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Tinnitus linked to undetected auditory nerve damage

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Re: Tinnitus linked to undetected auditory nerve damage

#31

Post by mlyle »

noirbot wrote: post #9
thaumasiotes wrote: post #7

Earlier quoted context omitted.

> we can cure many many forms of cancer We can try. Sometimes the cancer doesn't come back, and sometimes it does, and in no case do we understand why. This is not what most people mean by "cure".

Earnest curiosity - when someone is cured of cancer, and it comes back, is that different from me being cured of the flu and then catching the flu again later? Obviously it's different sorts of malady, but is it that the same cancer comes back, or is it just that if you had kidney cancer once, it's likely you might get it again? Or do we just not know enough about cancer to say/it varies on the sort of cancer? It's n…

We're mostly talking about it coming back. A treatment might eliminate the vast amount of cancer cells, but some can be lying dormant and wake back up at some later time (and since they survived, the ones that are more resistant to treatment have been selected-- prognosis is then much worse the second time around). Or sometimes those "seeds" of recurrent cancer never awake.

Of course, people who get one cancer are, on average, more genetically and environmentally exposed to cancer risk. Cancer treatments themselves can even increase the risk of new cancer in some cases. So getting an entirely independent cancer is possible, too.

Re: Tinnitus linked to undetected auditory nerve damage

#33

Post by jacquesm »

hanniabu wrote: post #20
jacquesm wrote: post #8

Can't wait. With me it is ups-and-downs, at times it's great for months at a stretch and sometimes it is so bad I can't listen to music (or play). There are many different forms of tinnitus and usually some mechanism or cure operates only on a fraction of all cases so I'm hoping that this is as broad as possible. Note to younger self: stay away from loud concerts.

Have you been on antibiotics since you had it? If so, did it make it any worse? I have a slight case of tinnitus and need to do a 2 week round of neomycin. Doctor says it shouldn't make it worse since it's a short course, but I'm still concerned/anxious about it.

It's been with me for 20+ years now, originally triggered by a concert in Paradiso in Amsterdam that I got free tickets to on account of repairing a bunch of cabling under the stage. The next day there was a really loud buzz on top of everything else that only slowly went away. After that it periodically recurred, usually right after exposure to some loud noise (especially: grinder, that one does it every time). I do what I can with ear protection to keep what I've got (which is a slowly losing battle), without any sound around me there is this very high pitched whine and with some low level masking sound that becomes manageable.

But e5 on the piano played loud is an instant trigger, that particular frequency is really not working for me. Never made any link with antibiotics but if I ever have to do a cure I'll be sure to pay attention. What mechanism are you concerned about? Is this a well known thing?

Re: Tinnitus linked to undetected auditory nerve damage

#35

Post by m3kw9 »

localghost3000 wrote: post #22

I've got multiple tones in both ears. Most of the time I don't notice it but sometimes... well it's hard not to panic when you realize you can't escape it. I would very much like to experience life without the ringing again before I kick the bucket. I'd honestly probably cry.

Makes me realize I should not take even the most mundane things for granted

Re: Tinnitus linked to undetected auditory nerve damage

#36

Post by mlyle »

thaumasiotes wrote: post #7
vlovich123 wrote: post #4

Earlier quoted context omitted.

I get the point but we can cure many many forms of cancer and have treatments for baldness so it feels like a moving goalposts situation.

> we can cure many many forms of cancer We can try. Sometimes the cancer doesn't come back, and sometimes it does, and in no case do we understand why. This is not what most people mean by "cure".

I don't think we have very many treatments that are 100% efficacious and durable for most conditions, even ones that are generally considered curative.

If you take antibiotics-- sometimes it doesn't seem to work at all, and some other times the infection comes back after the cessation of treatment. This is true because of some reasons that are well-understood, and others that aren't.

Yes, most cancers are worse on these metrics than most uses of antibiotics, but not always ridiculously so. There are cancers with 5 year survival rates of >95%, and with very low recurrence rates after 5 years.

Re: Tinnitus linked to undetected auditory nerve damage

#37

Post by hanniabu »

jacquesm wrote: post #33
hanniabu wrote: post #20

Earlier quoted context omitted.

Have you been on antibiotics since you had it? If so, did it make it any worse? I have a slight case of tinnitus and need to do a 2 week round of neomycin. Doctor says it shouldn't make it worse since it's a short course, but I'm still concerned/anxious about it.

It's been with me for 20+ years now, originally triggered by a concert in Paradiso in Amsterdam that I got free tickets to on account of repairing a bunch of cabling under the stage. The next day there was a really loud buzz on top of everything else that only slowly went away. After that it periodically recurred, usually right after exposure to some loud noise (especially: grinder, that one does it every time). I do…

I think it's less of a concern for someone like you where it was brought on by loud noise vs someone like me where it's likely due to an imbalanced microbiome where taking antibiotics could potentially damage your microbiome further, leading to worsening tinnitus.

Re: Tinnitus linked to undetected auditory nerve damage

#39

Post by jimmaswell »

localghost3000 wrote: post #22

I've got multiple tones in both ears. Most of the time I don't notice it but sometimes... well it's hard not to panic when you realize you can't escape it. I would very much like to experience life without the ringing again before I kick the bucket. I'd honestly probably cry.

It's almost always been there for me if a room is too quiet, but somehow it just doesn't bother me no matter how much I notice or think about it. It's just there.

Re: Tinnitus linked to undetected auditory nerve damage

#40

Post by hanniabu »

m3kw9 wrote: post #35
localghost3000 wrote: post #22

I've got multiple tones in both ears. Most of the time I don't notice it but sometimes... well it's hard not to panic when you realize you can't escape it. I would very much like to experience life without the ringing again before I kick the bucket. I'd honestly probably cry.

Makes me realize I should not take even the most mundane things for granted

Facts. I used to take a lot for granted. Now I not only have tinnitus, but also muscularskeletal and digestion issues. I'd love to go back to being healthy again, but sometimes you're dealt a shit hand. And you never know what will happen tomorrow that will change the rest of your life.
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