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Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

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Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#281

Post by stinos »

Twirrim wrote: post #184
stinos wrote: post #152

Earlier quoted context omitted.

There is no permanent relief or treatment. Lots of snake oil. That's not what this recent book [1] says, at all. In Ducth, but [2] is a translation of the main point in an interview. As far as I'm aware, this guy is rather far away from snake oil. What is true though is that not all audiologists are caught up yet. Which is a bit weird because I already read about multidisciplinary approach working a couple of years a…

> "My message is not to learn to live with that beep, but to train your brain to classify that sound as harmless, allowing you to forget about it" This is essentially what I do. I've had it tinnitus for some 20 years now. Both ears, a constant high pitched ringing. Most of the time I honestly don't notice it, even in quiet rooms. As soon as something reminds me about it, or I'm trying to listen for something quiet, o…

Forgot to mention that, but: same here. Both ears, multiple rather clean tones (i.e. sine waves) n both ears, different tones per ear. I always assumed I was 'lucky' to get it even before puberty when the brain is more plastic still, so learned to ignore it. Stress and other things can bring it back though.

> So e.g right now because I saw this HN post, it's feeling especially loud.

Exactly..

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#282

Post by stinos »

consp wrote: post #233
stinos wrote: post #152

Earlier quoted context omitted.

There is no permanent relief or treatment. Lots of snake oil. That's not what this recent book [1] says, at all. In Ducth, but [2] is a translation of the main point in an interview. As far as I'm aware, this guy is rather far away from snake oil. What is true though is that not all audiologists are caught up yet. Which is a bit weird because I already read about multidisciplinary approach working a couple of years a…

> Unfortunately, psychotherapy is barely reimbursed Is this correct and not physiotherapy? Psychotherapy (if send via gp and dianosed) is at least 75% reimbursed if done at a non-contracted practitioner unless you have the shit-insurance, then it's only 50%.

I don't know the details of it, but note this is in Belgium.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#283

Post by seviu »

I have had Tinnitus all my life, since I was a kid. At the beginning it was intermittent, now it's permanent, to a level where I understand why people have suicidal thoughts. Concentrating on tasks is quite difficult and every audiologist I visit tells me to deal with it because there is no cure.

What I find fascinating is that when I meditate or start falling asleep, I can consciously enter periods where it disappears or it becomes bearable. Like if I learn a trick with my brain in which I can mute it. Sadly entering it requires a lot of effort. And when I wake up or leave the meditation state (which is hard to reach because of the tinnitus) its impossible to reproduce it.

Mine I am sure is due to problems with my jaw (bruxism). One thing that helped with the jaw (but not the tinnitus since it is now fully embedded in my brain) was with botox injections. If you are on early stages and if you think the jaw is a main factor in your tinnitus, go to a neurodoctor and ask him for botox injections in order to treat it.

About the Lenire device, two things: it requires dedication and time, which I don't have, and you cannot event rent it. Selling it is also forbidden. In essence is an mp3 player which electrocutes your tongue. I have come with many such solutions and all are the same. Snake oil.

One last thing: the tinnitus is louder in periods where I experience more lack of sleep and stress / anxiety. It might sound cliche, but meditation, yoga, even going for a walk (no phone, no headphones, just a walk) really does work in reducing its volume.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#284

Post by kenmendin »

DelaneyM wrote: post #241

I woke up one day about twenty years ago with terrible tinnitus, to the point I could barely function. I’d never been to a concert or worked with heavy machinery and didn’t wear headphones (I have tiny ear canals and can’t fit earbuds). I went to the hospital that day, then saw two different specialists, and the only prescription I received was for Ambien so I could at least get a night’s sleep. Even on day three I c…

I have migraine headaches and keep a headache diary. I see parallels between days with headache and tinnitus.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#285

Post by ryandrake »

MichaelMug wrote: post #82

I’ve had tinnitus for about one year now. There is no permanent relief or treatment. Lots of snake oil. My hearing was tested by an Audiologist and my hearing was normal. The “sound” I observe is high pitched. Using a tone generator I matched it to around 16,500 Hz. Interestingly, if I play that tone I get temporary relief on the order of 2-10 minutes. As far as I understand my tinnitus is the result of something goi…

> I’ve had tinnitus for about one year now. There is no permanent relief or treatment. Lots of snake oil.

