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Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

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Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#261

Yes. I stopped eating refined sugar and drinking any alcohol and my 90% hearing loss in one ear + tinnitus has gone away in about 3-4 months. I was suffering with it for years. I also had all mercury fillings removed by a specialist with the correct equipment and procedures.

I don't know about the mercury fillings, but the times I've completely stopped eating anything with added sugar have had dramatic effects on my health.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#262

Yes. I stopped eating refined sugar and drinking any alcohol and my 90% hearing loss in one ear + tinnitus has gone away in about 3-4 months. I was suffering with it for years. I also had all mercury fillings removed by a specialist with the correct equipment and procedures.

I also had my mercury amalgam fillings removed and replaced by a specialist in a hazmat-like setup, and I also no longer drink alcohol, and I also don't eat refined sugars, and yet I still hear my tinnitus. But I don't suffer from my tinnitus. I only ever notice it occasionally, when I see any mention of it, or when I think about it.

I.e., I got used to it.

In the beginning though it was awful.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#263

I had a concussion about ten years ago (lost consciousness and fell on the floor). This gave me amnesia, which lasted for a few hours, and a tinnitus that lasted for about three months. The tinnitus was high pitched and on a specific frequency (don't recall any more details). It made it difficult to focus. Based on some Internet search I found that other people were helped by listening to (coloured) noise. I started…

Congrats! Did you listen to the pink noise on headphones or speakers?

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#264

Yes. I stopped eating refined sugar and drinking any alcohol and my 90% hearing loss in one ear + tinnitus has gone away in about 3-4 months. I was suffering with it for years. I also had all mercury fillings removed by a specialist with the correct equipment and procedures.

Now that you mention it my tinnitus has improved (but not gone) since quitting alcohol. That stuff is just worthless poison.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#265
I've had tinnitus for around 15 years now. I've followed the research pretty closely. One thing to be especially weary about is the placebo effect. For some reason it's especially bad when it comes to tinnitus. I think that's how so many snake oil products can thrive in this area.

Back when they were doing the OTO-313 study a year or so ago, I read several reports from people who were in the study the drug had made their tinnitus go away (one on the TinniusTalk forums, and a few in a tinnitus Facebook group). However, when the results came back, the drug did not beat placebo. A similar thing happened with the FX-322 drug (that one was for hearing restoration but people were hopeful it could address tinnitus too).

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#267

I've never heard anyone else say this but : I have had significant tinnitus for my entire life. As early as I can remember, I always had ringing in my ears. I think I was born with it. Anyone else? I've only ever heard of people acquiring it over the course of their lives, but I know I was born with it. It doesn't really bother me, since its been normal for me since before I was even forming memories.

Yep. Since I was a child, as long as I can remember.

I just thought everyone heard that high pitch TV tube sound all the time.

When cartoons would show "ringing in the ears" with a bell, I thought that's what they meant - that you heard an actual bell sound. I never knew that I was hearing "ringing" all the time.

I used to play in bands and listen to live music a lot, so I got my hearing tested a few years ago. I have no damage at all. Surprisingly, I have better hearing for my age in some frequencies.

The theory I subscribe to is that it's structural - like, a blood vessel that's just really close to I dunno, something in my ear that is constantly stimulating some sound sensing nerve or whatever.

It's been constant, kind of annoying, but not worsening. I'd go nuts if put into a silent room. Fortunately, the world is not completely silent. But I prefer to sleep with white noise or a fan. Sometimes it just fades into the background, but if I think about it (like I am right now) it's really noticeable.

I don't consider it a problem, but it would be nice to get rid of it.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#268

The best therapy for living with it is being tough. That means accepting it and moving forward with life. Mute or avoid all loud sound as much as possible or it flares and becomes worse. I simply have no other wisdom on it for you.

What an AH take.

I've lived with it for my whole life, and I've accepted that it likely won't be fixed.

But if you've had it, you know it can also be HELL at times. Trying to sleep while hearing loud, incessant ringing can be impossible. Being unable to pay attention to a conversation or movie because it's so loud. Never hearing true silence when you just want to decompress. Fear that it will get worse or you'll lose hearing completely.

Sometimes it's not bad. Other times it feels like water torture. It's technically harmless but the sensation can make it difficult to even stay sane.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#269

I had horrible tinnitus for three months. I couldn't hear anything out of my right ear. Foolishly, I went to see Inception with it. That was so disorienting. My audiologist said I was SOL and there was nothing to do about it. A few months later, I went to see a nurse practitioner about something unrelated. The ear came up and she wrote me a Rx for a steroid just to try it and see what happens. Two weeks later, I went…

I would love to know what steroid this was.

IIRC it was prednisone.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#270

Yes. I stopped eating refined sugar and drinking any alcohol and my 90% hearing loss in one ear + tinnitus has gone away in about 3-4 months. I was suffering with it for years. I also had all mercury fillings removed by a specialist with the correct equipment and procedures.

Reduced sugar and salt for me. I was told I have no reason to have tinnitus (including the fact I don’t work in loud environments, use headphones cautiously, etc.)

Two years into a “I’d like to be fitter and healthier” lifestyle change and I’ve watched my diet influence tinnitus massively.

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