood in front of the speakers). A couple of pieces of advice to people who might be struggling with their tinnitus: 1. You need to learn to cope with it - once you're used to it, it will mostly fade into the background and be manageable. Accepting that it'll never be silent again was very difficult, but that's the only thing hat helped me feel better in…

Is tinnitus really just "freaker by the speaker" syndrome?

No. Many people got it because of burn out stress for example.

Re: Tinnitus linked to undetected auditory nerve damage

#154
post #70

I have tinnitus. I had brain surgery to remove an acoustic schwannoma. The doctor said that I would lose all hearing in the ear due to the unavoidable damage to the acoustic nerve. Well, at least that will get rid of the tinnitus, I thought. No such luck! I still have tinnitus. As such I think there may be more to tinnitus than undetected nerve damage. It isn’t clear cut though: I have some hearing in that ear after…

You are not the only one, in fact removing acoustic nerve is known not to fix the tinnitus / sometimes making it worse. The research has has shown so far that it appears the Tinnitus is coming from within the brain, neurons that have lost the input signal from the acoustic nerve aren't stimulated anymore and in response start to emit noise signals on their own.

This makes sense in a "phantom limb" way.

Re: Tinnitus linked to undetected auditory nerve damage

#155
post #77
post #67

I've had Tinnitus since I was 14 (when I went to a concert and stood in front of the speakers). A couple of pieces of advice to people who might be struggling with their tinnitus: 1. You need to learn to cope with it - once you're used to it, it will mostly fade into the background and be manageable. Accepting that it'll never be silent again was very difficult, but that's the only thing hat helped me feel better in…

Is tinnitus really just "freaker by the speaker" syndrome?

No - I had tinnitus from when I was quite a young child.

As OP said though - it's a case of, if you focus on it, it'll weigh you down.

Re: Tinnitus linked to undetected auditory nerve damage

#156
post #143
post #136

Earlier quoted context omitted.

Ditto! Very useful for relieving ear pressure at altitude.

Yeah, I also use it for that. I've asked people the question, "can you click your ears"? Of course, they don't understand me, because it's such a vague question. I started asking, "can you relieve your ear pressure without moving anything else", and most people answer no. One person who dived, answered "yes, of course!" like it's something all people can.

If someone doesn't know how to do it, they could still learn it

https://en.m.wikipedia.org/wiki/Valsalva_maneuver

Re: Tinnitus linked to undetected auditory nerve damage

#157
Does this study bring anything new to the table?

I suffer from tinnitus myself and a doctor determined that there was damage to the hair cells and auditory nerves after an ear infection. I assumed the cause of such issues was factor was pretty well known.

Re: Tinnitus linked to undetected auditory nerve damage

#158
post #60

Most people having a peeep tone tinnitus including myself can experience complete silence for a few seconds (up to 30) by listening to a tone at the specific frequency of their Tinnitus. For example listen to the following, at a level that it isn't uncomfortable and your Tinnitus might be gone for a short time: https://www.youtube.com/watch?v=qNf9nzvnd1k This is called residual inhibition. You can Google "tinnitus re…

I tried the YouTube video and was slightly alarmed to discover that I appear to be deaf above about 13.5KHz. I wondered if it might be the frequency response of my laptop speakers, but according to this site [0] it's pretty flat up to 20KHz.

It didn't make the tinitius go away, but perhaps subdued it slightly. Hard to say.

But if as one of the other posters suggests tinnitus is a neurological response to lack of input, deafness in higher frequencies tallies. Like others though, jutting my jaw forward makes the tinnitus louder, so not sure how that interaction works for something originated in the brain.

Something I haven't seen mentioned here is _very_ occasional short periods (seconds) of apparent deafness, typically at night, in a quiet room, and only when very tired or sleep deprived. I say apparent because since it's quiet, it's hard to know if it's the tinnitus momentarily stopping, or all sound; and the presence of sound may prevent it from happening.

[0] https://www.dxomark.com/apple-macbook-air-15-m2-2023/

Re: Tinnitus linked to undetected auditory nerve damage

#159
Severe tinnitus 24/7 is the least of my problems that I mostly tune out.

I have left SCDS. It was verified with audiology and CT (a tiny pit) after I correctly self-diagnosed it. A traditional approach surgery is possible, but it's brain surgery where one surgeon accesses the area by lifting your cerebellum out of the way. There is a lot to go wrong for something that isn't 100% debilitating. Just I can't eat croutons because they're way too loud, I always hear my voice like there's a microphone on permanent feedback, I can hear my left eye move most of the time, and music that's too loud makes my eyes jump off focus with a momentary wave of nausea (oculovestibular involvement).

Re: Tinnitus linked to undetected auditory nerve damage

#160

I don’t know if this is a clue, but I can do muscle movements in my head/face/jaw to make the tinnitus worse (only as I make the movements, immediately reverting back to “normal” tinnitus as soon as I relax). Some examples: - jutting my jaw forwards - moving my ears back with my face muscles - pushing downward on the top of my head with my hands Another possible clue: this has been true since I can remember — even as…

Interesting.. moving muscles does nothing for me. But then again I was born with tinnitus. I actually didn't know until much later in life that a constant multi-tone ringing in your ears is NOT normal - that was simply my reality so I assumed it was the same for everyone.
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