Half of the 200+ post comment section reads like those bottom of the barrel YouTube ads with the AI generated voices: "Try this secret trick to cure your [condition]." It seems to always happen when someone comes here to ask for opinions on disease, food, health or fitness. People, don't go to HN for medical or nutrition advice.

So far, we've already seen: Magic audio tracks, shocking the tongue, steroids, and Ambien, and those are only the top few root subthreads.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#286

Post by cryptonector »

jtwoodhouse wrote: post #208

I had horrible tinnitus for three months. I couldn't hear anything out of my right ear. Foolishly, I went to see Inception with it. That was so disorienting. My audiologist said I was SOL and there was nothing to do about it. A few months later, I went to see a nurse practitioner about something unrelated. The ear came up and she wrote me a Rx for a steroid just to try it and see what happens. Two weeks later, I went…

Steroids are part of the diagnostic procedure for tinnitus. Your audiologist should have mentioned it; I'm shocked they didn't.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#288

Post by versteegen »

Twirrim wrote: post #184
stinos wrote: post #152

Earlier quoted context omitted.

There is no permanent relief or treatment. Lots of snake oil. That's not what this recent book [1] says, at all. In Ducth, but [2] is a translation of the main point in an interview. As far as I'm aware, this guy is rather far away from snake oil. What is true though is that not all audiologists are caught up yet. Which is a bit weird because I already read about multidisciplinary approach working a couple of years a…

> "My message is not to learn to live with that beep, but to train your brain to classify that sound as harmless, allowing you to forget about it" This is essentially what I do. I've had it tinnitus for some 20 years now. Both ears, a constant high pitched ringing. Most of the time I honestly don't notice it, even in quiet rooms. As soon as something reminds me about it, or I'm trying to listen for something quiet, o…

I think my tinnitus is so easy to ignore because it's perfectly even and at extremely high frequencies I probably can't even hear any more. Which is what I assume the cause is.

Honestly I didn't think I had real tinnitus because I don't notice it for more than a moment for weeks at a time, at least not enough to be bothered, although I've have it as long as I can remember. It's not all that loud, but after concentrating on it for a while it's been there constantly and consciously for a good 10min already and it's not going away!

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#289

Post by vorpalhex »

ryandrake wrote: post #285
MichaelMug wrote: post #82

I’ve had tinnitus for about one year now. There is no permanent relief or treatment. Lots of snake oil. My hearing was tested by an Audiologist and my hearing was normal. The “sound” I observe is high pitched. Using a tone generator I matched it to around 16,500 Hz. Interestingly, if I play that tone I get temporary relief on the order of 2-10 minutes. As far as I understand my tinnitus is the result of something goi…

> I’ve had tinnitus for about one year now. There is no permanent relief or treatment. Lots of snake oil. Half of the 200+ post comment section reads like those bottom of the barrel YouTube ads with the AI generated voices: "Try this secret trick to cure your [condition]." It seems to always happen when someone comes here to ask for opinions on disease, food, health or fitness. People, don't go to HN for medical or n…

Tinnitus may have a psychological component. Many people, in this thread, talk about reducing or removing alcohol and having improvement. Alcohol does very weird things to sleep and the stress cycle.

One of the things that occasionally freaks people out is that magical talismans, regardless the magic.. actually work - at above placebo! In fact, even fake magical talismans.. work.. at above placebo..

Psychological things are very real and can be measured but can be influenced in funny ways. Something may genuinely fix or help the issue and not actually treat the direct symptom.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#290

Post by wesbz »

This post caught my eye as I just got my audition tested this morning. My tinnitus started 2 months ago after I got COVID. It would range from ringing in my hear once a day to non-stop for days. I've been told there's nothing to do except waiting for it to maybe disappear.
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