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Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

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Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#271

Post by upghost »

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus.

Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, there may be others that work better. But I have let other tinnitus sufferers wear my headphones and they all say it makes the tinnitus go away completely) 1a: (cut out the dialogue in the beginning with audacity) Step 2: buy a pair of these waterproof mp3 ONLY (it’s an appliance) bone conduction headphones: https://a.co/d/aqqhPm9 Step 3:put the mp3 you ripped on the headphones and remember what a normal life feels like

The only times I realize I have tinnitus is are right before I fall asleep, right when I wake up, and once a day for 20 minutes when I need to charge my headphones.

And I want to emphasize my tinnitus sounds like the screaming sun planet on Rick and Morty. It’s really bad. But thanks to this technique I only experience pain a few minutes per day. Good luck everyone.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#272

Post by jtwoodhouse »

starstripe wrote: post #230
jtwoodhouse wrote: post #208

I had horrible tinnitus for three months. I couldn't hear anything out of my right ear. Foolishly, I went to see Inception with it. That was so disorienting. My audiologist said I was SOL and there was nothing to do about it. A few months later, I went to see a nurse practitioner about something unrelated. The ear came up and she wrote me a Rx for a steroid just to try it and see what happens. Two weeks later, I went…

What was the steroid? What caused your tinnitus or did it appear for no apparent reason?

I think it was prednisone. I suffered an intense inner ear infection that left me with tinnitus.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#273

Post by cnity »

guntherhermann wrote: post #193
Twirrim wrote: post #184

Earlier quoted context omitted.

> "My message is not to learn to live with that beep, but to train your brain to classify that sound as harmless, allowing you to forget about it" This is essentially what I do. I've had it tinnitus for some 20 years now. Both ears, a constant high pitched ringing. Most of the time I honestly don't notice it, even in quiet rooms. As soon as something reminds me about it, or I'm trying to listen for something quiet, o…

Same, I have had tinnitus since a child. The more you focus on it, the worst it gets. Best to accept that you have it and once you do the issues goes away (mostly), I still wake up sometimes noticing it, but it goes away. I think this is a good approach to many mental & physical ailments, however it is easier said than done.

Meditation helps with this. Befriend the tinnitus. It is easy to let go of something for which you have only equanimity.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#274

Post by haltist »

DelaneyM wrote: post #241

I woke up one day about twenty years ago with terrible tinnitus, to the point I could barely function. I’d never been to a concert or worked with heavy machinery and didn’t wear headphones (I have tiny ear canals and can’t fit earbuds). I went to the hospital that day, then saw two different specialists, and the only prescription I received was for Ambien so I could at least get a night’s sleep. Even on day three I c…

If it was 20 years ago then you probably don't have a brain tumor because those are caught very late and are often terminal. Mine is from some high impact sport injuries so there is no permanent solution but if someone doesn't have any special injuries around the neck and jaw area then basic exercises for reducing tension in the neck can be effective. Some people also have sinus and congestion problems which can be "fixed" with antihistamines sometimes.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#275

Post by burnte »

upghost wrote: post #271

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus. Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, t…

I'm thrilled it works for you and I'm sorry yours is so bad. Mine is average I'd guess, but I actually avoid those apps that generate these sounds because once I listened and heard the REAL silence, I knew if I did it much longer it would drive me bonkers whenever my tinnitus came back. I've had it since early childhood so I think I learned to tolerate it better, I can mostly ignore it these days. So I'd just say to other people, be careful with those apps/sounds, you might get dependent on it VERY quickly.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#277

Post by upghost »

burnte wrote: post #275
upghost wrote: post #271

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus. Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, t…

I'm thrilled it works for you and I'm sorry yours is so bad. Mine is average I'd guess, but I actually avoid those apps that generate these sounds because once I listened and heard the REAL silence, I knew if I did it much longer it would drive me bonkers whenever my tinnitus came back. I've had it since early childhood so I think I learned to tolerate it better, I can mostly ignore it these days. So I'd just say to…

Oh yeah, I’d give anything to hear the real silence again. Someone sent this to me as an FDA treatment that’s new, but I haven’t tried it: https://www.lenire.com/what-is-lenire/

I’m hoping for some “silence tourism” once in awhile!

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#278

Post by 1970-01-01 »

Night_Thastus wrote: post #268
1970-01-01 wrote: post #258

The best therapy for living with it is being tough. That means accepting it and moving forward with life. Mute or avoid all loud sound as much as possible or it flares and becomes worse. I simply have no other wisdom on it for you.

What an AH take. I've lived with it for my whole life, and I've accepted that it likely won't be fixed. But if you've had it, you know it can also be HELL at times. Trying to sleep while hearing loud, incessant ringing can be impossible. Being unable to pay attention to a conversation or movie because it's so loud. Never hearing true silence when you just want to decompress. Fear that it will get worse or you'll lose…

As an asshole with it, I assure you my take is still correct. :)

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#279

Post by criddell »

mmh0000 wrote: post #235
criddell wrote: post #130

Earlier quoted context omitted.

Have you talked about the Lenire device with your colleagues at all? It got FDA approval and is slowly rolling out as they train audiologists. There’s a Lenire provider where I live (Austin) and I’m on the fence about scheduling an appointment to get one.

$5000[1] (minimum) for something with no proof it works and no “trial period”. No thank you. That’s like the exact definition of snake oil. [1] https://treblehealth.com/lenire-tinnitus-review/

The FDA submission [1] says it they have provided reasonable assurances of the effectiveness of the device.

Your link lists all kinds of information about the effectiveness like:

> 80% of participants reported a reduction in tinnitus symptoms

That doesn't sound like snake oil to me...

I'd love to hear from somebody who has tried it. If they say it helped at all, I'd write a $5000 check today.

[1]: https://www.accessdata.fda.gov/cdrh_docs/pdf21/DEN210033.pdf

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#280

Post by instagib »

http://tinnitustalk.com/ as a few have mentioned.

I dove into research as well and found one which sounded promising but I didn’t research further. Shocking the tongue.

On the website under pulsative they mention surgery based on a specific MRI for pulsative tinnitus being read by a specialist. It cured some people.

Mine changes often and both ears are different with multiple different sequences of sounds. I wear hearing aids which I can switch on/off white noise or play music through them with Bluetooth. I play music, videos, or podcasts most of the day and take something to help me sleep.

There’s a “How to manage your tinnitus: a step-by-step workbook” by James Henry, Zaugg, Myers, and Schmidt all PhD.

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